Empowering women to take charge of their heart health Presented by Mary McGowan Chief Executive Officer February, 2016.

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Presentation transcript:

Empowering women to take charge of their heart health Presented by Mary McGowan Chief Executive Officer February, 2016

Who We Are & Why We Are Different The nation’s only patient-centered organization serving the 42 million American women living with or at risk of heart disease Real women – the “boots on the ground” in the fight against heart disease A community of thousands of members nationwide, including women heart patients, their families, physicians and health advocates all committed to helping women live longer, healthier lives. 2

Mission & What We Do Educate women on the importance of taking charge of their heart health Support women living with heart disease and connect them with one another Advocate for research funding and policies that meet the needs of women with heart disease Partner with hospitals committed to advancing women’s heart health nationwide 3 To improve the health and quality of life of women living with or at risk of heart disease and to advocate for their benefit

Our Community 32,000 registered members –27,000 electronic newsletter subscribers 19,000+ active online patient support community 50,000 unique visitors monthly WomenHeart Champions, survivors trained as community educators/spokespersons at Mayo Clinic 130 local support networks in 42 states meeting monthly Founding partner of NHLBI’s The Heart Truth ® campaigns (AHA, Office of Women’s Health) 4

2015 Heart Failure Campaign Literature review National patient survey (19,000 patients) presentation, Heart Month Focus groups Key Opinion Leader Workshop Congressional Briefing – day after Wenger Awards - Hospitals Patient education module Red Bag of Courage patient education brochure Manuscript - Relationships among Self-efficacy, physical Limitations, and Self-care Behaviors among Women Living with Heart Failure St Jude Medical, Novartis, Amgen 5

2015 Cholesterol/FH Campaign National patient survey – FH Foundation Focus groups Key Opinion Leader Workshop Congressional Briefing (several partners) Red Bag of Courage patient education infographic Patient education module for use in 124 Support Networks nationwide On-going media support and promotion FH/Cholesterol Manuscript; Journal of Clinical Lipidemiology Amgen, Genzyme 6

Award-Winning Atrial Fibrillation Campaign Honored with National Forum for Heart Disease & Stroke Prevention’s 2015 Heart Health and Stroke Free Award Year-long traditional and social media campaign National satellite media tour Launched first Virtual Support Network for Women with AFib and their caregivers Created patient education infographic with 100,000+ distribution over the next year through Red Bag of Courage, online, and in media BMS, BI 7

WomenHeart National Hospital All iance Comprised of hospitals committed to advancing women’s heart health Serves as an important partnership to support women with heart disease Raises awareness for clinicians Positions hospitals in gender sensitive cardiovascular care Showcases women’s cardiovascular services Increases patient satisfaction Provides community benefit Gives hospital visibility with WomenHeart physician leaders and corporate and media partners 8

National Hospital Alliance capacity building campaign 9 Goal: reaching women in underserved communities with high poverty Call for application led to 5-fold amount of grants we had 2015 funding for 13 hospitals thanks to corporate sponsorship Edwards Lifescienes, AstraZeneca, Boston Scientific, Burlington Stores Notable new NHA Members: –Chickasaw Nation Medical Center –Captain James A. Lovell Federal Health Care Center

10 WomenHeart Government Peers Media Hospitals Legislators Doctors Pharma Partners Workplace