Personalisation – what’s it all about? Kate Fearnley Director of Personalisation

Summary About personalisation The vision and the reality What Alzheimer Scotland is doing What it means on the Helpline in practice

From 2008, dementia will be regarded as a national priority supporting people to self manage their conditions in the community ” ” Care should be co-ordinated by means of ICPs Personalisation is driving the shape of all public services assessment of need is no longer about which service a person should be referred to, but about individualising the support “ “ “ “ ” ” ” “

Choice and control: where to live who to live with (if anyone) what to do through the day what support is required and who/how it should provided What do people want?

A story…

What’s the problem? Lots of detailed and highly professional assessment …. Leads to being allocated existing services Poor fit with people’s lives Lack of creativity and flexibility No thought given to natural supports

Growing older population Growing number of people living with a long term condition Reducing group of unpaid carers Finite resources Over focus on hours of support Reluctance to take risks There are challenges ahead

About personalisation Puts full choice and control with the person May or may not mean managing money May or may not mean being an employer Attorney or guardian with financial & welfare powers can do on person’s behalf About getting a life, not a service

Personalisation is a spectrum Direct payment, employ personal assistant Direct payment, buy services Individual budget, choose services but no need to manage money

Vision and reality Vision: A right Individualised budget available to anyone, option to hold the money or not Full flexibility in how it is spent to meet outcomes for person ‘A life not a service’

Reality: Direct payments/Self-directed support Limited access Misunderstandings Barriers in social work depts Size of support packages, eligibility criteria Limited uptake

Alzheimer Scotland and personalisation Specialist dementia services important Our home support (individual support) services offer flexible support Can use direct payments to buy our specialist services Can top up direct payments if council’s rate too low Can purchase privately

Alzheimer Scotland personalisation pilots East Renfrewshire & Renfrewshire post-diagnostic pilot Supporting people after diagnosis Future care planning Ayrshire Self-Directed Support pilot SDS for people facing care home

Personalisation and dementia research project Evaluate the potential of personalisation for people with dementia Identify enablers and barriers Learn from England Find out the experience of people using SDS Case studies Report in Autumn

The Helpline and personalisation Encourage thinking outside the box – but without raising expectations too far Suggest self-directed support/direct payments Be able to explain them Support people to request them

What would you do for Jim?

Alzheimer Scotland Making sure no-one goes through dementia alone