DIABETES American Diabetes Association Government Affairs and Advocacy 2016 Update and Priorities Presenters name

DIABETES 4 General Advocacy Goals MISSION: To Prevent and Cure Diabetes and Improve the Lives of All People Affected by Diabetes 1.Increase federal and state funding for diabetes prevention, treatment and research 2.Prevent diabetes 3.Improve the availability of accessible, adequate and affordable health care 4.Eliminate discrimination against people with diabetes

DIABETES 2015 Federal Government Affairs Highlights Increased federal funding for FY2016 diabetes research and prevention programs: Added $68 million for diabetes research at the National Institute of Health’s National Institute of Diabetes, Digestive and Kidney Diseases (NIDDK) Added $30 million at the Center for Disease Control’s Division of Diabetes Translation Doubled the budget for the National Diabetes Prevention Program to $20 million for FY2016

DIABETES 2015 Federal Government Affairs Highlights Renewed the Special Diabetes Programs (SDP) funding for two years Continued inclusion of diabetes among diseases eligible for the Department of Defense’s Congressionally Directed Medical Research Program Improved United States Preventive Services Task Force recommendations will: – identify millions more Americans with undiagnosed diabetes and prediabetes –make both testing for diabetes and behavior counseling interventions available at no charge to the patient through most insurance plans

DIABETES 2015 State Government Affairs Highlights 57 state legislative victories! 18 in the area of health insurance 10 to eliminate health disparities 8 involving primary prevention of diabetes 5 in the fight against discrimination 5 to increase state coordination of diabetes 2 to increase diabetes research In past 4 years: 15 states changed laws or policies to meet all our major Safe at School tenets -Arkansas, Hawaii, and Nevada in 2015.

DIABETES 2015 Legal Advocacy Highlights Expert-backed recommendation to Federal Aviation Administration regarding medical evaluation of pilots with insulin-treated diabetes Publication of a proposed new rule governing commercial drivers with insulin-treated diabetes Florida legislation establishing a statewide training program on diabetes for law enforcement personnel

DIABETES Diabetes Disparities Action Council African American Diabetes Action Council American Indian/Alaskan Native Diabetes Action Council Asian Pacific American Diabetes Action Council Latino Diabetes Action Council

DIABETES 2015 Highlights - Addressing Health Disparities Screen at 23 campaign - build awareness of the recommended Body Mass Index for screening Asian Americans for diabetes Published “ A Call to Action: Eliminating Diabetes Disparities in Native Communities” in Clinical Diabetes Ten state-level legislative victories addressing health disparities Engaged Telemundo to expand reach in Latino communities

DIABETES Goal for 2016: Increase number of diabetes advocates by 20% Help Recruit New Advocates Opportunities for people to sign up and to take action at all events Identify community members with relationships with elected officials & invite them to be diabetes advocates Recruit health care professionals and attorneys for legal advocacy networks Recruitment cards for Legal Advocacy networks.

DIABETES Raise your voice Advocacy Action Center Sign up to receive advocacy updates and alerts at: – Timely information on federal and state legislation: Suggested messages for elected officials alerts so you can make your voice heard on time-sensitive issues

DIABETES American Diabetes Association Advocacy App

DIABETES 2016 Federal Tier I Priorities In all areas, there is an ongoing commitment to ending health disparities. Federal Funding for Diabetes Research & Programs CDC: Division of Diabetes Translation NIH: National Institute of Diabetes and Digestive and Kidney Diseases National Diabetes Prevention Program Special Diabetes Programs Seek innovative ways to increase overall federal funding dedicated to diabetes research and programs.

DIABETES 2016 Federal Tier I Priorities In all areas, there is an ongoing commitment to ending health disparities. Health Insurance Ensure public and private health insurance options, including those under the Affordable Care Act, Medicare, Children’s Health Insurance Program, and Medicaid, provide affordable access to the services, medications, technology, and education necessary to meet the needs of people with diabetes and prediabetes. Advocate for improved delivery of care through system reforms that lead to high quality, affordable, effective, efficient, and collaborative care for people with diabetes.

DIABETES 2016 Federal Tier I Priorities In all areas, there is an ongoing commitment to ending health disparities. Prevention Prevention of type 2 diabetes for individuals with prediabetes and in the general population, including efforts to reduce obesity and improve nutrition and physical activity. Promote regulatory pathway for discoveries that could prevent type 1 diabetes. Discrimination Ensure fair treatment of people with diabetes, focusing on employment. Health Disparities Specific initiatives to reduce the disparate impact of diabetes in minority communities.

DIABETES 2016 State Tier I Priorities In all areas, there is an ongoing commitment to ending health disparities. Health Insurance Coverage/Protection: Public & private health insurance options: –Affordable access to services, tools & education needed to meet needs of people with diabetes & prediabetes  Includes Affordable Care Act & Medicaid Diabetes Cost Reduction Acts –Oppose efforts to repeal or create loopholes

DIABETES 2016 State Tier I Priorities In all areas, there is an ongoing commitment to ending health disparities. Discrimination Issues: Safe at School Legislation Law Enforcement Private and Commercial Driver’s Licenses Health Disparities Specific initiatives to reduce the disparate impact of diabetes in minority communities.

DIABETES Fighting for Fairness Where: – Schools & Day Care Centers – Employment – Prisons and Jails – Public Places (restaurants, airports) What: Provide information, training and resources – to prevent or stop discrimination: –For people with diabetes and families –For lawyers, health care professionals, and advocates –For schools, employers, and corrections facilities

DIABETES GETTING HELP 1.VISIT: Free resources for people with diabetes, families, employers, schools, law enforcement, or public institutions 2.CALL: DIABETES ( ) ADA’s National Center for Information and Support Representative will send a specialized packet of information, including a form to request help from a legal advocate If challenges persists, the discrimination information/ assistance form can be mailed, ed, or faxed Individuals who feel they are currently experiencing discrimination or who have questions about their legal rights are routed to one of our Legal Advocates, who provide case- specific information and resources DIABETES

DIABETES 2016 Legal Advocacy Priorities Safe at School Student Safety Student Opportunity Employment Worker diabetes management Worker opportunity Advocate for science & medicine- based rules & policies Public Accommodations, Government Programs and Services Diabetes management Equal access Licensing, airport security, police custody & detention

DIABETES Advocates in Action Calendar CLB support is crucial to success Identifies 8 broad, year-round goals: Specific “calls to action” Local advocacy engagement tactics Specific training and support each month: For CLB advocacy chairs, other volunteer leaders and local staff Online support library 20

DIABETES 2016 Advocates in Action CLB Support For all CLB members: Recruit for & build advocacy committee & subcommittee Meet with elected officials - to learn how: Feb & June 2015 webinars Open Invitation: Any Advocates in Action Webinar For CLB Event Chairs: Use Easy Advocacy Checklist for your event Include Advocacy early in event-planning process Spread the news about our resources and efforts Participate in February Webinar For CLB Communications Chairs: Support getting out Advocacy messages through traditional & social media Explore resources at: 21

DIABETES Lisa Murdock Vice President (800) x7415States California Nevada Utah Veronica De La Garza State Advocacy Director (800) x6017States Arizona Arkansas Kansas Louisiana Mississippi Missouri Nebraska New Mexico Oklahoma Texas Vacant-Temporary AssignmentsStates Alabama-Lisa Murdock District of Columbia-Laura Keller Florida-Laura Keller Georgia-Laura Keller Maryland-Veronica De La Garza North Carolina-Stephen Habbe South Carolina-Stephen Habbe Tennessee-Gary Virginia-Gary Gary Dougherty State Advocacy Director (800) x4832States Illinois Indiana Iowa Kentucky Michigan Minnesota Ohio West Virginia Wisconsin Laura Keller State Advocacy Director (800) x7207States Alaska Colorado Hawaii Idaho Montana North Dakota Oregon South Dakota Washington Wyoming Stephen Habbe State Advocacy Director x3457States Connecticut Delaware Massachusetts Maine New Hampshire New Jersey New York Pennsylvania Rhode Island Vermont

DIABETES Questions? Go to: Call: DIABETES Center for Information and Community Support CONTACTS: Advocacy Chair: State Advocacy Director: