UKRR – HES linkage James Fotheringham Sheffield Kidney Institute.

Slides:



Advertisements
Similar presentations
UK Renal Registry 17th Annual Report Figure 5.1. Trend in one year after 90 day incident patient survival by first modality, 2003–2012 cohorts (adjusted.
Advertisements

UK Renal Registry 16th Annual Report Figure Data completeness for key variables, stratified by first modality HD = haemodialysis; PD = peritoneal.
This Power Point presentation belongs to the Danish Renal Registry, which owns the copyright. It can be freely used for non-commercial study and educational.
UK Renal Registry 17th Annual Report Figure Data completeness for key variables, stratified by first modality DOB = date of birth; PRD = primary.
UK Renal Registry 15th Annual Report Figure One year death rate per 1,000 patient years by UK country and age group for prevalent dialysis.
Connie N. Hess, MD, Bimal R. Shah, MD, MBA, S. Andrew Peng, MS, Laine Thomas, PhD, Matthew T. Roe, MD, MHS, Eric D. Peterson, MD, MPH Relationship of Early.
Chapter 4: Hospitalization 2014 A NNUAL D ATA R EPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE.
UK Renal Registry 15th Annual Report Figure 8.1. Age and gender of PD patients submitted to audit.
An update from The UK Renal Registry Dr Fergus Caskey Medical Director, UK Renal Registry Annual Informatics Meeting, September 2014.
RACIAL DISPARITIES IN PRESCRIPTION DRUG UTILIZATION AN ANALYSIS OF BETA-BLOCKER AND STATIN USE FOLLOWING HOSPITALIZATION FOR ACUTE MYOCARDIAL INFARCTION.
Chapter 2: Identification and Care of Patients With CKD 2014 ANNUAL DATA REPORT VOLUME 1: CHRONIC KIDNEY DISEASE.
Stages of CKD – KDOQI 2002 Definitions
UK Renal Registry 16th Annual Report Figure 8.1. Trend in 1 year after 90 day incident patient survival by first modality, 2005–2011 cohort (adjusted to.
Chapter 5: Mortality 2014 A NNUAL D ATA R EPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE.
Summary of the 2012 ERA-EDTA Registry Annual Report Amsterdam, the Netherlands, 2014.
UK Renal Registry 16th Annual Report Figure Median haemoglobin for incident dialysis patients at start of dialysis treatment in 2012.
UK Renal Registry 14th Annual Report Figure 8.1. Median haemoglobin for incident dialysis patients at start of dialysis treatment in 2010.
Infections in the dialysis population: A major communicable disease issue! Allan J. Collins, MD, FACP Professor of Medicine University of Minnesota Director,
UKRR Annual Informatics Meeting, September 2013 Highlights from the 15 th Annual Report Rishi Pruthi Research Fellow UK Renal Registry.
Vascular access The KidneyCare Audit. The challenge of vascular access – Renal National Service Framework Standard 3 “All children, young people and adults.
What comorbidity should we adjust for in RRT patients? James Fotheringham School of Health and Related Research.
Advanced CKD Study Daniel Ford UKRR Annual Audit Meeting June 2009.
Improving the utility of comorbidity records Retha Steenkamp UK Renal Registry.
CPORT- E Trial Randomized trial comparing outcomes of non-primary PCI at hospitals with and without on-site cardiac surgery.
The National Renal Dataset Charlie Tomson UKRR Annual Meeting 24 th June 2009.
Why your data matters? How it helps patients, the NHS and research? How do I get UKRR data for research? Dr Retha Steenkamp Senior Statistician, UKRR.
Data completeness reporting Alex Hodsman, David Bull, Paul Dawson UK Renal Registry.
UK Renal Registry 17th Annual Report Figure 1.1. RRT incidence rates in the countries of the UK 1990–2013.
A Comparison of Sevelamer and Calcium-Based Phosphate Binders on Mortality, Hospitalization, and Morbidity in Hemodialysis: A Secondary Analysis of the.
Chapter 10 Cancer 2014 ANZDATA Registry 37th Annual Report Data to 31-Dec-2013 ANZDATA gratefully acknowledges the contributions of the Cancer Working.
Highlights from the Annual Report UK Renal Registry 2013 Annual Audit Meeting Dr Catriona Shaw Registrar, UK Renal Registry.
Survival after graft failure Dr Lynsey Webb Registrar UK Renal Registry UK Renal Registry 2011 Annual Audit Meeting.
UK Renal Registry 15th Annual Report Figure 6.1. Median haemoglobin for incident dialysis patients at start of dialysis treatment in 2011.
2015 ANNUAL DATA REPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE Chapter 8: Pediatric ESRD.
2015 ANNUAL DATA REPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE Chapter 6: Mortality.
Chapter 2: Identification and Care of Patients With CKD 2015 A NNUAL D ATA R EPORT V OLUME 1: C HRONIC K IDNEY D ISEASE.
2015 ANNUAL DATA REPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE Chapter 9: Cardiovascular Disease in Patients With ESRD.
2015 ANNUAL DATA REPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE Chapter 14: End-of-life Care for Patients with End-Stage Renal Disease:
2015 ANNUAL DATA REPORT V OLUME 2: E ND -S TAGE R ENAL D ISEASE Chapter 5: Hospitalization.
Summary of the 2013 ERA-EDTA Registry Annual Report Amsterdam, the Netherlands, 2015.
UK Renal Registry 14th Annual Report Figure Consort diagram detailing incident RRT patients 2002–2006, HES admissions and ONS records included in.
Highlights from the Registry year and Annual Report Professor Terry Feest Assistant Director UK Renal Registry UK Renal Registry 2011 Annual Audit Meeting.
UK Renal Registry 17th Annual Report Figure 4.1. RRT treatment used by prevalent paediatric patients
What happens to patients returning to dialysis after transplant failure? Data from the UK Renal Registry Dr Lynsey Webb 1, Dr Anna Casula 1, Dr Charlie.
Date of download: 7/1/2016 Copyright © The American College of Cardiology. All rights reserved. From: The Scope of Coronary Heart Disease in Patients With.
USRDS USRDS 2002 adr Period prevalent ESRD patient, deaths, & ESRD expenditures figure 12.1.
USRDS USRDS 2002 adr Incident counts by initial modality figure 7.1 patients age 19 years & younger.
2016 Annual Data Report, Vol 2, ESRD, Ch 5
Figure 9.1 Causes of death in ESRD patients,
2016 Annual Data Report, Vol 2, ESRD, Ch 6
First-year death rates by modality figure 8
UK Renal Registry 10th Annual Report 2007
Patient populations by study group figure 10
Volume 2: End-Stage Renal Disease
Summary of the 2013 ERA-EDTA Registry Annual Report
Volume 2: End-Stage Renal Disease Chapter 4: Hospitalization
December 31st point prevalent counts by modality figure 3.1
UK Renal Registry 18th Annual Report
Figure 2.1 First-year hospital admission rates among incident dialysis patients, by annual & monthly cohorts Patients aged 18 years or older. Peer Report Dialysis.
Hospital admissions per patient, by modality figure 5
UK Renal Registry 9th Annual Report 2006
UK Renal Registry 10th Annual Report 2007
Volume 2: End-Stage Renal Disease Chapter 4: Hospitalization
North west Regional Day
Volume 2: End-Stage Renal Disease
CHAPTER 3 DEATHS Stephen McDonald 2012 Annual Report—35th Edition
Fig 6.1 Frequency of ischaemic heart disease in incident patients
Areef Ishani, Allan J. Collins, Charles A. Herzog, Robert N. Foley 
Figure 9.1.a Causes of death in ESRD patients,
Stock and Flow of Haemodialysis Patients Australia
Presentation transcript:

UKRR – HES linkage James Fotheringham Sheffield Kidney Institute

Why do this at all? Year of data collection Percentage Data Completeness for Comorbidity

USRDS Period prevalent dialysis patients age 20 & older. At the end of 1998 a new ICD-9-CM code was added for infections due to internal devices in peritoneal dialysis patients; data prior to this date are omitted. Infections in this category include those related to vascular access devices or peritoneal dialysis catheters. Dialysis patients, 2005, used as reference cohort. Rates adjusted for gender, race, & primary diagnosis.

Potential avenues it opens up Hospitalisation Procedures Location Diagnosis Superior position to USRDS in that we can describe events preRRT in < 65 year olds – Centre attributable outcomes

Linkage & Dataset & Fields 21,268 Incident RRT Patients Hospitalisations, Procedures & Outpatient Episodes 1998 to Date Cause of Death & Location HES ANONYMISED

Comprehensive timeline DEATH FRACTURE PARATHYROIDECTOMY START OF RRT AVF FORMATION MI DIABETES HES Hospital Episode Statistics Ca Phos PTH Hb CHANGE IN MODALITY TENCKHOFF INSERTION L741 X411 M809 B142 E119 I CABG X3 K YEARS

DHSMR / SHMI-D 95% 99.8% Transplant Centre On Site Renal Services Visiting Renal Cover > 95% CI > 99.8% CI

Length of Stay & Frequency of Admission

Location of Admission

Better adjusted incident survival & practice characteristics influence it HES I21 - Myocardial Infarction HES E10 - Diabetes HES I71 - Peripheral Vasc. Dis. HES I50 – Cong. Cardiac Failure None COPD MI PVD DM CCF None COPD MI PVD DM CCF

Underpinning all this Comorbidity adjustment Insights into individual units own practice with relation to hospitalisation and how this differs from national practice Begin understanding if HES offers the answers to missing data Intuitive way of displaying centre specific data Demonstrating the utility of HES-linkage

Recognised pitfalls Undercoding and inaccuracies – Early focus will be describing robust endpoints Hospitalisation Location 30 Day Mortality Length of stay – Learn what the data can allow us to do

Progress to date Funding and authorisations are in place HRSS has the HES data UKRR will shortly be sending their data Combined dataset should arrive early August

Thank you

Feedback: Privacy Policy Feedback
Do Not Sell My Personal Information
About project: SlidePlayer Terms of Service

© 2025 SlidePlayer.com. Inc. All rights reserved.