Randy Jackson McMaster University 20 th International AIDS Conference Melbourne, Australia July 24. 2014.

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Presentation transcript:

Randy Jackson McMaster University 20 th International AIDS Conference Melbourne, Australia July

Presentation Outline What is Community-Based Research (CBR)? Why CBR and Why Now? CBR Principles Why Academic Community Partnerships

Community-Based Research A form of collaborative inquiry where diverse partners join efforts and commit to identifying, researching, and providing solutions to complex health inequities Intended make room for meaningful community participation Partners can include academics, community people, and policy-makers

Community-Based Research: Guiding Principles Community Driven Community Relevance Equitable Partnership & Collaboration Capacity-Building Anti-Oppression Framework Action Outcomes

Why CBR and Why Now Traditional research is limited Community members are asking that research focus on locally identified needs (i.e., nothing about us, without us) Funding, ethics and community requirements

Why Academic/Community Partnerships? Is research a dirty word? Researched to Death Academic Driven vs. Community Relevance Convenient Data Sources “Drive-by”, “Helicopter” or “Parachute” Research Lack of resources to support community participation

Why Academic/Community Partnerships Enhances community relevance Diversity (e.g., experience) at the research table Quality/validity Meaningfully involves communities Improves KTE strategies

OCAP: Research in Indigenous Communities Decolonizing and Indigenous methodologies Ownership, Control, Access and Possession™ Ownership is the collective right to how cultural knowledge, data and information is used/handled Control is self-determination applied in the research context Access refers to proprietary right to retrieve, re-analyze, and/or interpret research data at any point Possession refers to resulting data, findings, and publication