Ethics in EHR research Brian Moore, MS Associate Director, IRB.

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Presentation transcript:

Ethics in EHR research Brian Moore, MS Associate Director, IRB

Do you have a medical record at this institution?

Have you ever consented to be in a research study?

Short response: For men: How would you feel if your colleagues and other researchers within the medical center knew that you were recently diagnosed with Erectile Dysfunction? For women: How would you feel if your colleagues and other researchers within the medical center knew that you were recently diagnosed with urinary incontinence?

Would you be offended if someone that you have never met before contacted you about participation in a study based on a review of your medical records without your permission?

Gender records from 100 patients

Patient # Data 1Data 2Data 3Data 4Data 5Data 6Data 7Data 8Data 9 1XXXXXXXXX 2XXXXXXX 3XXXXXXXXX 3XXXXXXX 3XXXXXXXX 3XXXXXXX 4XXXXXXXXX 5XXXXXXXX 6XXXXXXXXX 7XYYYXXXXX 7XXXXXX 8XX 9XXXXXWWWW 9XXXXXXXX 10XXXXXXXXX 11XXXXXXXXX 12XXXXXXXXX