Defining disability in MAP2030. Rationale Disability is used as an input to or output from every WP A variety of data sources (surveys) are used by each.

Slides:

Advertisements

Similar presentations

An introduction to ELSA Paola Zaninotto Department of Epidemiology and Public Health

Advertisements

ELSA English Longitudinal Study of Ageing Research team International Centre for Health and Society, UCL Institute for Fiscal Studies and UCL National.

The English Longitudinal Study of Ageing: The past, present and future research agenda Professor James Nazroo University College London.

Health and Functional Status of Working Age People with Disabilities in the United States Gerry E. Hendershot Consultant on Disability and Health Statistics.

UNESCAP Project on Disability Statistics Field testing protocol.

Informal care in the PSSRU model n Terminology: ‘informal’ or ‘unpaid’ care n Inputs n age, gender, disability, marital status, household type, housing.

Informal care in PSSRU model n Inputs n age, gender, disability, marital status, household type, housing tenure n Outputs n numbers of older people with.

Caregiving in the U.S National Caregiver Survey Gail Gibson Hunt National Alliance for Caregiving March 15, th Annual Conference for Caregiving.

NATIONAL SYMPOSIUM ON AGEING RESEARCH Canberra 24 September, 2003 “Linking research, policy and practice” Michael Marmot International Centre for Health.

The English Longitudinal Study of Ageing (ELSA) Sample design & response Shaun Scholes NatCen.

Disability Statistics at NCHS: An Update

Understanding children’s well-being: A national survey of young people’s well-being 27 January 2010.

Irish Census of Population & National Disability Survey, th Meeting of the Washington Group on Disability Statistics September 19-21, 2007 Dublin,

The Equality Act 2010 and Accessibility of lifts for disabled users.

Measuring Frailty A comparison of the frailty phenotype and frailty index for the prediction of all-cause mortality James Nazroo Alan Marshall, Kris Mekli.

Siobhán Carey Assistant Director General, Social and Demographic Statistics Central Statistics Office 23 rd October 2008.

Cornell University Institute for Policy Research A Review of Disability Data for the Institutional Population of Working Age Peiyun.

The Effort to Develop Disability Questions for the Current Population Survey Terence M. McMenamin U.S. Bureau of Labor Statistics October 5, 2006.

Quantitative methods for researching lives through time Heather Laurie Institute for Social and Economic Research University of Essex

Measuring Disability in a Survey or Census Context: Parallel Work Advancing the Field Barbara M. Altman, Ph.D. Disability Statistics Consultant.

1. 2 Andrew J. Houtenville, Ph.D. Employment and Disability Institute School of Industrial and Labor Relations Cornell University Ithaca, New York The.

1. 2 Andrew J. Houtenville, Ph.D. Employment and Disability Institute School of Industrial and Labor Relations Cornell University Ithaca, New York 2006.

A Realist Methodology Incorporating Large Quantitative Data Sets Andrew Brown, Andy Charlwood, Christopher Forde and David Spencer Presentation prepared.

Exploring the Washington Group Data from the 2011 U.S. National Health Interview Survey Julie D. Weeks, Ph.D. National Center for Health Statistics, USA.

Disability free Life Expectancy Carol Jagger University of Leicester EHEMU Team European Population Day: Ageing IUSSP Tours 2005.

National Population Projections and the challenges of an ageing population Helen Bray and Shayla Goldring ONS.

Jennifer Madans Associate Director for Science

Measuring Disability in Canadian Questionnaires: A First Look Sally Kader Health Statistics Division Statistics Canada.

Chapter 5: Descriptive Research Describe patterns of behavior, thoughts, and emotions among a group of individuals. Provide information about characteristics.

Family, Gender and the Welfare State, Oxford Institute of Social Policy, 26 January 2012 The Provision of Family Care for Older People in Europe The Role.

Successful Ageing of the Oldest Old in China Du Peng Gerontology Institute, Renmin University of China.

Understanding Assisted Living Key Facts & Tips On Choosing A Community National Center for Assisted Living

Gerry O’Hanlon, Director General CSO Keynote Speech NDA Strategic Plan Launch March 11, 2010 National Disability Survey 1.

Gerry Brady and Gillian Roche CSO Ireland Washington Group, Manila, October National Disability Survey Ireland 1.

Health inequalities in later life: material or psychosocial pathways Anne McMunn & James Nazroo UCL

THE CRIME AND JUSTICE SURVEY Research, Development and Statistics BUILDING A SAFE, JUST AND TOLERANT SOCIETY Tracey Budd.

DataBrief: Did you know… DataBrief Series ● September 2010 ● No. 5 Seniors with Activities of Daily Living Needs Approximately 1 in 4 seniors who live.

Chronic disease and its impact on disability and the need for LTC Carol Jagger Experts' Seminar on Ageing and Long-Term Care Needs 20 May 2011.

MEASURING INCOME AND POVERTY AT A NATIONAL LEVEL Sian Rasdale Social Justice Analysis, Scottish Government.

Not a benefit … a necessity: What Paid Family Leave means for NYC’s low-income families Nancy Rankin, Vice President for Policy Research and Advocacy Apurva.

September 151 Screening for Disability Washington Group on Disability Statistics.

Using the BHPS to examine the experiences of people living with neurological disability in Britain Kimberly Fisher Institute for Social and Economic Research.

PROJECTIONS OF INCOMES, PENSIONS AND LONG-TERM CARE WORKPACKAGE 5.

Additional analysis of poverty in Scotland 2013/14 Communities Analytical Services July 2015.

Disability Levels and Correlates among Older Mobile Home Dwellers, an NHATS analysis Tala M. Al-Rousan, Linda M. Rubenstein, Robert B. Wallace College.

SENIOR FOCUS GROUP MEETING July Welcome and Introduction CN Goals Metrics Resident Survey Findings Mapping Discussion on Data Collected Discussion.

Essex Dependent Interviewing Workshop 17/09/2004 British Household Panel Survey.

Trends in Functional Status and Disability among the Elderly Ellen Kramarow Jennifer Akerblom NCHS Data Users Conference July 2004 U.S. DEPARTMENT OF HEALTH.

The experience of Denmark with global disability questions in surveys Ola Ekholm & Henrik Brønnum-Hansen, National Institute of Public Health, University.

WP 2:Future disease patterns and their implications for disability in later life C. Jagger, R. Matthews, J. Lindesay Leicester Nuffield Research Unit.

1 Task Force on Health Expectancies National Disability Survey and Sport and Physical Exercise Module Gerry Brady Central Statistics Office, Ireland Luxembourg.

ADDRESSES BASIC NEEDS Affordable housing is available to community residents Figs Percentage of people age 60+ who want to remain in their current.

Measuring Disability: Results from the 2001 Census and the 2001 Post-Censal Disability Survey Statistics Canada January 10, 2003.

1 Public Library Use in Oregon Results from the 2006 Oregon Population Survey Oregon State Library March 2007.

REPORT ON UGANDA PILOT STUDY by Ms. Pamela Kakande Senior Statistician Uganda Bureau of Statistics (UBOS)

ADDRESSES BASIC NEEDS Affordable housing is available to community residents Figs Percentage of people age 60+ who want to remain in their current.

Task Force meeting November, UNECE,Geneva National Bureau of Statistics, Moldova.

ADDRESSES BASIC NEEDS Affordable housing is available to community residents Figs Percentage of people age 60+ who want to remain in their current.

SENIORDATA Nov RESIDENT SURVEY RESULTS 5. Is the head of household 62 years of age or older? Yes 14%; No 86% 84. What is the age of the seniors.

Transition Probabilities by Sight Issues Transition Probabilities to and from Different States Results – By Age Results – All Respondents How does social.

WP 2:Future disease patterns and their implications for disability in later life C. Jagger, R. Matthews, J. Lindesay Leicester Nuffield Research Unit.

1. 2 Research methodology Methodology Monthly surveys conducted online among a nationally representative sample of circa n=2000 UK adults aged 18+

The Demography of Ageing Professor Jane Falkingham ESRC Centre for Population Change & Centre for Research on Ageing

Health Survey for England: social care data Margaret Blake and Rachel Craig, NatCen.

Unmet need for social care Tania Burchardt, Polina Obolenskaya and Polly Vizard London School of Economics Social Policy Association annual conference,

Exhibit 1 Poverty and Social Isolation Are More Prevalent Among High-Need Patients Percent reporting experiencing Notes: Social isolation = Reported.

Has someone to help with these activities

Hannu Pääkkönen – Group coordinator

A Summary by Justin McCullick

Unit 2, Lesson 6 Overview of Disability and Long-Term Care Insurance

Presentation transcript:

Defining disability in MAP2030

Rationale Disability is used as an input to or output from every WP A variety of data sources (surveys) are used by each WP Not complete overlap between disability items in each of the surveys Aim: to agree definition of disability that is comparable between surveys and therefore WPs

Disease>Impairment>Functional limitation>Disability (Nagi, 1965,1976, 1991) Disease>Impairment>Functional >Activity Restriction>Handicap limitation (Wood, 1975) Disease>Impairment>Disability>Handicap (ICIDH, 1980) Models of the disablement process What is disability?

Components Functional limitations Reaching, stretching, lifting, dexterity Household Activities (IADL) Shopping, cooking, housework, managing affairs Personal Care Activities (ADL) Bathing, dressing, feeding, getting in and out of bed, using toilet Mobility Getting up and down stairs/steps, walking across a room, walking half a mile, getting around outside

Surveys General Household Survey (GHS) A multi-purpose continuous survey of people living in private households (approx 13,000 household sampled) in Great Britain. Started in 1971 and has been carried out continuously since then, except for breaks in 1997/98 and 1999/2000. All adults aged 16 and over are interviewed in each responding household. Demographic and health information is also collected about children in the household. English Longitudinal Study of Ageing (ELSA) A panel study of 11,500 people aged 50 and older, drawn from the Health Survey for England and interviewed every two years (since 2002) with a nurse visit every four years. British Household Panel Study (BHPS) Annual survey consisting of nationally representative sample of about 5,500 households recruited in Individuals re-interviewed each year, still followed if they split off from original households, new members to household included as are all adult members of the household so the sample remains representative. Additional samples recruited later mean the study now covers the whole UK. Now contains total of approximately 10,000 interviewed individuals. MRC Cognitive Function and Ageing Study (CFAS) Longitudinal study of 13,004 aged 65+ in 5 centres includes institutionalised

Comparison of items in surveys

Standardised prevalence of disability (difficulty) age 65+

Standardised prevalence of disability (difficulty) age 75+

Standardised prevalence of disability (help) age 75+

Hierarchy of items (CFAS) - longitudinal

Hierarchy of items (CFAS) by gender

Why differences might occur Filters ‘If cannot manage steps/stairs can ….’ (GHS)

Effect of filtering by difficulty with stairs women aged 75+

Why differences might occur Filters ‘If cannot manage steps/stairs can ….’ (GHS) Question wording ‘Because of a health or memory problem’ (ELSA) Responses Very easy, fairly easy, fairly difficult, very difficult (GHS, BHPS) No difficulty, some difficulty (CFAS) Position of question in survey

Next steps Obtain standardised prevalence (help) for BHPS items Review cross-sectional hierarchy for each survey –is ordering the same regardless of items? Explore longitudinal hierarchy for BHPS? Try to find equivalent arrangement across surveys for difficulty with 1 or more items