what’s in a name? cavernoma cavernous angioma cavernous haemangioma cerebral cavernous malformation CCM.

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Presentation transcript:

what’s in a name?

cavernoma cavernous angioma cavernous haemangioma cerebral cavernous malformation CCM

a cluster of abnormal blood vessels in the brain or spinal cord

discovery of cavernoma Magnetic Resonance Imaging Scan

frequency 1 in 600 affected asymptomatically 1 in 400,000 affected symptomatically

asymptomatic discovery as a result of MRI testing for other conditions symptomatic discovery as a result of haemorrhages, seizures, headaches, imbalance, slurred speech and double vision

Genetic Alliance UK Facilitating Networks Project and CA UK

Guidelines for the management of cerebral cavernous malformations

presented by Dr Rustam Al- Shahi Salman

The 7th Annual Pathobiology of CCM Scientific Workshop Angioma Alliance Genetic Alliance UK Cavernoma Alliance UK

Dolce Chantilly Hotel Friday November 18 th 2011

should CCM be managed that has caused only one seizure?

Should CCM be managed in mothers before, during and after birth?

this research would be impossible without the help of Genetic Alliance UK, Facilitating Networks

Krystle Kontoh

Information Booklets & Leaflet Symptomatic CavernomaIncidental Cavernoma Genetics of CavernomaInformation Leaflet

Thank You!