Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator

Regional Reports on Epilepsy Epilepsy: The Figures Globally one seizure in a life time people with active epilepsy pwe in developing countries new cases each year 70% pwe seizure free with treatment 80% not properly diagnosed/treated Epilepsy: The Figures Globally one seizure in a life time people with active epilepsy pwe in developing countries new cases each year 70% pwe seizure free with treatment 80% not properly diagnosed/treated

Regional Reports on Epilepsy Epilepsy: The Figures in Europe WHO EURO Region: 53 countries (27 EU countries) one seizure in a life time people with active epilepsy new cases each year 70% pwe seizure free with treatment 40% not properly diagnosed/treated Epilepsy: The Figures in Europe WHO EURO Region: 53 countries (27 EU countries) one seizure in a life time people with active epilepsy new cases each year 70% pwe seizure free with treatment 40% not properly diagnosed/treated

Regional Reports on Epilepsy ILAE + IBE + WHO = ILAE/IBE/WHO Global Campaign Against Epilepsy Campaign mission statement: Improve acceptability, treatment, services and prevention worldwide Campaign strategy Raising general awareness Supporting national deptmants of health to identify needs, promote education, training, services and prevention worldwide ILAE + IBE + WHO = ILAE/IBE/WHO Global Campaign Against Epilepsy Campaign mission statement: Improve acceptability, treatment, services and prevention worldwide Campaign strategy Raising general awareness Supporting national deptmants of health to identify needs, promote education, training, services and prevention worldwide

Regional Reports on Epilepsy Campaign tactics Producing regional reports Incorporating epilepsy in national health plans Facilitating establishments professional and lay organisations Setting up Demonstration Projects that illustrate good practice in the provision of epileps care Campaign tactics Producing regional reports Incorporating epilepsy in national health plans Facilitating establishments professional and lay organisations Setting up Demonstration Projects that illustrate good practice in the provision of epileps care

Regional Reports on Epilepsy Regional Reports - AIMS - advocacy tool - instrument for dialogue Regional Reports - AIMS - advocacy tool - instrument for dialogue

Regional Reports on Epilepsy Contents Background information on the Region Epilepsy (care) in the Region Initiatives to address epilepsy in the Region Challenges Actions and recommendations Conclusion Declaration on Epilepsy WHO paper to Cabinet Contents Background information on the Region Epilepsy (care) in the Region Initiatives to address epilepsy in the Region Challenges Actions and recommendations Conclusion Declaration on Epilepsy WHO paper to Cabinet

Regional Reports on Epilepsy Reports provide : “ Panoramic view of the epilepsy situation in the Region, outlines the initiatives taken by ILAE, WHO, IBE and other partners to address the problems, define the challenges and offer appropriate recommendations” Reports are: “ Potent advocacy tools for taking epilepsy “out of the shadows” Reports provide : “ Panoramic view of the epilepsy situation in the Region, outlines the initiatives taken by ILAE, WHO, IBE and other partners to address the problems, define the challenges and offer appropriate recommendations” Reports are: “ Potent advocacy tools for taking epilepsy “out of the shadows”

Regional Reports on Epilepsy State of affairs: Regional Reports RegionPublished AFRO 2004 AMRO (Spanish version) 2008 EMRO 2010 EURO 2010 SEARO 2004 WPRO 2004 State of affairs: Regional Reports RegionPublished AFRO 2004 AMRO (Spanish version) 2008 EMRO 2010 EURO 2010 SEARO 2004 WPRO 2004

Regional Reports on Epilepsy