Empowering Patients Tools and Initiatives November 20, 2013

A Quick Review Meaningful Use Interoperability Patient Generated Data

A Few Statistics In 2011, 10% of the eligible professionals were awarded MU incentive payments In 2012, 31% of the eligible professionals were awarded MU incentive payments Only 10% of the adult US population currently uses a PHR

Barriers to Full Participation Lack of full interoperability Misunderstanding of the value of having a consolidated health record Insufficient interpretive guides Lack of visualization tools

– the state of having access to more types of information and being able to process it quickly and efficiently – can mean the difference between profit and loss or even life and death.” “Information superiority –

How do We Provide Information Superiority? Simplify Presentation: – Easy to consume – Easy to visualize – Ability to understand metrics and action items intuitively Targeted to audience – Based on role – Drill-down capability Interactive – Highlight important data – Identify the purpose of the data

How Can We Deliver It? Health & Wellness Platform – Open source – EHR Independent – Customizable – Patient controlled role-based delegation – Special purpose modules Chronic conditions Rare diseases Diet planning Recovery tracking

Wish List BlueButton -- seamless import/export of patient clinical data OpenInfobutton -- additional information and translation of medical terminology Billing and Payment Information Symptom Tracker with graphing function Medication reminder and compliance tracker Customizable graphic visualization of vital signs Appointment scheduling, tracking, and reminders Personal genetic data

What else do you want?

Ed Fennell: An expert – through personal experience – on getting diagnoses and treatments for rare diseases. An opportunity to take the experiences of an engaged patient advocate and turn them into real help for desperate people in collaboration with other OSEHRA members. Next Week