1 National Dementia Strategy ‘We are in it together’ East Midlands Annette Lumb and Jillian Guild

2 Building the Regional Support Team Improvement Programme for the East Midlands Annette Lumb Jill Guild Social Care Programme Lead NHS Programme Lead EM Department of Health EM Strategic Health Authority

3 Improvement Programme for the East Midlands Our goal for the East Midlands  Improve awareness of dementia  Diagnosis is made early to allow for intervention  Deliver high quality care and support for those with dementia and their carers  Implement regional collaborative programme across 5 sub-localities

4 Improvement Programme for the East Midlands What have we been doing since the launch in February 2009?

5 Improvement Programme for the East Midlands Next Stage Review Mental Health Reference Group East Midlands Joint Improvement Partnership (JIP) Executive Board Chair: Mick Connell, Leicestershire County Council East Midlands JIP and Early Intervention Programme Board Board Chair: David Pearson, Nottinghamshire County Council Regional Dementia Strategy Delivery Group Board Chair: Ian Howarth, Regional Manager Alzheimer's Society Service Users, Families & Carers Local Collaborative Site Derbyshire Local Collaborative Site Leicestershire Local Collaborative Site Lincolnshire Local Collaborative Site Nottinghamshire Local Collaborative Site Northamptonshire “We are in it together” East Midlands Joint Improvement Partnership (JIP) Executive Board Chair: Mick Connell, Leicestershire County Council East Midlands JIP and Early Intervention Programme Board Board Chair: David Pearson, Nottinghamshire County Council Regional Dementia Strategy Delivery Group Board Chair: Ian Howarth, Regional Manager Alzheimer's Society Service Users, Families & Carers Local Collaborative Site Derbyshire Local Collaborative Site Leicestershire Local Collaborative Site Lincolnshire Local Collaborative Site Nottinghamshire Local Collaborative Site Northamptonshire

6 Improvement Programme for the East Midlands Regional Dementia Delivery Group: We need a new one ! = Sponsor Ian Howarth Alzheimer's Society = Chair Different stakeholders such as people living with dementia and their families and carers, commissioners from health and social care, providers from public, independent and third sector and clinicians

7 People and their carers living with dementia

8 Improvement Programme for the East Midlands Collaborative Programme Diagnostic:  Data information packs  Diagnostic Screening Tool  Semi-Structured and Discovery Interviews Regional Workshops to create:  A care pathway  A joint commissioning strategy Regional Vision event: Inspired local people to act developed a shared vision Designed what services could look like Shared stories about living well with dementia Master Classes to support:  Develop joint commissioning strategy  Develop costed plans  Develop business cases  System Dynamic Modelling

9 Draft Commissioning Strategy Business Cases Implementation of Service Improvement Priorities Agreed Commissioning Strategy Costed Plan Purchasing Plan Regional Summit Diagnostic Screening Tool Semi Structured & Discovery Interviews Data Collection Packs Master Class Master Class Master Class PHASE 2 WORKSHOPS Data, Research and Analysis Group PHASE 1PHASE 2PHASE 3PHASE 4PHASE 5 East Midlands Dementia Strategy: Programme Overview 2009 /10 Workshops 1.Diagnostic 2.Analysis 3.Develop New Pathway 4.Refine New Pathway 5.Implementation RegionalRegional Sub - Locality Level

10 National Audit Office GP Survey Results January 2010 Aim of the survey was to: Get GP’s views on the National Dementia Strategy (NDS) What extent GP’s involvement in the NDS GP’s attitudes towards dementia GP’s knowledge of dementia

11 Results 1001 GP’s responded to the survey At least 5% from each of the 10 English SHA’s Majority of the GPs that responded qualified after 1990

12 Results cont. Positive shift in attitude 80% agreeing that it is important to actively look for early signs of dementia Slight improvement in GP’s attitudes towards dementia management from

13 Results cont. 71% they were confident in diagnosing 58% confident about giving advice 73% GPs felt lack of time was why they could not do enough for people with dementia 69% GPs felt that they was a lack of social care support services to their practices GPs had most difficulty with coordinating support services for carers and people with dementia

14 Results cont. 57% GPs still unaware of local care pathways 90% have a QoF register for dementia patients 80% of those registers prompt to review the patient regularly Reviews – 54% are a general health check Only 12% are on assessment of need

15 Results cont. 38% did not know about the strategy 88% are not familiar with the strategy 1.5% were involved in National Dementia Strategy consultation 13% GPs had personally implemented change 87% had done nothing 18% of GPs reported that their discussions about the strategy had taken place with practice colleagues and staff

16 Results cont. Finally! GP’s knowledge quiz to test their knowledge on dementia and related issues was: 2004 = 49% 2009 = 49%

17 Improvement Programme for the East Midlands Desired Outcomes: Better Use of Resources Effective Leadership Improved health and well-being of individuals Improved quality of Life of services users, their families and carers Freedom from discrimination Individuals maintain their dignity and respect Individuals have increased choice and control Contact details: