The Finnish site experiences of the ITHACA project Keski-Pohjanmaan kokemustutkijat, Finland 21th May 2010 Tom Stenman

Institutional Treatment, Human Right and Care Assesment The target of this project was to create a standard monitoring tool for the evaluation of human rights medical health care and quality of living conditions. 15 European countries Financed by the European comission. Managed and cordinated from London Kings college by Prof. Graham Thornicroft. Expertice in human rights issues MDAC Hungary Rep. Layer Oliver Lewis. Expertice in medical health care. University of Verona Prof. Lorenzo Burti. Distributing of the project results Ludwig boltzmann institute Austria. Prof Heinz Katsching. Project evaluation Thl Finland. Prof Kristian Wahlbeck The field work was carried out in Finland by Ostrobothnian User Researchers, National Institute for Health and Welfare (THL) and YYA-project of Finnish Central Association for Mental Health The field work was carried out in Finland by Ostrobothnian User Researchers, National Institute for Health and Welfare (THL) and YYA-project of Finnish Central Association for Mental Health

Briefly Six units, two psychiatric wards both closed sections, one rehabilitation unit for substance abuse mainly for alcoholics, one psychiatric rehabilitation home one housing service home and one juvenile rehabilitation home. Nine user reasearcers in the group. One or two per interwiev usually supported by one academic researcher. 49 interwievs where carried out, clients, staff and managers. Part of the user researchers had personal experience from three of the units as clients

Theme interview structure Quality of general health care. Quality of psychiatric treatment and rehabilitation. Standard of living The use of power, force and inappropriate treatment in institutions Supporting of independent living in institutional conditions 18 question Finnish super tool

Experiences of monitoring visits The residents are not treated as adults. The residents are not treated as adults. no soul no identity no recovery no soul no identity no recovery Absurd restrictions for movement, posessions,smoking,food,coffee,sexualiy..Absurd restrictions for movement, posessions,smoking,food,coffee,sexualiy.. Seclution vs bedside nursing. Seclution vs bedside nursing. Degrading way of talking of residents.Degrading way of talking of residents. ”those no goods”. ”our patient material”.. ”those no goods”. ”our patient material”.. Units are far from services.Units are far from services. No activities. No support groups. No activities. No support groups. Two of the residents had no home community. Two of the residents had no home community.

WHATS NEXT! WHATS NEXT! Best practices.Best practices. Quality sertification.Quality sertification. User reasearchers as decission makers.User reasearchers as decission makers. Creating a peer support network.Creating a peer support network. Training professionals.Training professionals. Spreading the word.Spreading the word. Fighting for moneyFighting for money

Staring in your own life Setting goals making strong commitment Taking life in your own hands ” Im not responsible of my illness, but im responsible of my recovery” ” Im not responsible of my illness, but im responsible of my recovery” Paying back the gratitude The way of the Boddhisatva