Putting children and young people back into the reform of health and social care Dr Marc Bush Director of Policy & Intelligence, Healthwatch

Where we came from…  All parties are committed to learning from the failings at Mid Staffordshire, Morecombe Bay and Winterbourne View.  Health and social care systems, structures and services are going through a period of significant change (i.e. through integrations and reconfigurations).  There are many new bodies and forums asking the same questions about change and the ways of engaging us feel out of date and overly- complicated.  Despite all these changes, many of us still feel that professionals rarely involve us in decisions about our treatment and care.  We know that both services and the relationships between people and professionals are changing radically, but neither we, nor professionals, this should look like in the future.

What is the scale of change? Legislative, policy and structural change Children & Families Act Care Act Health & Social Care Act Consumer Rights Bill

What is the target of reform? Reconfiguration Integration Transformation of care?

Why people get no satisfaction… The human value structure across 68 countries in the majority and developed world and based on a weighted sample of 64,271 people.

The role of Healthwatch Healthwatch England and local Healthwatch were established as the consumer champions in health and social care to ensure people’s experiences and ideas influence local and national decisions. We cover all ages, and all areas of health and social care. Our remit covers the breadth of health and social care services children and young people might interact with, including…  Specialist children’s hospitals or units  Community equipment and wheelchair services  Early years provision  Children’s care, short break provisions  Residential special school provision  Provision for children and young people ion the secure estate  Child and Adolescent Mental Health Services (CAMHS)  Public health interventions for sexual health, child obesity, addition and alcohol abuse.

What statutory tools are in Healthwatch England’s toolbox to help us take action? Informational and advisory powers to local authorities, statutory bodies and the Secretary of State Power to undertake special reports and inquiries into health and social care Devolved powers to improve standards in health and social care Healthwatch England Annual Reports

What statutory tools are in the Local Healthwatch toolbox? Power to conduct and report on Enter & View activity Statutory seats on Health & Wellbeing Boards Power to make reports and recommendations to commissioners and providers about experience and improvement Referring concerns about social care to local authority oversight and scrutiny committees Escalating concerns to Healthwatch England and the Care Quality Commission Making recommendations to Healthwatch England and the Care Quality Commission to inform special reviews or investigations Statutory consultee for Trust Special Administrators (TSAs) Local Healthwatch annual reports

Examples from the network…  Healthwatch Norfolk – tier 4 Child and Adolescent Mental Health Services  Healthwatch Leeds – children’s use of, and the environment in, A&E services  Healthwatch Central West London – young people’s experiences of sexual health services 9

How do we work with inspectors? We are currently testing a new model between local Healthwatch and the Care Quality Commission, which include these phases of activity: Phase 1: Insight from consumers We will share insight, data and intelligence across both organisations to ensure that risk in the system is identified and acted upon Phase 2: (Pre-) Inspection Healthwatch provides CQC inspectors with a community narrative and context ahead of inspections and independently updates the community during inspections Phase 3: Post-inspection Healthwatch are part of the improvement journey, contributing to ensuring action is taken once the inspectors leave town and being part of the improvement journey We are starting similar conversations with Ofsted and the Children's Commissioner to look at how we can collaborate to strengthen their the voice of children and young people in both inspection and improvement activity.

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