Member Created Profiles National database of member-created profiles Profiles include location, research topics of interest, methodologic expertise, population.

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Presentation transcript:

Member Created Profiles National database of member-created profiles Profiles include location, research topics of interest, methodologic expertise, population of interest. Searchable by key words or multiple fields Researchers, community members, patients, clinicians and other research stakeholders sharing common interests are able to connect and explore collaboration opportunities. Repository of Community Engaged Research Resources Resources searchable by key words or multiple fields Multi-format resources include journal articles, toolkits, training modules, videos, templates, slides., websites, User rating system Users can upload new resources, content monitored Resource categories include Cultural Competency, Data Usage and Sharing, Using Research to Change Policy among many others Forums and Calendar Announce grants, meetings, training events, publishing/dissemination opportunities Open discussion board Map Interactive map allows members to view in real time the location of community partners, patients, community clinicians, academic researchers. Next Steps CTSA-CCPH collaboration to maintain site Beta testing underway National dissemination planned To create a user-driven online tool to support the active engagement of community members, patients, caregivers, clinicians and other stakeholders in all facets of clinical and translational research. CommunityResearchPartners.net A User-Driven Tool to Promote Community Engaged Research Tiffany Israel 1 MSSW, Yvonne Joosten 1 MPH, Sarena D. Seifer 2 MD, Christine Shoaf¹ BA, Chad Lightner BS ¹, Hongli He 1 MS, Russell Rothman 1 MD, MPP Vanderbilt University 1, Community Campus Partnerships for Health 2 Objective Community-engaged process, with community members and academic researchers involved in every aspect of development and deployment. 1.Identified Need Meharry-Vanderbilt Community Engaged Research Core community partners identify need for tool that allows community to identify potential research partners. 2. Site Development Site features built around local community needs First iteration pilot tested and refined with feedback from local community and academic partners. 3. Site Expansion National CTSA collaboration supported by NIH supplement expands functionality and reach. Partners include Vanderbilt, Meharry, UC Davis, Mt. Sinai, Indiana, Community Campus Partnerships for Health, community partners. National community–academic survey and focus groups conducted to gather input for site expansion, develop usability guidelines. Rebuilt using open-source software. Modular design and user-driven functionality makes site easy to update. 4. Recognition PCORI Matching Challenge Award recognizes site as prototype to connect patients and researchers Methods Acknowledgements: NIH funded Vanderbilt-Meharry Clinical and Translational Science Award (CTSA), and an NIH grant supplement to this award. Sponsor Award No: 3-UL1TR from NCATS/NIH Sponsor Award No: 3 UL1 RR S1 from NCATS/NIH Survey Results-Top Requested Features for Website Design Many thanks to the CRP Steering Committee: David Marrero PhD, Sergio Aguilar-Gaxiola MD, PhD, Estella Geraghty MD, MS, Lawrence Kleinman MD, Margaret Hargreaves PhD, Ann-Gel Palermo PhD, MPH, Juan Canedo MA, Arthor Lee MD, Daniel Reyes, Eric Canales, Chandana Saha PhD, MPH, Tina Roberts Member Distribution RESULTS