Minority Affairs Committee Update 2012 Fall Regional Meetings

 Educational Guidelines on Patient Referral to Kidney Transplantation  Default pathway for CKD, ESRD is referral  Preemptive transplant is the goal  Education must begin early Committee Project Highlights

 Draft guidelines reviewed by transplant organizations OPTN Committees: Kidney, Patient Affairs, Living Donor, Transplant Administrators Professional transplant partner organizations: AST, NKF/KDOQUI, STSW Joint MAC/Organizational Representatives: MOTTEP, ASTS, ASN, AMAT Educational Guidelines, cont.

 NATCO to help with dissemination  Draft document approved by full committee for final review phase  Path Forward: review by CMS, ANNA, APPA, UNOS leadership, and then HRSA Educational Guidelines, cont.

 A2/A2B National Variance  Dialysis Facility Survey  Kidney and Liver Referral Survey  MAC Comprehensive Review Article Other Committee Projects

 Minority Donor Conversion Education Project  Collection and review of conversion data  Demographic differences  Examination of all variables impacting conversion  Partnering with other groups New Committee Projects

 Survey on Referral to Thoracic Transplantation  Asking questions on:  Delays for heart transplant candidates?  Are all eligible heart candidates being referred?  What is the population of candidates with heart failure (N)? New Committee Projects, cont.

 KPSAM simulation modeling presentation  Kidney allocation system  Evaluation for impact on selected populations  Continued evaluation of CPRA  Review of data prepared for Histocompatibility Committee  Impact of CPRA on kidney allocation Ongoing Data Reviews

 Silas P. Norman, MD Chairman  Meelie A. Debroy, MD, Vice Chair  Deanna L. Parker, MPA, Committee Liaison Questions?