1. New Hampshire Network Building for Collaboration Sharon Kaiser, RN BS Project Coordinator NH Lifespan Respite Grant (2009-2012) Many Faces of Respite November 2-3, 2011 Glendale, Arizona

2. Baggage Claim

3. Learning Objectives Identify three ways to locate Coalition Members and engage Stakeholders Define relationships that provide sustainability for Lifespan Respite Program Understand the need for competency-based provider program

4. Snapshot of NH Population 1,324,595 93.1% White 25% of population is 55 year or older 23% are caregiver between 55- 64 yrs & 18% are over 65 yrs 24% of population is 0-17 16.6% Children with Special Health Needs compared (13.9% nationally) > 2/3 of families of NH CSHCN report provide health care for child at home

5. Stakeholders/Coalition Member Establish the need Find those with a vested interest Deliver your message (data speaks) Get buy-in Who knows who Any champions – the best approach

7. Relationships Setting the tone for a positive relationship Provide trust & feels comfortable Leads to shared questions Shared hopes/worries Over time – strengthens responsive, nurturing relationships with each other

8. Parallel Process What happens in one relationship has an effect on what happens in another

10. Stress Stress in the respite provider and caregiver relationship can add stress to a caregiver- and the person that is being cared for.

11. Zero to Three 2006 Good News “The only person we can change is ourselves” “Any change that we make – in how we respond to someone, our tone of voice, the words we use, and our body language – encourages the other person to change as well.”

12. Self Awareness Self-awareness gives us important knowledge about how our own reactions influence our relationship with others. Careful observations gives us important information about the unique strengths and needs of others. Flexible response helps us use this information about ourselves and others to identify next steps.

14. Giving and Receiving Information Our attitudes, beliefs, and values Influences our relationships in important ways Based on personal histories and experiences, interpretation of messages maybe different than you intended and vise versa. Lets talk if responses are a puzzle.

15. Assessing Needs and Resources for CSHCN in NH 2004 Provider Training Limited number of respite providers are available and the need is great. Respite providers who know and understand specific expectations before they begin will be more likely to commit to staying “Experience has shown that even limited training for providers can greatly improve the quality of care for an individual with special needs”

16. Sharon Kaiser, RN, BS NH Lifespan Respite Project Coordinator Early Childhood Systems Program Specialist Special Medical Services, Title V, CSHCN Thayer Building 129 Pleasant St Concord NH 03301 skaiser@dhhs.state.nh.us 603-271-4498