Neil Turner “Thanks to the amazing NHS, RPV.... Bloods done this morning. All results posted on RPV by we are so lucky in the UK.” RPSG Facebook page

Sample Proton screens

Principles Put data into patients’ hands With guidance Spec. by patients, renal IT staff, clinicians Simple for patients to use View anywhere Implementation must be simple Devolved management

Map of UK RPV centres RPV centres Mar of 73 adult renal units Over 43,000 registrations

Facebook comments (RPSG) In my early weeks, I lived for my results on RPV. Its an excellent system. RPV is a godsend I’ve been transplanted for 18 years and it’s still the same, worry until I see the bloods!

Google analytics March 2014

Interval between logons and tests

Non-parametric modelling of age as an influence on the likelihood of a registrant completing their first logon

RPV uptake by RRT patients by centre

Probability of being registered for RPV increases with rank deprivation score (lower levels of deprivation)

Six facts about uptake The commonest reason for not joining is not knowing More than half of patients can become users Up to 40% of patients share their logins Users now only 3y younger than non-users Dialysis patients are the heaviest users A third of patients who join don’t become regular users (recruitment toolkit)

Staff Evaluation Equally positive – “I was very cautious before but …very wrong” – “Revelation for patient care” – Level of consultation raised (but not length) – “Patients see results first - this is a good thing” – Data quality

Want messaging? rixg.org/rpv - Admin – Secure Messaging bit.ly/1u0WEfR

Launching Dec 2014 – PV2 Mobile devices More modern ways of data exchange Multiple specialties Any or No specialty ‘Cohorts’ with data aggregation APIs for viewing and entering data Further interactivity and 2-way comm Management dashboards

More about PV2 RPV news – renalpatientview.blogspot.co.uk Follow links from News in PatientView.

renal.org/rpv rixg.org/rpv patientview.org More info biomedcentral.com/ /12/87