Overcoming Legal Challenges to eHealth Clinical Data Access Confronting the Swedish Data Protection Board and the road to new national legislation

Internet banking and Health Care in the same way

A system that can be considered as analogous to Internet banking, but for health care

Why haven’t such services been rolled out in large scale in the health care? 1.The average age of patients are significant higher for patients compared with the most active bank customers. 2.Information about a bank customer’s bank account is much more structured compared to a medical record. 3.It has not earlier been available secure and cost effective solutions. 4.Banks are in a better position to charge their customers for those services

Med. Record, Hosp Medical Record, GP Drugs Fees Future Visits Safe “ ” to GP Change of GP Transportation Booking transp. Encyclopedia, Drugs Encyclopedia, Med. Patients requests of future functions

Trying to answer questions like Which groups of patients benefits most? Which kind of services has the strongest demand? What kind of technical solutions are most suitable? What is the best layout and logic is best for the user?

Patient view on Health Care? The medical professional must be a partner instead of someone who make all the decisions

Can patients understand?

Elderly can’t use Internet

Distribution of Age

§ The Swedish Data Inspection Board

New legislation in Sweden 1:st July 2008 Possible to interconnect different EHR:s Patients has the right to refuse Patients may block certain parts of the EHR Patient may directly access EHS via Internet

How many doctors can access your Medical Record? 1999: 2-4 Doctors

How many doctors can access your Medical Record? 2006: 1000 Doctors

How many doctors can access your Medical Record? 2011: Doctors

Patient controlled access A coming future!

Four possible statements: Most possible access! Keep it as it is! I’m opening at the GP:s surgery! I open up myself from home!

Why those efforts? Sooner or later there will be a demand

“ People often overestimate what will happen in the next two years and underestimate what will happen in ten. ” Bill Gates

Balance Medical Safety vs Privacy

Possible set of services: Book or rebook a visit Pay a visiting fee Examine the medical record Put a question to their GP Fill out a Health Declaration Form Print out drug and lab list before an travel abroad Change GP (when moving or similar) Update phone number and name of close relative Mask or block sensitive data Track the referral