DBA UK Adult Meeting March 2013
General Talking Points How do we deal with DBA? What treatment do we receive? How often? What problems does DBA cause? How is our emotional health? Is this managed/treated? How do our doctors deal with DBA? Is our treatment/care adequate? How does this differ from hospital to hospital? Do any of us see the same doctors/specialists? Referrals to other departments, how is this managed? Patient led? How do employers deal with DBA? Are they sympathetic, do they understand? How hard has it been to find employment/support?
How can DBA UK help you? What do you want to see the charity do? How can the charity help the adult patients outside of these meetings? What have you got out of this meeting? Is it worth doing again? What would you change? What works?