What is motor neurone disease? A fatal, rapidly progressive disease that affects the brain and spinal cord. Attacks the nerves that control movement so.

Slides:



Advertisements
Similar presentations
THINKINGLEADINGDOING OI Society – Five Year Vision Workshop outcomes 29 th July, 2007.
Advertisements

CHILDREN’S CHRONIC ARTHRITIS ASSOCIATION. Mission Statement "The Children's Chronic Arthritis Association is the leading charity run by parents and professionals.
A charity registered in England and Wales (no ) and in Scotland (no. SC039299). A company Limited by Guarantee (Number ) Genetic Alliance.
Be also part of the challenge... Encourage our teams.
HOSA State Advisors Management Conference 9/24/14.
Dementia- Shared Expectations of Service Provision Jyoti Ahuja Clinical Psychologist Birmingham and Solihull Mental Health Foundation Trust (BSMHFT)
Patient Advocacy Groups for Young Women Affected by Breast Cancer Megan Dwyer Brisbane, Australia.
Motor Neuron Disease This disease attacks the neurons in our bodies that control our muscles and our movements.
Healthcare in the UK Margaret Costello – Gorlin Syndrome Group.
What is dementia? Dementia is caused when the brain is damaged by diseases There are over 100 different types of dementia, but Alzheimer’s disease is.
Work and Cancer Promoting Macmillan’s resources in your organisation.
1 What is Hospice Palliative Care? The Canadian Hospice Palliative Care Association defines hospice palliative care as a special kind of health care for.
Carers Rights Workshop Welcome. Nicola Hartley Development Manager Midlands & East of England The Princess Royal Trust for Carers.
Dementia Friendly Communities: The National Picture Simon Kitchen, Lead Executive, Dementia Action Alliance.
What is motor neurone disease? A fatal, rapidly progressive disease that can affect any adult at any time Attacks the nerves that control movement; people.
The Malnutrition Task Force : Prevention and early intervention of malnutrition in later life Margit Physant Project Manager.
Annual Report 2014/15. Engaging with people who use health and social care services During we met up with over 4500 people at 374 activities across.
HOSA National Leadership Conference Who is Autism Speaks – Our Mission At Autism Speaks, our goal is to change the future for all who struggle with.
Parkinson SuperWalk Information for Support Groups.
Sue Hawkins Care Catering Services Manager Malnutrition Task Force Update Prevention and early intervention of malnutrition in later life.
Nairobi, Kenya June 26, 2013 ROLE OF THE WFH, IN ACHIEVING TREATMENT FOR ALL.
Promotions Matter Great Lakes Division FY11 Local Summit.
PATIENTS IN RESEARCH RESEARCH PARTNERSHIPS.
Physicians and CIS working together: extending into the Community Catherine Dickens & Antonia Dawson 2006.
Getting Involved in Rotary! Rotary Club Of Bombay Kandivli.
Macmillan Website Visitor Survey Research & Insight June 2014.
Relay For Life Rotary Club of Pico Rivera. Relay For Life What is Relay For Life.
 Our Mission The Canadian Cancer Society is a national, community-based organization of volunteers, whose mission is the.
Carers’ Support Services in Middlesbrough
PREPARE MINNESOTA FOR ALZHEIMER’S WE HAVE COME TOGETHER Everyone can prepare Minnesota for Alzheimer’s Alzheimer’s impacts everyone.
My healthy life Helen Mycock – Mencap Health programme manager.
Hear Our Voice SUPPORT FOR PEOPLE WITH DEMENTIA.
Meeting the needs of people with MND Exploring ways to work with social services 28 th October 2011.
__________________________________________________________________________________________________
Medical Advocacy and Advance Directives Session 3 Staying in the Circle of Life.
#AntiBullyingWeek 2015 youtube.com/antibullyingpro.
Care and support through terminal illness. We’re here for people with any terminal illness and their families Someone has a terminal illness when they.
England Council Acts locally to improve services Shares best practice with branches Presents the views of people with and affected by MS in England to.
Motor Neurone Disease (MND) is a fatal neurodegenerative disease characterized by progressive paralysis. Currently there is NO cure, No cause and No treatment.
Your Branch Name AGM Welcome. Alison Noakes Regional Care Development Adviser Your Name Branch Chair Your Branch Name Motor Neurone Disease Association.
AKU Online Making information, advice and resources available online Jenni Thorburn, Online Communities Officer, AKU Society.
Finding a trainee position – advice and tips. If you have trouble finding a trainee position Make sure your CV stands out for the right reasons Your CV.
‘Maintaining Normality For Women With Cancer Throughout The Pregnancy Journey.’ Cancer and Pregnancy Awareness Week June #Cancerandpregnancy.
JENNIFER WATSON, MA NATIONAL INSTITUTE ON AGING, NIH MAY 19, 2016 Healthy Aging & Participation in Research What Older Adults Should Know.
The Cleft Lip and Palate Association Your Name Your Title.
How the MND Association can help. Founded in volunteers (300 Association Visitors) 170 staff 9000 members 3500 people are directly supported.
What is the NICE guideline on MND and what does it mean for you?
and Information Officer (Scotland)
Registered Charity England & Wales ( ) and Scotland (SC041034)
Why join a Local Dementia Action Alliance (LDAA).
Supporting people affected by lymphatic cancer
Notes for use These slides summarise the BLF report on our work in The full report with more detail can be found at The slides.
The leading subject association for all teachers of geography
SUPPORTING INFORMATION:
Section 5: Other ways to save our seas. Total time 3. 5 minutes
LGBT Adoption & Fostering Week March 2017 www. newfamilysocial
Managing your Donors and the need for a Stewardship Programme
Care and support through terminal illness
Going further together
How we support research.
South Somerset Mind Annual General Meeting 2012.
Why join a Local Dementia Action Alliance (LDAA).
About Macmillan Cancer Support
What can Sports Volunteering learn from the wider voluntary sector?
But There is Hope and Progress…..
Autism Support Crawley
Arthritis and Musculoskeletal Alliance
Motor neurone disease.
Maggie’s is an extraordinary place to work
A Window to Wider Support
Presentation transcript:

What is motor neurone disease? A fatal, rapidly progressive disease that affects the brain and spinal cord. Attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc. It can leave people locked in a failing body, unable to move, talk and eventually breathe.

What is motor neurone disease? It kills six people per day in the UK, this is just under 2,200 per year. It kills a third of people within a year and more than half within two years of diagnosis. It affects up to 5,000 adults in the UK at any one time. It has no cure.

The MND Association The only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning Formed in 1979 by a group of volunteers with experience of living with or caring for someone with MND

The MND Association Over 7,000 people give their time to volunteer and fundraise on our behalf. We have over 9,000 members helping to strengthen our voice to ensure everyone with MND has access to the best possible care. We support hundreds of health and social care professionals who provide and manage services for people with MND. We work with and support scientific and clinical research communities in the UK and worldwide

Our mission We improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND. We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.

The XXX Branch/ Group One of 89 volunteer-led branches and groups across England, Wales and Northern Ireland Covers the area of xxxx Volunteers work together to: –Provide local support –Raise awareness –Campaign –Fundraise on behalf of people living with MND

The XXX Branch/ Group Insert additional information about your branch or group, for example: Your support meetings (where/ how often/ format) What you have funded Your newsletter/ website Your Association Visitor team

The Future People living with MND can’t wait. We need your help!

How you can help Fundraise: –A fantastic way to involve friends and family –Help fight back against MND and have some fun –Ideas and events to suit all ages and abilities –We will be on hand to support you every step of the way

Every donation makes a difference £10 provides an information pack for a newly diagnosed person with MND £75 funds an MND expert researcher for half a day £250 buys attendant controls to enable a powered wheelchair user to transfer control to a carer when required £1,000 buys a specialist joystick to enable someone to continue working

How you can help Campaigning: Join our online network of campaigners and receive regular updates on our campaigning activities and information on how you can get involved For example –Ask your GP to use our Red Flags tool Visit:

How you can help Volunteering: Get involved in our branch/ group –We are looking for volunteers to join our committee to help us to make a difference locally Become an Association Visitor –By offering confidential, emotional support, accurate information and help to access the right services and equipment, you can enable people affected by MND to live their life more easily and make informed choices

How you can help Raise awareness: Hold your own event or get involved with our current awareness campaign Visit

How you can help Become a member: Help us to strengthen our voice as we campaign to ensure everyone living with MND has access to the best possible care, no matter where they live You will become part of a powerful support network and can meet with others and share experiences at our local and national events and conferences Visit

Find out more/ Keep in touch Website: Facebook: Twitter: Branch/ Group website: Facebook: Twitter:

Questions?