1 Statewide Screening Collaborative July 30, 2013 Prevention Resource and Referral Services (PRRS) Susan Roddy, PRRS Project Director

It is about services to families….. 2

3 FRCNCA Overview

4  Established in 1993  Works on behalf of 47 ESFRCs  Implements special initiatives FRCNCA Facts at a Glance

5 The Family Resource Centers Network is recognized as the only statewide network of Family Resource Centers in California (Strategies 2006) FRCNCA Overview 5

Where did PRRS come from? 2009 Early Start eliminated “at risk” from eligibility 2009 Early Start eliminated “at risk” from eligibility 2009 Established regional center Prevention Program 2009 Established regional center Prevention Program 2011 Reduced prevention scope of services to Prevention Resource and Referral Services (PRRS) 2011 Reduced prevention scope of services to Prevention Resource and Referral Services (PRRS) 6

The FRCNCA opposed 665 Transfer Reduced Scope Prevention Program to the Family Resource Centers legislation but affirmed ability and willingness to implement the program should the legislation be enacted. 7

Prevention Resource and Referral Services

Who provides the services? DDS contracted with FRCNCA for statewide implementation of PRRS. DDS contracted with FRCNCA for statewide implementation of PRRS. FRCNCA coordinates and monitors PRRS statewide through contracts with 41 local ESFRCs. FRCNCA coordinates and monitors PRRS statewide through contracts with 41 local ESFRCs. ESFRCs provide resource, referral and outreach services. ESFRCs provide resource, referral and outreach services. 9

Partnership and Collaboration 10

11 Collaboration For more than 23 years, Early Start Family Resource Centers have collaborated with community partners to provide information, referrals, trainings, resources and services for infants and toddlers and their families.

Where are the 41 PRRS FRCs Hospitals Hospitals Universities Universities County Offices of Education County Offices of Education First 5’s First 5’s Regional Centers Regional Centers Public Health Foundations/Developmental Centers Public Health Foundations/Developmental Centers 12

FRCNCA Responsibilities for PRRS: Contract, coordinate, monitor and evaluate statewide PRRS services thru 41 local contracts. Contract, coordinate, monitor and evaluate statewide PRRS services thru 41 local contracts. 13

14 Develop materials Develop materials Provide training and technical assistance Provide training and technical assistance Design and implement policies and procedures Design and implement policies and procedures Develop and maintain a data system Develop and maintain a data system

15 What is happening to babies and their families?

Who are the babies we are talking about? Infants and toddlers “at risk” for developmental delay or Infants and toddlers “at risk” for developmental delay or disabilities under disabilities under age three with two age three with two or more risk factors. or more risk factors. 16

17 Those diagnosed by qualified clinician (pediatrician, family physician, regional center, Those diagnosed by qualified clinician (pediatrician, family physician, regional center, High Risk Infant High Risk Infant Program, Neonatal Program, Neonatal Intensive Care Unit, Intensive Care Unit, etc.). etc.).

18 Babies with a parent with a developmental disability. Babies with a parent with a developmental disability.

19 Children who may be at risk for autism. Children who may be at risk for autism.

Where are the babies coming from? Babies referred to regional centers who are found ineligible for Early Start but meet the referral criteria for PRRS will be referred to an ESFRC with parent consent. 20

How Do Referrals Happen? PRRS referrals can come directly FROM PRRS referrals can come directly FROM the regional center the regional center a community agency a community agency per a qualified clinician per a qualified clinician 21

Referral Process IF a family is referred TO PRRS through any other channel OTHER than the regional center, they are IMMEDIATELY referred to the regional center for intake, evaluation and assessment. IF a family is referred TO PRRS through any other channel OTHER than the regional center, they are IMMEDIATELY referred to the regional center for intake, evaluation and assessment. 22

23 Intake, evaluation and assessment provides a “baseline” for the child, that will help in tracking developmental changes and possible future need for services.

Regional Center responsibilities: Point of entry for all children suspected of having a developmental delay including those with established risk and those at risk. Point of entry for all children suspected of having a developmental delay including those with established risk and those at risk. 24

25 Conduct evaluation/assessment for Early Start eligibility. Conduct evaluation/assessment for Early Start eligibility.

26 Refer PRRS eligible children to ESFRC with parent consent. Refer PRRS eligible children to ESFRC with parent consent.

ESFRC Responsibilities: Serve families! Serve families! 27

28 What do families receive?

29 Prevention Resource and Referral Services are provided at no cost to families.

30 PRRS supports families through out their child’s first three years:  Contact family within two days of referral  Check in with family at 30 days and quarterly

31 PRRS provides families enhanced information and resources PRRS provides families enhanced information and resources

32 Dialogue with families regarding their concerns, priorities and resources. Dialogue with families regarding their concerns, priorities and resources.

33 Facilitate families’ access to community services Facilitate families’ access to community services

34 Whenever possible Whenever possible make face-to-face make face-to-face contact, at least contact, at least annually annually

35 Re-refer to regional center if developmental concerns are suspected. Re-refer to regional center if developmental concerns are suspected.

36 Prepare family to transition from PRRS by age three. Prepare family to transition from PRRS by age three.

37 Outreach to health community, local services, and developmental screening opportunities that Outreach to health community, local services, and developmental screening opportunities that enhance referrals enhance referrals and access to and access to community services. community services.

38 Maintain interactive and fluid listing of community services options. Maintain interactive and fluid listing of community services options.

39 Support family from referral to Support family from referral to  Early Start eligibility eligibility  Prevention Resource and Resource and Referral Referral Services Services

40 Track and collect data for submission to Track and collect data for submission to FRCNCA and FRCNCA and DDS. DDS.

4,648 Families Served

45,570 Individual Family Contacts

32,152 Types of support, information, resources and referrals

2,591 presentations, exhibits and other outreach activities

Parents and professionals received information about PRRS 69,249

INFRASTRUCTURE

PRRS Staff PRRS Director PRRS Director PRRS Fiscal Administrator PRRS Fiscal Administrator PRRS Data Administrator PRRS Data Administrator PRRS Coordinator PRRS Coordinator

41 contracts to provide PRRS statewide

PRRS Members-Only webpage

D ocuments that are available  Welcome Letter  Introduction to PRRS Services for Families and Caregivers 11/11/201550

11/11/ Orientation Script: Introducing Parents who have been referred from Regional Center to PRRS Services Orientation Script: Introducing Parents who have been referred from Regional Center to PRRS Services Introducing Others to PRRS Services: eligibility and referral information added to use when doing outreach Introducing Others to PRRS Services: eligibility and referral information added to use when doing outreach Confidentiality Statement Form Confidentiality Statement Form

52  Parent Consent for Services Form  Parent Consent for Release and Exchange of Information Among Agencies Exchange of Information Among Agencies

School District Assessment Letter School District Assessment Letter Child Development Materials List Child Development Materials List Local Community Agencies Log Local Community Agencies Log 11/11/201553

PRRS Glossaries of Terms and Acronyms  General Terminology  Data Terminology  Financial Terminology 11/11/201554

31 Customizable PRRS documents and brochures in English, Spanish and Chinese

55 Training and technical assistance webinars & conference calls for ESFRC Directors and staff.

What does this mean to you? Continue to refer high risk and medically fragile infants and toddlers to your regional center or Family Resource Center! Continue to refer high risk and medically fragile infants and toddlers to your regional center or Family Resource Center! 58

For more information please contact PRRS Director Susan Roddy

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