1. Motor Neurone Disease (MND) is a fatal neurodegenerative disease characterized by progressive paralysis. Currently there is NO cure, No cause and No treatment

2. Motor Neurone Disease paralyses the muscles leaving people unable to do the everyday things the rest of us take for granted Walking, talking, even swallowing are affected by this devastating disease

3. Motor Neurone Disease does not discriminate. It strikes people regardless of gender, race, or age affecting teenagers to those in their eighties and beyond

4. RTE Sports Commentator called MND P.I.T.s Progressive Incurable and Terminal.

5. https://www.youtube.com/watch?v =EOk07i1Q3Uc IMNDA AWARENESS VIDEO

6. https://www.youtube.com/watch?v=aB6jH99aiTY https://shapeshiftingemma.word press.com/page/2/ EMMA FITZPATRICK https://www.ucc.ie/en/983fm/doc umentaries/shapeshiftingemma/

7. https://www.youtube.com/watch ?v=yCoKB_tU9ng https://www.youtube.com/watch ?v=aB6jH99aiTY ICE BUCKET CHALLENGE

8. IMNDA FUNDRAISING CAMPAIGNS IMNDA Last Word’s for #Voice4MND Imagine not being able to say ‘I Love You’ this Valentine’s Day Sharon Can’t February is the month of love where couples from across the world openly celebrate their affection for each other. But imagine not being able to say ‘I Love You’ this Valentine’s Day. Most people with Motor Neurone Disease (MND) can’t. Between 80- 95% of people living with MND will experience some loss of speech before they die. All you have to do is pick a day, time and location where you will take on your sponsored silence. Sponsor cards are available from our office, just email fundraising@imnda.ie or you can text MND to 50300 to donate €2 (100% of text goes to IMNDA across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to IMNDA. Service Provider: LIKECHARITY. Helpline 076 6805278), then tell us what would be the last thing you would say if you knew you would lose your voice #Voice4MND. fundraising@imnda.ie

9. IMNDA FUNDRAISING CAMPAIGNS IMNDA Last Word’s for #Voice4MND Thank you very much for supporting the Irish Motor Neurone Disease Association in our annual Easter raffle, we really appreciate this gesture. Please find enclosed your pack, your delicious Butlers Chocolate Easter hamper/s will be with you soon! As you have kindly agreed to participate in this campaign you are therefore taking responsibility of selling the lines (€2 each), carrying out the raffle, notifying the winner and presenting the Easter Hamper. Please note, we do not expect you to sell all the lines on the raffle sheet and we are grateful for what you can sell.

10. IMNDA FUNDRAISING CAMPAIGNS IMNDA Last Word’s for #Voice4MND Mark MND Global Awareness – 21 st June – by holding a summer tea party with your friends, family, colleagues or teammates during the month of June! For more details please contact the Irish Motor Neurone Disease Association (IMNDA) for your free ‘Tea Pack’ and help raise vital funds and awareness for the IMNDA. Freefone 1800 403 403 / Email fundraising@imnda.ie / www.imnda.iefundraising@imnda.iewww.imnda.ie Tea Packs sponsored by SuperValu. All proceeds raised will go directly to supporting people affected by Motor Neurone Disease; a progressive, incurable and terminal condition. Charity No. 8510

11. IMNDA FUNDRAISING CAMPAIGNS IMNDA Last Word’s for #Voice4MND Organise a ‘Walk to D-Feet MND’ in your locality.. Every step makes a difference. We walk for hope, we walk in support, we walk so that one day we will see a world free of MND. Walking 5K can help the IMNDA to continue providing care for over 300 families across Ireland. Encourage your family and friends to register too, just €20 per person online at www.imnda.ie or freefone 1800 403 403 / email fundraising@Imnda.ie. All children under the age of 12 walk for free. This is a fully accessible route both buggy and wheelchair friendly. All walkers get a green IMNDA t-shirt and light refreshments.www.imnda.iefundraising@Imnda.ie

12. LEGENDS WITH MIRIAM IMNDA Last Word’s for #Voice4MND https://www.youtube.com/watch?v=1dOZUvsy9I8

13. Motor Neurone Disease Marie Reavey Regional Development Officer Irish Motor Neurone Disease Association Tel: 01 873 0422 / 087 416 8698 E mail:mreavey@imnda.ie Website:www.imnda.iemreavey@imnda.iewww.imnda.ie