1 Supporting steps: 1) Establish an organizing coalition that can activate state level, cross-sector DFC initiatives 2) Develop a shared resource portal and technical assistance vehicles that foster dementia friendly communities at a local level Concept—Initiate a National Dementia Friendly Community Effort

Dementia friendly = age-friendly and intergenerational Dementia friendly = quality of life and costs Dementia friendly = earlier detection and participation in clinical trials 2 Rationale—

3 ACT on Alzheimer’s DFC effort and resource portal: 1) Content support 2) Process support Background on Possible Foundational Model

4 Agreed upon elements and resources for age and dementia friendly (guided by WHO age- friendly criteria) Content—DFC Resource Portal

Sector-Specific Resources Dementia-friendly action steps for: Businesses Community supports Faith communities Health care Legal/financial services Local government Residential settings Meaningful engagement *All filtered for cultural competency 5

6 1.Convene key community leaders and members to form an Action Team. 2.Assess current strengths and gaps within the community. 3.Analyze findings to understand your community’s needs and develop a plan to take action. 4.ACT Together to pursue priority goals that foster community readiness for dementia. Process–Four-Phase Tool

Replication Need Currently queried by states and countries to help them replicate the model Efficiencies and scale could be achieved by a centralized resource IF that resource lends itself to local ownership and implementation 7

Replication of Effort Benefits: –Enhance resources through collective contributions –Share burden of development and maintenance –Continuous collaborative learning and shared goals and principles –Share evaluation effort Challenges: –Effective, time-limited process for developing consensus-based resources and standards –Clarity of shared ownership/accountability –Result must feel locally owned and driven –Funding 8

Potential Process Map * (Goal: DFC Pilots in states/communities with preliminary results; learnings; and recommendations) 9 Convene Stakeholders and Develop Blueprint Convene national coalition that can activate state work One day development session to craft DFC blueprint Electronic revision and telephonic approval of plan Secure initial implementation resources Initial start up planning, branding and messaging Build/ Enhance DFC Portal Specific work groups to enhance portal content Website workgroup enhances/automates structure and process Local TA/delivery workgroup develops state training materials Plan kick off campaign and promotion Funding workgroup seeks pilot seed funding grant opportunities for states/communities Kick Off via National Challenge Initiate two month campaign and outreach Convene states with Alzheimers plans to participate Organize/train TA vehicles and train on TA process Issue RFPs and award pilot/seed grants to qualified States and/or communities Evaluation designed and funded Initial Implementation and Study States/communities begin to implement DFCs Evaluation plan implementation Social media tracking campaign Convene to review learnings to date Shared Learnings, Evaluation Challenge anniversary and awards Ongoing improvement and maintenance of resource Continued tracking and learning Permanent sustainability positioning Ongoing *During implementation process, continue to engage with and align efforts and resources of other countries doing similar work; if possible, explore ways to combine efforts that could result in an international DFC resource portal 3/31/15 3/31/15 12/15/16 12/15/16 3/31/16 3/31/16 10/30/15 10/30/15 3/31/17 3/31/17

Charged with enriching sector based resources categorized under WHO age- friendly criteria (e.g., faith, business, public spaces, transportation, housing, clinical etc.) Charged with developing guidelines for states in providing technical assistance to communities (e.g., process facilitation, resource finding, media use, convening) Charged with identifying sources for DFC implementation (e.g., portal implementation, technical assistance and community piloting) Charged with creating, automating and enhancing web-based resource Charged with adding and adjusting resources to ensure cultural inclusiveness Steering Team and Supporting Infrastructure (includes people with dementia) Sector specific- resource work groups (8) Cultural capability work group Portal architecture work group Fund development work group Local technical assistance delivery work group Development Organizing Structure 10 Charged with: 1) general oversight, framing, branding, communications, and strategy; 2) implementation team, including convening, facilitating, synthesizing, communicating and tracking work group progress Charged with: 1) general oversight, framing, branding, communications, and strategy; 2) implementation team, including convening, facilitating, synthesizing, communicating and tracking work group progress

Formation of 15 or more DFC communities in 2016 Assessment and analysis of current needs/strengths re: dementia friendliness in each community Prioritization of one or more cross-sector shared community goals Goal implementation work plan and funds Increased awareness of dementia w/n and across community sectors involved in DFC effort Implementation of DF practices w/n community sectors that enhance access for PwD and CPs Implementation of cross- sector DF goals that enhance access for PwD and CPs and/or raise awareness of AD/OD Increased DF services (existing and new) that support PwDs or their CPs Increased community awareness Increased sensitivity to and confidence in supporting PwD and CPs in community sectors Increased DF services (new and existing) Increased rates of detection/diagnosis and participation in clinical trials Increased rates of advance planning Increased rates of “living well” for PwDs and CPs via agreed upon indicators Process/Implementation Outcome/Effectiveness Source: Paone and Associates--Adapted from: Mary Davis, DrPH, MSPH, The North Carolina Institute for Public Health, University of North Carolina, Chapel Hill National Coalition Website/resource portal Four Phase culturally competent community toolkit Technical assistance training process Technical assistance (centralized and local) Communications/ outreach/ promotion InputsOutputs Short Term Results Impact/ Outcomes IMPACT MODEL

Questions to Answer 1.Is there appetite for and interest in this effort? 2.If so, do we think there is collective capacity for it and, if so, what is required to achieve that capacity? 3.How might we move forward and what are immediate next steps? 12