1 Pursuing Self Management “Trying to fit the pieces together” Suzanne Raphael

2 More than one piece to complete the puzzle!

3 Specialist MS Nurses Prompt accessPrompt access Specialist advice and informationSpecialist advice and information Ongoing supportOngoing support

4 Neuro. Physiotherapists Timely accessTimely access Self referralSelf referral Ongoing SupportOngoing Support

5 How external pressure lead to internal changes in well being

Diagram Dr Jane Grose6

7 Coping strategies enhanced by enabling environment and emotional support

Diagram courtesy of Dr Jane Grose8

9 What is the Expert Patient Programme ? Course is delivered over 6 weekly 2 ½ hour sessions by trained and accredited tutors who have experience of living with or caring for someone with a long term condition.Course is delivered over 6 weekly 2 ½ hour sessions by trained and accredited tutors who have experience of living with or caring for someone with a long term condition. Underpinned by a quality assurance framework “Stepping Stones to Quality”Underpinned by a quality assurance framework “Stepping Stones to Quality”

10 Course participants learn how to: Set goals, problem solve, make action plansSet goals, problem solve, make action plans Build their confidenceBuild their confidence Identify share experienceIdentify share experience Develop their communication skillsDevelop their communication skills Manage their emotions and daily activitiesManage their emotions and daily activities Manage relationships with family, friends, health and social care workersManage relationships with family, friends, health and social care workers Understand the importance of exercise and healthy livingUnderstand the importance of exercise and healthy living Manage fatigue, sleep, pain, anger and depressionManage fatigue, sleep, pain, anger and depression

11 What the EPP has helped me achieve Understanding what is “normal” for meUnderstanding what is “normal” for me Knowing when, where and how to get further help and adviceKnowing when, where and how to get further help and advice Recognise and monitor my symptomsRecognise and monitor my symptoms Confidence and skills to better deal with my conditionConfidence and skills to better deal with my condition Take greater responsibility for my own healthTake greater responsibility for my own health

12 Supporting Self Management We can’t “do" self management to people, but what we can all try to do is create an environment where people feel supported to self manage.We can’t “do" self management to people, but what we can all try to do is create an environment where people feel supported to self manage. Self Management is not Sole Management.Self Management is not Sole Management.