1 Public Health Data Standards Consortium Web-Based Resource Center Committee Vivian Auld National Library of Medicine NIH, HHS Michelle Williamson Centers for Disease Control and Prevention National Center for Health Statistics May 25, 2005

2 PHDSC Website

3 WRC Committee Members Noam Arzt, President HLN Consulting LLC Robert Davis, Consultant, National Center for Health Statistics (NCHS) Centers for Disease Control and Prevention (CDC) Tom Doremus Independent Consultant Marjorie Greenberg, Chief, Classifications and Public Health Data Standards NCHS/CDC Vicki Hohner, Senior Consultant Fox Systems, Inc. Hetty Khan, Health Informatics Specialist, NCHS/CDC Katherine Kvale, Epidemiologist, Wisconsin Department of Health and Family Services, Division of Public Health Denise Love, Executive Director, National Association of Health Data Organizations (NAHDO) Anna Orlova, PHDSC Consulting Executive Director and Associate Professor, Johns Hopkins School of Public Health Walter Suarez, President and CEO, Midwest Center for HIPAA Education Patina Zarcone, Informatics and LIM Systems Manager, Association of Public Health Laboratories

4 WRC Committee Goals Oversee the development and maintenance of the Public Health Data Standards Consortium’s website. Provide resources and guidance for local, State, and national organizations to participate in standards development activities, encourage adoption and improvement of existing standards, and to facilitate standards implementation. Develop and maintain a Web-accessible list of existing health data standards and standards development efforts, providing their context and identifying their relevance to public health. Disseminate educational materials utilizing various Web-based media to address the needs of public health practitioners and educators as related to health data standardization. Explore enhancement options for the next generation of the Web-Based Resource Center.

5 WRC Committee Activities 2004 – 2005 Launched the Second Generation WRC-May 2004 Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center (WRC) Began Implementing the WRC Short-Term Marketing Plan Identified potential areas for content development and website improvements - 3rd generation WRC

6 WRC Committee Activities 2004 – 2005 Launched the Second Generation WRC * * * * * * * * * May 2004 * * * * * * * * * * Migrated Organizational Information from NCHS and Expanded Information Migrated HCSDR Guide Information from NAHDO Updated PH Tutorials and Annotated Bibliography Added Educational Materials (papers, case studies, presentations) Health Care Services Data Reporting Guide Guidance for Local Health Departments – HIPAA Privacy Rule

7 WRC Committee Activities 2004 – 2005 Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center. General Principles for the WRC Guidelines for Posting, Revising and Updating Information Principles for Privacy and Confidentiality

8 Where is the WRC???? “The WRC is the best kept secret." Marjorie Greenberg VP Federal Affairs, PHDSC Chief, Classifications and Public Health Data Standards CDC/NCHS

9 WRC Committee Activities 2004 – 2005 Began Implementing the WRC Short-Term Marketing Plan Goal1: Increase in awareness and first time use of the WRC Goal 2: Increase in use of the WRC by new and returning users Goal 3: Solicitation of contributions and feedback from WRC users Goal 4: Expansion of PHDSC membership through the WRC

10 WRC Committee Activities 2004 – 2005 Identified potential areas for content development and website improvements - 3 rd generation WRC Redesign Home Page Add Privacy Policy Enhance Committee’s Pages and Hot Topics Educational Materials for PH and Health Informatics Academic Communities Update Membership Page Conduct Usability Study

11 Usability Study Consulted with Laura Larsson, Cedar Collaboration Usability Test Suggestions Evaluation of the WRC Feedback from Tom Doremus, past Chair, WRC

12 Expert Recommendations Home Page More Concise Intended Audience Needs to be Clear Glossary Needs to Be More Prevalent Site Needs Personalization Increase Ranking within Public Search Engines Usability Study to Guide Future Development

13 Future Activities Usability Study and Analysis Prioritize and implement additional strategies in the Short-Term Marketing Plan and evaluate effectiveness of previous marketing efforts Facilitate the Development of the 3 rd Generation WRC

14 Financial Support for WRC National Center for Health Statistics has provided financial support for the WRC for: Technical Support Content Development Temporary Webmaster

15 QUESTIONS