0 NATIONAL CENTER FOR HEALTH STATISTICS ~ 2006 Data Users Conference ~ July 11, 2006 – Washington, DC The Public Health Data Standards Consortium Walter G. Suarez, MD President, PHDSC President and CEO, Institute for HIPAA/HIT Education and Research

1 u Our Organization and Mission u Our Members u Our Projects and Products u How to Get Involved PHDSC – Outline of Presentation

2 Our Organization u Nonprofit voluntary confederation of federal, state and local health agencies, national and local professional associations and public and private sector organizations interested in public health data and data standards

3 PHDSC - Organizational Chart Normal Font - Active Committees Italic Font - Proposed Committees TBN – to be named Sub-Committees BOARD OF DIRECTORS P R O G R A M A R E A S CERTIFICATION EXECUTIVE COMMITTEE & EXECUTIVE DIRECTOR Health Care Services Data Reporting Guide PRIVACY, SECURITY & DATA SHARING External Cause of Injury Codes COMMUNICATION & OUTREACH Public Health Vocabulary Co-Chairs: Vicki Hohner & Richard Urbano Co-Chairs: David Ross & Anna Orlova Co-Chairs: Arturo Coto & Starla Ledbetter Co-Chairs: Vivian Auld & Michelle Williamson Co-Chairs: Robert Davis & Starla Ledbetter Chair: TBN Payer Typology Co-Chairs: Amy Bernstein & Judy Parlato BUSINESS PLAN DATA STANDARDSNATIONAL HEALTH INFORMATION NETWORK Chair: Robert Davis Co-Chairs: Lawrence Hanrahan & Martin LaVenture Co-Chairs: Noam Arzt & Farzard Mostashari Web-Based Resource Center Co-Chairs: Sally Klein & Michelle Williamson Task Force on Standard Harmonization Contract Task Force on Privacy Contract

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5 Achieving Our Mission u By promoting the integration of health-related data systems to meet health data needs of public and private organizations, agencies and individuals u By representing public health with a common voice in the on-going processes of developing and implementing national health care standards u By identifying priorities for developing and implementing new national standards for population health u By educating the public health community about health- related data standards and the health data standards community about public health

6 Achieving Our Mission

7 Members

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9 PHDSC – Projects and Products

10 PHDSC Products: PHDSC Established as a Voluntary Confederation 04/00 PHDSC Members Join Data Content Committees 06/00 Mother’s Medical Record Number is added on Health Care Claim 07/03 PHDSC became a non-profit organization 03/04 Electronic Health Record- Public Health (EHR-PH) White Paper 10/02 Health Care Services Reporting Guide 03/02 Health Data Standards Survey 05/03 Web- based Resource Center 05/01 PHDSC Education Strategy on Data Standards

11 PHDSC Products: /05 Privacy & Security Websites 07/05 Role of Public Health in Adoption & Use of HIT 02/05 EHR-PH Prototype 02/06 Towards a Payer Typology Standard 01/05 Response to the RFI on the NHIN Development & Adaptation of aNHIN 04/06 National Standards Harmonization Project

12 PHDSC Products – Website and Web-based Resource Center

13 PHDSC Products – Web-based Resource Center

14 PHDSC Products – Web-based Resource Center

15 PHDSC Products The Role of Public Health in the Adoption and Use of Health Information Technology Small Conference Program Grant # 1R13 HS from the Agency for Healthcare Research and Quality Role of Public Health in Adoption & Use of Health Information Technology. Report. July URL:

16 PHDSC Products The Health Care Services Data Reporting Guide First national standard implementation guide for electronic reporting/collection of information by public health agencies Developed and maintained as part of the ANSI X12N standards committee Type of applications: collection of administrative data, discharge data, encounter data Available from

17 PHDSC Products Developing a Prototype for EHR-PH Interoperability: Primary Care, Pediatrics and Public Health

18 PHDSC Products - EHR-PH Interoperability System Prototype

19 PHDSC Products - EHR-PH Interoperability System Prototype

20 PHDSC Products - EHR-PH Interoperability System Prototype

21 PHDSC Products Developing Specification Requirements for Electronic Data Exchange between Clinical and Public Health Settings: Examples of School Health and Syndromic Surveillance in New York City Contract from Health Resources and Services Administration Requisition/Purchase Request No.: 05-S

22 PHDSC Project on a Vision for EHR-PH Functional Specifications (HRSA) Project Rationale: To help facilitate the development of interoperable EHR-Public Health (EHR-PH) system there is a need to describe work processes that support data exchange between clinicians and public health practitioners to formulate functional requirements for electronic communication between clinical and public health settings, so that the EHR-PH data/information exchange deployed at one clinical setting to transmit data to a public health agency can be replicated at other clinical facilities.

23 PHDSC Project on a Vision for EHR-PH Functional Specifications (HRSA) Functional specifications were developed in the format of the Requirement Analysis Document (RAD) that documented data exchange processes and include the description of: Goals of the EHR-PH Data Exchange Functions that the EHR-PH Data Exchange will support Actors – stakeholders – participant in data exchange Actions – stakeholders activities Data Sources – public health reporting forms Dataflow and Workflow Models Proposed System Architecture

24 CHC-I EHRS EHR Community Health Centers (CHC) New York City Department of Health & Mental Hygiene Automated Student Health Record (ASHR) System School Forms School-II System School Forms School-N System School Forms School-I System School Forms New York City Schools CHC-II EHRS EHR CHC-N EHRS EHR 211S Form RES Form MUM Form Consent Form School Health: EHR-PH Data Exchange

25 Laboratory Ambulatory Care Pharmacy Response Team State Public Health Surveillance System Syndromic Surveillance: Workflow and Dataflow DHHS 1- Report/retrieve of symptoms, diagnosis & medication prescription data from EMRs 2 – Data mining of EMR notes 3 – Notify on increased number of cases & recommend to order pathogen test 4 – Order pathogen test 5 – Report positive test result electronically & by phone 6 – Report on the positive case electronically & by phone Media Local Public Health Surveillance System Hospital Neighboring Jurisdictions PUBLICPUBLIC

26 PHDSC Products PHDSC Emerging Initiatives: Standards Harmonization, Privacy and Security, RHIOs and the Nationwide Health Information Network (NHIN)

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28 HHS Health IT Strategy Standards Harmonization Contractor (HITSP) Compliance Certification (CCHIT) Privacy/Security Solutions (HISPC) NHIN Prototype Contractors Office of the National Coordinator Project Officers American Health Information Community (Led by HHS Secretary Michael Leavitt) Continuous Interaction with Multiple Public and Private Stakeholders Consolidated Health Informatics (CHI) Other Federal HIT Initiatives Private Sector HIT Initiatives Regional Health Information Organizations (RHIOs)

29 u Public Health is a critical player in all new Health IT initiatives u Consortium bringing Public Health expertise and voice to these initiatives u Standards Harmonization: Representation at the HISTP Panel and Board of Directors Facilitating role at the HISTP Biosurveillance Technical Committee Technical expertise and participation in the Committee Health IT Initiatives and Public Health

30 u Privacy and Security Assisting national project coordinator collect and analyze state reporting of privacy and security laws/regulations affecting health information exchange Looking at forming a ‘Public Health Privacy and Security Officers Forum’ u RHIOs Public health state agencies taking a leadership role in the formation and implementation of RHIOs u NHIN Public health participation critical in the development of NHIN prototypes Consortium’s NHIN Committee to provide input to this process Health IT Initiatives and Public Health

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