Hope Into Life Lola Lewis Donation Coordinator The Lifesaving Gift of Organ and Tissue Donation

Federally designated not-for-profit organ procurement organization Coordinates organ and tissue donation with 180 hospitals in Illinois and northwest Indiana Works with 9 transplant centers Provides professional, public education Provides ongoing support for donor families About Gift of Hope Our mission: to save and enhance the lives of as many people as possible through organ and tissue donation

More than 120,000 people in the U.S. are waiting for a lifesaving organ transplant. More than 5,300 people are waiting for an organ transplant in our donation service area. Last year, nearly 300 people in Illinois died while waiting for a lifesaving organ transplant. Donation is Critical Billi, liver transplant recipient, lived and gave life to Jaxon

122,429* Waiting Nationwide Kidney ,431 Pancreas ,195 Kidney/Pancreas ,037 Liver ,735 Intestine Heart ,958 Lung ,660 Heart/Lung *As of

Illinois Donor Registry As of January 1, 2006 Illinois had the largest registry of intent with over 6 million registered donors. Illinois is the 43 rd State to adopt 1 st person It is an all or none registry Old registry is not automatically rolled into the new one. Legally binding no additional witnesses needed. Still very important that families share their wishes with each other.

When is Donation an Opportunity Tissue donation Any patient who dies anywhere in the hospital can be a tissue donor: –If there is a known time and cause of death Organ donation Any ventilated patient in a critical care setting can be an organ donor (can also be a tissue donor): –If there is a declaration of brain death OR If there is a decision to withdraw life-sustaining therapies, with the expectation that death will occur

Organ Donation is not as common as you might think… Approximately 10% of hospital patients die from types of injuries/illnesses that make them potential organ donors Donations do not occur in about 93% of these cases: –Patients deemed medically ineligible –Family declines to give donor authorization/changes mind –Other reasons Less than 1% of all patients who die in the hospital become organ donors! That is around 7 donors per 1000 deaths. Out of 37,034 hospitals deaths in 2012, there were 270 organ donors.

Why Donated Organs Are Needed Heart: heart disease—congenital, hypertensive cardiomyopathy Lungs: COPD, emphysema, cystic fibrosis Liver: chronic hepatitis, liver tumors, cirrhosis Pancreas: type 1 diabetes Kidneys: hypertension, diabetes, polycystic kidney disease Intestine: short bowel syndrome

Organ Viability Heart Lungs Liver Pancreas Kidneys Intestine 4-6 hrs hrs 6 hrs 36+ hrs

The Organ Donation Process How exactly does this work anyways? A Patient is referred to Gift of Hope. Gift of Hope determines medical eligibility Speaking with the family. Paperwork Placing of organs How long does this take?

Tissue Donation

Tissue Donation is Critical Tissue Donation 1 in 20 Americans will need some type of medical tissue transplant during a lifetime 900,000 human tissue (bone and soft tissue) transplants are performed per year Donated tissue often provides benefits that outweigh those of non-tissue implants and autografts. A single donor can enhance as many as 200 lives Skin Donation Helps an estimated 500,000 burn patients annually Thousands require reconstructive procedures

How Donated Tissues Are Used Cornea/eye: restores sight for patients with corneal damage or disease Heart valve: replaces heart valve for patients with heart defects, infection or damage Bone: saves limbs, replaces joints for patients with bone cancer, bone fractures, degenerative diseases Soft tissue: repairs or restructures injured tendons and ligaments Vein: replaces femoral or saphenous veins for patients with vascular disease or diseased/blocked arteries—limb-saving measure

Skin: skin grafts for patients with severe burns or surgical wounds—lifesaving measure Juvenile cartilage: promotes healing for patients with cartilage defects caused by disease, stress to knee brought on by physical activity and/or age Adipose: fatty tissue removed from the abdominal area used to help patients with hard-to-repair injuries like bone fractures Costal cartilage: soft tissue that connects the ends of the ribs to the sternum; used primarily for functional or structural implants in patients undergoing maxillofacial reconstruction How Donated Tissues Are Used (cont’d)

The Tissue Donation Process How exactly does this work anyways? A Patient is referred to Gift of Hope Gift of Hope determines medical eligibility Speaking with the family How long does this take?

The Impact of 1 Tissue Donor 43 Year Old Male Central Illinois Donor January 2012 Number of lives impacted to date: 123

The Impact of 1 Tissue Donor on the Nation

More than 5,700 letters to families each year More than 1,000 inquiries each year –Donor families –Transplant recipients –Transplant coordinators Quarterly Donor Family Advisory Council meetings Annual remembrance ceremony Transplant centers provide recipient outcome information Generate letters to donor families with general information about recipients and how they are doing We send follow up and thank you to staff at donor’s hospital, funeral director and coroner/medical examiner (if involved) GOH Donor Family Services

Donation can help to re-establish control Donation can help during the grief process Donation can be a way to memorialize a loved one Donation can honor a loved one’s wishes 64% of families do not remember the exact words used, but remember the care and support they received upon the loss of their loved one 89% would donate again Donation benefits to families

Who pays for donation? Will donation interfere with my funeral arrangements? Will I hear about the transplant recipients and the outcome? Can I correspond with recipients? Questions and Concerns

Steve’s Story…

Call Visit any driver’s license facility. Go to the secretary of state’s web site at: For additional information about donation, visit: How to Join the Illinois Donor Registry

Lola Lewis Donation Coordinator Gift of Hope Web site (GiftofHope.org)