Progress Report Endocrinology WG September 2015 Edward Gregg

WG members RoleNameAffiliation Co-chairAkira ShimatsuNational Hospital Organization, Kyoto Medical Center Co-chairEdward GreggDivision of Diabetes Translation, Centers for Disease Control and Prevention Managing editor(s)Kayo WakiThe University of Tokyo Reviewer

Progress report (1a) ・ We have been working with the Nephrology WG, GURM and the Pediatric TAGs on overlapping areas: – DM with kidney complications – Adrenogenital and Disorders of Sex Development Has your WG confirmed the hierarchy of the ICD-11 Foundation and Linearization? Have you found any problem with the hierarchy of the Foundation and/or the Joint Linearization for Mortality and Morbidity Statistics in ICD-11 Beta Version?

Progress report (1b) ・ Since the 2014 FtF meeting the shoreline of the JLMMS has been modified by WHO to ensure consistency with ICD-10 concepts ・ Modifications have been made through the JLMMS Taskforce to appropriately capture ‘conditions associated with DM’ – ongoing issues Has your WG confirmed the hierarchy of the ICD-11 Foundation and Linearization? Have you found any problem with the hierarchy of the Foundation and/or the Joint Linearization for Mortality and Morbidity Statistics in ICD-11 Beta Version?

Progress report (2) ・ Many definitions in the areas of our responsibility for the JLMMS have been entered ・ Ongoing review/feedback needed to ensure these definitions meet the required standards provided by WHO – 2014 FTF meeting issues raised regarding definitions being changed by WHO, no further feedback on outcome from these discussions – Definitions cannot be finalised until code hierarchy stabilised following JLMMs taskforce review Has your WG completed the input of all definitions in the areas that fall under your WG's responsibility? Do the completed definitions meet the required standards?

Progress report (3) ・ All entities in ICD-10 were originally mapped to ICD-11 in the Foundation ・ Structural changes/shoreline for JLMMS has resulted in entities being post coordinated ・ Pre-coordination of aetiology/manifestation combinations were included – JLMMS needs further review regarding this current structure In the areas under your WG's responsibility, are all ICD-10 entities able to be mapped to ICD-11?

Progress report (4) ・ Many complications of diabetes mellitus overlap with other TAGs and WGs, how these will ultimately be classified in the JLMMS is still under discussion ・ We are waiting for feedback from other TAGs, WGs and JLMMS Taskforce If there are overlapping entities that have moved to another TAG or WG, has your WG confirmed the move with the other TAG or WG? Or is there a plan to confirm it sometime in the future?

Next steps (1) Remaining issuesExpected outcome Check whether the completed definitions meet the required standards Need to modify/correct some definitions Confirm the changes in the JLMMS made by WHO and obtain approval from the members in the WG Our WG will discuss this issue at a teleconference that will be held in the near future Review inclusion and exclusion terms Ongoing review once code hierarchy stable especially with regards to the classification of DM Field trial of code hierarchyTesting the code structure to ensure it meets classification needs

Next steps (2) Plans in – Review code hierarchy following Taskforce review to ensure complications with diabetes captured across body system chapters – Finalise outstanding definitions – Review/respond to any field trial issues