Sponges among us Thomas was diagnosed with Neuroblastoma in August 2004 when he was 18 months old. He started treatment at UCSF. Aggressive protocol -

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Presentation transcript:

Sponges among us Thomas was diagnosed with Neuroblastoma in August 2004 when he was 18 months old. He started treatment at UCSF. Aggressive protocol - 6 rounds of chemo, resection, stem cell transplant, then radiation Thomas and Logan - August 2004

Chemotherapy Progress August 2004October 2004 Abdominal CT NucMed MIBG

Thomas - Oct Neutropenia Activity

Logan and Thomas - November After 5 rounds of Chemo

Celebrating Christmas Early before surgery 18 Dec 2004

After Surgery Dec 20 - Tumor resection 3 hour case - no nephrectomy or vessel involvement

He slept through Robin Williams’ annual visit to UCSF

We began tracking progress/problems.... Transferred to PICU for 30 hours, then after 3 days…...

We found the cause after correct counts, xrays and lots of strife

Dec 23, before removal - The lap sponge was making him extremely sick

Feeling Better - 24 Dec - Discharged Home on 28 Dec We let him remove his own NG

In February 2005 Thomas spent the month having a stem cell transplant. Thomas is now enjoying Kindergarten - he’ll be turning 6 in February 2009.