Interdisciplinary Human Development Institute A University Center for Excellence in Developmental Disabilities Education, Research, and Service

2 Our Mission To promote the independence, productivity, and inclusion of people with disabilities and their families throughout the life span. We accomplish this through:  interdisciplinary education,  research and development,  information sharing and advocacy, and  outreach across the state and nation.

3 Our Values We convey esteem and respect for all individuals; We promote individual growth, learning, choices, and self-advocacy; We advocate for supports and full access in education, work, recreation, and relationships throughout a person's community; We foster creativity, flexibility, collaboration; We cultivate both individual and organizational learning; and We champion open and responsive communication.

4 Our Activities Interdisciplinary Training Research Education and Service

5 Interdisciplinary Training Employment of University Students from:  Educational Psychology  Family Studies  Social Work  Public Health  Counseling Psychology  Special Education

6 IHDI Certificate in Developmental Disabilities Approved and Initiated August 2001 Interdisciplinary Team of Faculty  Communication Disorders  Family Studies  Occupational Therapy (EKU)  Pediatrics  Public Policy and Administration  School Psychology  Social Work Biomedical Engineering  Special Education

7 Certificate Students and Graduates Masters and Doctoral Level Students Open to others who have completed a graduate or professional degree Students receive stipend and course credit 11 credit hours of interdisciplinary study related to:  Approaches, supports, and leadership issues in meeting the needs of persons with developmental disabilities and special health care needs

8 IHDI Research Nationally recognized leader in research on the reliability, validity, and instructional impact of alternate educational assessments, enabling all students to be included in state and national measures of school effectiveness. Increasingly visible in educational research in early childhood, including transition, educational accountability for preschoolers and family participation in educational decisions. Increasing research emphasis upon adult services, employment and life outcomes.

9 IHDI’s National Leadership: Highlights Ongoing assistance to nine (9) states in the implementation of federal special education law and policy Contracts with numerous states for the development and implementation of alternate educational assessments National center for research and training in early childhood transition

10 IHDI Recent National Impact = States of specific focus over the last five years (Includes Hawaii & Alaska)

11 IHDI Areas of Service and Support Early Care and Education School Age Adult Services Life Span Services

12 Early Care and Education We are working to improve the lives of young children with disabilities and their families by conducting research to:  Determine factors that impact the transition process and school success of young children.  Determine appropriate approaches for developing state standards and accountability systems for young children.  Determine factors that impact the level and intensity of early intervention services for young children.

13 Early Care and Education We are working to improve the lives of young children and their families by providing support and training to:  Enhance the quality of early childhood programs  Enhance collaboration and transition planning among community agencies  Increase parent opportunities for active participation in their child’s education  Improve the quality of teachers and caregivers

14 School Age We are working to improve the lives of students and their families by conducting research to:  Assess the impact of alternate assessments on instruction, curriculum, and IEP development  Examine how low incidence populations, such as deaf-blindness fare in state assessment systems  Examine how state and federal initiatives (i.e., assistive technology, behavioral initiatives, etc.) impact students with disabilities

15 School Age We are working to improve the lives of students and their families by providing employment-related training and support to:  Discover with students their interests, contributions, and passions in life  Explore new employment possibilities with students – pursuing kinds of work previously unconsidered  Negotiate jobs with an eye toward vocations and potential careers

16 School Age We are working to improve the lives of students and their families by providing technical assistance to state education agencies:  Develop inclusive large scale assessment systems  Develop state improvement planning & data systems  Monitor local districts regarding IDEA  Improve due process systems  Track exiting of students (graduation, dropout, post-school)  Improve child identification  Provide services in least restrictive settings  Insure access to the general curriculum

17 Adult Services We are working to improve opportunities for Kentuckians with disabilities by:  Assessing consumer satisfaction with services  Assessing quality of life outcomes over time  Providing work and recreational access and options to Kentuckians in rural settings  Administering the KY Assistive Technology Loan Program

18 Adults Services We are working to improve opportunities for Kentuckians with disabilities by:  Providing training in supported employment strategies to agencies throughout the state  Facilitating the work of the KY Business Leadership Network  Helping to identify unmet needs in areas such as aging and developmental disabilities  Exploring avenues to address unmet needs

19 Life Span Services  We are working to promote health access for Kentuckians with disabilities by:  Developing virtual patient modules on developmental disabilities for medical school, nursing, and physician assistant students  Training physicians to provide balanced information to new families of children with Down syndrome  Coordinating the developmental rotation for UK pediatric and other residents.

20 Collaborating with our State DD Council and Protection and Advocacy Agencies, we…. Served as members of the KY Delegation to the President’s Committee on Mental Retardation National Academy that resulted in the development of KY Legislation (HB 144) to expand critically needed services in KY and a Ten-Year Plan to address the long- range needs of KY citizens with developmental disabilities.

21 Collaborating with our State DD Council and Protection and Advocacy Agencies, we…. conducted a series of Olmstead Public Forums throughout KY, including a PowerPoint presentation at each forum by a consumer and family member that resulted in heightened awareness of Olmstead across disabilities groups and ages. helped to develop the KY Assistive Technology Loan Fund resulting in greater access to assistive technology for persons with disabilities.

22 Our Consumer Advisory Council (CAC) The mission of the CAC is to strengthen our work by giving advisement and direction, advocating for systems change, assisting with evaluation of our effectiveness, reviewing and assisting in the development of proposals, and sharing information about IHDI with others. The Consumer Advisory Council officers are individuals with disabilities and/or family members. The Council is strongly committed to developing the leadership capacity of individuals and families.

23 IHDI Priorities…  Increase opportunities for self-determination  Educate community and civic organizations regarding inclusion (e.g., Boy Scouts, Girl Scouts, 4-H, County Extension Services)  Increase education on legislative issues to persons with disabilities and to legislators and policymakers  Address the needs of aging caregivers and families of individuals with developmental disabilities  Reduce waiting lists to programs

24 Priorities Continued…  Increase the number of providers qualified to serve children with disabilities  Increase training and support for self-advocacy  Improve transition across the life-span  Increase peer support for community recreation  Advocate for Medicaid Buy-In (to remove the tremendous disincentive to employment for persons with severe disabilities)  Increase involvement of children and adolescents with disabilities in extra-curricular activities

25 Sources of Fiscal Year 03 Operating Funds

26 Growth in External Funding

27 Achieving Our Mission… To achieve our mission, we must be: interdisciplinary (focused across allsectors of the university) life-span in approach responsive to rapidly changing needs attuned to the most pressing needs of consumers and families.