1. Maryam Roghani EPSE 590 Positive Behaviour Support and Quality of Life for a Young Man with Autism

2. About Me I was born in Iran and moved to Italy at the age of 4 where I grew up with my family I moved to Canada in 1998 and continued my education in Performing Arts majoring in guitar While I was studying I was also working as a Behaviour Interventionist with children with autism This is how I discovered my passion for the field of special education…..

3. Why M.Ed. I currently work as behaviour consultant with adults and children over the age of 6 I decided to pursue my Masters in Special Education with a focus in Autism I am also working to become a Board Certified Behaviour Analyst (BCBA) UBC had the perfect program for me and my goals…

4. My Presentation One M.Ed. Program Goal: to create evidence based Positive Behaviour Support My presentation will review how the implementation of a PBS plan affected the Quality of Life of a young man with autism living in a group home setting

5. My Presentation Positive Behaviour Support Quality of Life Presentation of Case Study

6. What is Positive Behaviour Support? “Positive behavior support (PBS) is an applied science that uses educational and systems change methods (environmental redesign) to enhance quality of life and minimize problem behavior.” (Carr et. al. 2002)

7. What is Quality of Life? Eight life dimensions (Schalock, 2002): emotional well-being interpersonal relationships, material well-being personal development physical well-being self-determination social inclusion and rights

8. Positive Behaviour Support and Quality of Life Research question: does quality of life for individuals with autism increase as problem behaviours decrease? Data on behaviour and quality of life indicators for a young adult with autism reviewed: Pre intervention During 3 phases of intervention Post intervention

9. Who is John? 28 years old Has autism Easy going Likes busy schedule Likes a predictable routine Likes activities that provide sensory input (swimming, music, taking a bath) Likes independence Very limited communication skills

10. John’s Interests Food/Cook books Trains Music Fixing things (electronics, etc.) Swimming Baths Eating out Spending time with family Movies

11. Behaviours of Concern Agitation Self-injury Physical Aggression towards staff Ritualistic/Repetitive Behaviour

12. Baseline Data Prior to implementation and during baseline data collection (November 2010-May 2011):

13. Data Collection and Analysis Log notes, mood charting, behaviour data (2010- present) Summarized: 1) Behaviour 2) Total number of activities for each life domain 3)The variety of activities in John’s schedule (location and topography) 4)The level of support needed for each activity and 5)Mood and medication charting 6)The level of participation

14. Assessment and Behaviour Support Plan Conducted a functional behaviour assessment Function(s) included: Tangible Designed and implemented a behaviour support plan (BSP) with these main elements: Increase fit between John’s current schedule and his personal profile Functional Communication Training Controlled choices Weekly schedule with a portable visual schedule component Redirect John to communicate his needs using his communication board if he shows signs of escalation Provided training to staff for BSP implementation

15. Implementation of BSP Phase 1 (June-December 2011) 60% implemented Phase 2 (January-June 2012) 80% implemented Phase 3 (June-December 2012) 100% implemented

16. Data Behaviours of Concern (3): Critical Incidents Incidents of Aggression Physical Restraints Quality of Life Indicators (8) : Self determination Personal Development Interpersonal relationships Social inclusion and rights Material wellbeing Physical well being Emotional wellbeing

17. Graph

18. Self Determination: Baseline-Implementation-Follow Up

19. Personal Development: Baseline-Implementation-Follow Up

20. Interpersonal Relationships: Baseline-Implementation-Follow Up

21. Social Inclusion and Rights: Baseline-Implementation-Follow Up

22. Emotional Wellbeing Baseline-Implementation-Follow Up

23. Physical Wellbeing: Baseline-Implementation-Follow Up

24. Material Wellbeing: Baseline-Implementation-Follow Up

25. Quality of Life Personal Development Speaking in 3 word utterances Using self restraint if needed, by holding hands together on his back Self-Determination Makes choices of activities to plan in his day, very independent (cleaning, laundry, cooking) Physical well-being More active, less anxious and relaxed He does not have any more pain/inflammation in his joints due to excessive pacing all day

26. Community and Leisure

27. Quality of Life Rights Lives in an environment where they honour his rights and treat him with respect, dignity, and equality Social Inclusion Goes into the community everyday, travels on public transit Goes bowling, shopping, to the library Participates in activities with roommates and peers at home and in the community Does not solely seek alone time

28. References Carr, E.G., Dunlap, G., Horner, R., Koegel, R.L., Turnbull, A., Sailor, W., et al., (2002). Positive Behaviour Support: Evolution of an Applied Science. Journal of Positive Behavior Support, 4, 4-16. Malette, P., Mirenda, P., Kandborg, T., Jones, P., & Rogow, S. (1992). Application of a lifestyle development process for persons with severe intellectual disabilities: A Case Study Report. Journal of the Association for Persons with Severe Handicaps, 17, 179-191. Risley, T. (1996). Get a life! Positive behavioral intervention for challenging behaviour through life arrangement and life coaching. In L. K. Koegel, R.L., Koegel, & G. Dunlap (Eds.), Positive Behavioral Support: Including People with Difficult Behavior in the Community (pp. 425-437). Baltimore, MD: Paul H. Brookes Publishing Co. Schalock, R. L., & Alonso, M. A. V. (2002). Handbook on quality of life for human service practitioners. American Association on Mental Retardation.

29. References Cont. Kennedy, C. H., Horner, R. H., Newton, J. S., & Kanda, E. (1990). Measuring the activity patterns of adults with severe disabilities using the Resident Lifestyle Inventory. Research and Practice for Persons with Severe Disabilities, 15(2), 79-85. Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L.,... & Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Journal Information, 40(6).