INFO 4470/ILRLE 4470 Ethical Aspects of Data Collection and Privacy Protection John M. Abowd and Lars Vilhuber March 30, 2011.

Slides:

Advertisements

Similar presentations

Statistical disclosure limitation: Balancing data confidentiality and data access.

Advertisements

Hart District Acceptable Use Policy Acceptable Use Policy.

National Science Foundation Division of Science Resources Statistics May The Confidential Information Protection and Statistical Efficiency Act.

The Institutional Review Board. What is an IRB? An IRB is committee set up by an institution to review, approve, and regulate research conducted under.

Definition, pg 225 Introduction to the Practice of Statistics, Sixth Edition © 2009 W.H. Freeman and Company.

Chapter 1 Getting Started Understandable Statistics Ninth Edition

INFO 7470/ILRLE 7400 Geographic Information Systems John M. Abowd and Lars Vilhuber March 29, 2011.

SECTION 6.3 DATA ETHICS. WHAT IS ETHICS? Turn & talk.

UH employees and students who conduct research involving human subjects are required to obtain approval from the Committee on Human Studies (CHS). John.

CHAPTER 3, The Ethics and Politics of Social Research

INFO 4470/ILRLE 4470 Social and Economic Data Introduction John M. Abowd and Lars Vilhuber January 24, 2011.

INFO 4470/ILRLE 4470 Social and Economic Data Federal Data Providers (extras) John M. Abowd and Lars Vilhuber January 31, 2011.

INFO 4470/ILRLE 4470 Social and Economic Data Populations and Frames John M. Abowd and Lars Vilhuber February 7, 2011.

INFO 4470/ILRLE 4470 Social and Economic Data The 2010 Census of Population John M. Abowd and Lars Vilhuber January 26, 2011.

Ethics in Social Science Research Special difficulties in Criminal Justice & Criminology.

© John M. Abowd 2005, all rights reserved Sampling Frame Maintenance John M. Abowd February 2005.

THE ETHICAL CONDUCT OF RESEARCH Chapter 4. HISTORY OF ETHICAL PROTECTIONS The Nuremberg Code The Office for Human Research Protections (OHRP), United.

ETHICAL RESEARCH © 2012 The McGraw-Hill Companies, Inc.

INFO 4470/ILRLE 4470 Register-based statistics by example: County Business Patterns John M. Abowd and Lars Vilhuber February 14, 2011.

CUI Statistical: Collaborative Efforts of Federal Statistical Agencies Eve Powell-Griner National Center for Health Statistics.

Be careful, a spy is following you!. 2 Outline – Overview Introduction - What is RFID ? Radio frequency spectrum How does RFID work ? Technical contraints.

METHODS IN BEHAVIORAL RESEARCH NINTH EDITION PAUL C. COZBY Copyright © 2007 The McGraw-Hill Companies, Inc.

Eric J. Pritchard One Liberty Place, 46 th Floor 1650 Market Street Philadelphia, Pennsylvania (215)

Section 3. Double Blind - Neither the subjects nor the people working with them know which treatment each subject is receiving Block Design - A block.

Overview of 2002 CIPSEA: Methods to Protect Confidential Tabular Data Amrut Champaneri, Ph.D. U.S. Department of Transportation Bureau of Transportation.

Spring Semester 2009 IT Policy and Technology: Japan and Global IT Environment 世界のなかの日本としての IT 政策と技術 Jun Murai Masaaki Sato Jun Takei May 21, Privacy.

The DoubleClick controversy and other related issues pertaining to privacy on the Internet.

© John M. Abowd 2005, all rights reserved Objectives of Public and Private Data Collection John M. Abowd February 2005.

University of North Carolina at Greensboro Protecting Research Participants.

Information Anxiety By Meghan Randinelli. Introduction Greatest problem concerning ethical information technology (IT) is personal privacy Greatest problem.

PUBLIC SCHOOL LAW Part 24: Education Law Books on Reserve.

Patron Privacy Issues Cindy Cunningham – OHSU. Overview Balancing demands (academic environment) Privacy in Libraries System Privacy  Vendor  Institution/Library.

Research Ethics. Ethics From the Greek word, “Ethos” meaning character From the Greek word, “Ethos” meaning character Implies a judgment of character.

©2012 McGraw-Hill Ryerson Ltd. Types of Data  Primary – Facts and observations that researchers gather for the purposes of a study.  Secondary – Data.

Unless otherwise noted, the content of this course material is licensed under a Creative Commons 3.0 License.

Statistics in Schools Vicki Glasier, Statistics in Schools 2014 State Data Center and Census Information Center Steering Committee Meetings March 5, 2014.

What Institutional Researchers Should Know about the IRB Susan Thompson Senior Research Analyst Office of Institutional Research Presented at the Texas.

© 2011 Pearson Prentice Hall, Salkind. The Importance of Practicing Ethics in Research.

Objective 9/23/15 Today we will be completing our research methods unit & begin reviewing for the upcoming unit assessment 9/25. Agenda: -Turn in all homework.

© John M. Abowd 2005, all rights reserved Assessing Data Quality John M. Abowd April 2005.

Privacy & Confidentiality in Internet Research Jeffrey M. Cohen, Ph.D. Associate Dean, Responsible Conduct of Research Weill Medical College of Cornell.

The Savvy Cyber Teacher ® Using the Internet Effectively in the K-12 Classroom Copyright  2003 Stevens Institute of Technology, CIESE, All Rights Reserved.

INFO 4470/ILRLE 4470 Visualization Tools and Data Quality John M. Abowd and Lars Vilhuber March 16, 2011.

INFO 7470/ECON 7400/ILRLE 7400 Understanding Social and Economic Data John M. Abowd and Lars Vilhuber January 21, 2013.

INFO 7470 Overview of the Federal Statistical System John M. Abowd and Lars Vilhuber February 1, 2016.

The Importance of Practicing Ethics in Research.  Summarize why it is important to practice ethical research.  Describe the basic principles of ethical.

4.1 Statistics Notes Should We Experiment or Should We Merely Observe?

Principles for the Protection of Human Rights Beneficence Primary goal of health care as doing good for clients under our care. Good care requires that.

Rene Descartes: “I think; therefore I am.”. 3.3: Data Ethics Statistics Chap 3: Designing Experiments.

Data Ethics Ethical issues can arise when we collect data from people Difficulties can be more severe for experiments – Impose treatments – Can possibly.

Protecting your search privacy A lesson plan created & presented by Maria Bernhey (MLS) Adjunct Information Literacy Instructor

INFO 7470/ECON 7400/ILRLE 7400 Register-based statistics John M. Abowd and Lars Vilhuber March 4, 2013 and April 4, 2016.

INFO 7470/ECON 7400/ILRLE 7400 Alternate Data Sources of the 21 st Century John M. Abowd and Lars Vilhuber March 4, 2013 and April 4, 2016.

CHAPTER SIXTEEN The Right to Privacy and Other Protections from Employer Intrusions.

Thank you very much for including the HD*Calc software ( on your website or social media platform. The National Cancer Institute.

© John M. Abowd 2007, all rights reserved Confidentiality, Privacy, and the Ethics of Social Data John M. Abowd January 2007.

The Protection of Human Participants in Research A Brief Overview.

Preparing for the project mockups INFO 4470 John M. Abowd and Lars Vilhuber March 28, 2011.

Framework of engagement : big data for official use Roy D. Ibay AVP Regulatory PLDT – Smart.

INFO 4470/ILRLE 4470 Experimental visualization John M. Abowd and Lars Vilhuber March 7, 2011.

Jim Loter Director of Information Technology

Acceptable Use Policy (Draft)

Ethics and Politics of Research

Ethics in Social Psychology

The Protection of Human Participants in Research

Ethics in Research.

4.3: Using Studies Wisely.

Basic Practice of Statistics - 3rd Edition Lecture PowerPoint Slides

Ethical, Legal, Cultural and Environmental Concerns

Interviewer Research Ethics

Presentation transcript:

INFO 4470/ILRLE 4470 Ethical Aspects of Data Collection and Privacy Protection John M. Abowd and Lars Vilhuber March 30, 2011

2 Outline Overview of human rights and social science Brief history of human subjects abuses and confidentiality breaches Statutory protections and authorizations Informed consent Institutional review boards 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

3 Privacy and Public Policy The right to privacy The public demand for information Balancing these concerns See the Committee on National Statistics Executive summary from Private Lives and Public PoliciesNational Statistics Executive summary from Private Lives and Public Policies 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

4 Unethical Medical and Social Research Examples that have received much attention The Tuskegee Syphilis StudyTuskegee Syphilis Study Eugenics 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

5 Breaches of Confidentiality with Statistical Data Illegal uses of statistical data The French Census of 1941 Japanese Internment In WWII 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

6 Basic Public Policy The Privacy Act The Confidential Information and Statistical Efficiency Act URLs on course web site 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

7 Statutes Affecting Census and Census Research Data Centers Title 13 (Census Bureau data) Title 26 (Internal Revenue Service data) Title 44 (CIPSEA) 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

8 Mandatory v. Voluntary Censuses and Surveys Mandatory: response compelled by law Voluntary: respondent may refuse all or items 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

9 Informed Consent What will be asked/collected? Current uses Potential future uses 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

10 Institutional Review Boards Human subjects Ethical treatment of subjects Protection of confidentiality Secondary data analysis 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved

Privacy on the Internet Search logs and purchase histories are notoriously difficult to protect Since they cannot be santized, most companies don’t allow unsupervised research use 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved 11

The 21 st Century Cell phones, mobile devices RFID scanners Geospatial data with time stamps and device IDs is becoming pervasive As difficult to protect as search logs 3/30/2011 (c) John M. Abowd and Lars Vilhuber 2011, all rights reserved 12