Joanna Kossewska Pedagogical University of Krakow Department of Psychology Vocational needs of disabled persons in the context of quality of life

The Medical Model of disability and its associations (adapted from Harris and Enfield, 2003, p. 172)

The Social Model of disability and its associations (adapted from Harris and Enfield, 2003, p. 172)

The Rights-based Model and its associations

1. social well-being enjoyed by people, communities and their society. (Bach & Rioux) 2. objective and subjective, involving material well-being, health, productivity, intimacy, safety, community and emotional well- being.(Cummins). 3. The discrepancy between a person’s unmet needs and desires. (Brown,Bayer & Macfarlane) 3. experienced when a person’s basic needs are met and when he or she has the opportunity to pursue and achieve goals in major life settings.(Goode) QOL Definitions

Individual Person Fig. 1. Bioecological Model of Human Development (Santrock 2007)

All the above concepts can be applied to the family with a member with disability Quality of Life and the Family

International Family Quality of Life Survey (FQoL) 1.The aim – to assess the quality of life of families who have one or more members with an intellectual or developmental disability. 2. The project was initiated in 1997 by researchers from Australia, Canada, and Israel and other 20 countries are now involved (Australia Austria Bosnia Belgium Canada India, Iran, Ireland, Israel, Italy, Japan, Malaysia, Mexico, Netherlands, Poland, Slovenia, Taiwan, USA). 3. The organization of the project is led by researchers in Canada at Surrey Place Centre, MukiBaum Treatment Centres, and faculty from the University of Toronto and the University of Victoria.

 Health of the family  Financial well-being  Family relationships  Support from other people  Support from disability related services  Influence of values  Careers and preparing for careers  Leisure and recreation  Community interaction

Australia (n=55) Respondent: Mean Age = 49yrs Age Range = // Child: Mean Age = 15yrs Age Range = 2-41 Canada (n=51) Respondent: Mean Age = 40yrs Age Range = // Child: Mean Age =7.6yrs Age Range =2-13 DOMAINS 1.Health 2.Financial Well-Being 3.Family Relations 4.Support From Other People 5.Support From Disability Related Services 6.Spiritual and Cultural Beliefs 7.Career and Preparation for Career 8.Leisure and Enjoyment of Life 9.Community and Civil Involvement

Autism (n=18) Mean Age: 7.78 yrs Age Range: 6-13 Down (n=33) Mean Age: 7.55 yrs Age Range: 2-12 DOMAINS 1.Health 2.Financial Well-Being 3.Family Relations 4.Support From Other People 5.Support From Disability Related Services 6.Spiritual and Cultural Beliefs 7.Career and Preparation for Career 8.Leisure and Enjoyment of Life 9.Community and Civil Involvement

Taiwan (n=83) Parent: Mean age =37.9 Age range =26-58 // Child: Mean age = 5.4 Age Range = Child 1-14 Korea (n=81) Parent: Mean age =37.7 Age Range =21-51 // Child Mean age =8.4 Age Range = 4-18 DOMAINS 1.Health 2.Financial Well-Being 3.Family Relations 4.Support From Other People 5.Support From Disability Related Services 6.Spiritual and Cultural Beliefs 7.Career and Preparation for Career 8.Leisure and Enjoyment of Life 9.Community and Civil Involvement

A. Inhabitants from Eastern Countries have lower QOL then from Western B. General pattern is reserved. C. Families of autistic children - the lowest results in: Support from others, career, community and civil involvement. D. family relations -support and successful copying E. the lowest QOL results were found in the F. Career and career preparation dimension – vocational needs are unsatisfied in families with a member with disability, especially those with autism, as well as in Eastern Countries.

Thank you very much for your attention Joanna Kossewska