2. Review of Education Provided to Parents in the Haematology/Oncology Unit, OLCHC M. Mannion, P. Lannon, C. McCall F. Mckenna 16 th October, 2015 HAI conference, Galway

3. Education of parents Education is an integral component of the Haem/Onc CNS roleEducation is an integral component of the Haem/Onc CNS role The aim of this poster presentation is to provide a retrospective review of the parent education programmes currently in use in this unitThe aim of this poster presentation is to provide a retrospective review of the parent education programmes currently in use in this unit These are led by the CNS teamThese are led by the CNS team

4. Epidemiology Childhood cancer is rareChildhood cancer is rare Approximately 1 in every 600 children under the age of 15 will develop a cancerApproximately 1 in every 600 children under the age of 15 will develop a cancer NCRI (2014 )

5. Malignant Paediatric Haem/Onc main cancer primary groups in 2014

6. The diagnosis of cancer in a child is known to have far-reaching consequences for both the child and the family, including its impact on quality of life for both the child and familyThe diagnosis of cancer in a child is known to have far-reaching consequences for both the child and the family, including its impact on quality of life for both the child and family Healthcare providers are increasingly seeking ways to deliver safe quality care to children and their families which minimise the negative impacts of illness and hospitalisationHealthcare providers are increasingly seeking ways to deliver safe quality care to children and their families which minimise the negative impacts of illness and hospitalisation

7. Objectives To provide safe home care for children with cancerTo provide safe home care for children with cancer Current healthcare delivery has seen an increasing trend towards providing complex healthcare services for children and adolescents with cancer in their home (Frierdich et al, 2003).Current healthcare delivery has seen an increasing trend towards providing complex healthcare services for children and adolescents with cancer in their home (Frierdich et al, 2003).

8. Method Accessing our CNS electronic database we identified all parents who were educatedAccessing our CNS electronic database we identified all parents who were educated The data was audited to determine the total number of parents who were educated, the type of education given and the average time spent providing the serviceThe data was audited to determine the total number of parents who were educated, the type of education given and the average time spent providing the service

9. Education tools Passport 111 page document divided into 28 chapters Aims to provide general and specific information relating to cancer diagnosis and treatment plan Designed for multi-centre use/resource for shared care centres

10. Passport Parents encouraged to bring on all hospital visits Includes section on Hickman dressing education and blood sampling education

11. Cytarabine Booklet 11 page document Provides drug information inclusive of side effects Step by step guide for home administration Trouble shooting section included

12. Hickman App Launched in November 2014 at the National Paediatric Haematology/Oncology Meeting Aimed at parents and medical staff involved in Hickman line care Resource for shared care centres Includes visual and audio demonstration of Hickman dressing, Hickman blood samples and Intravenous Cytarabine administration

13. Hickman App Also provides written information regarding all aspects of hickman care Designed in response to parents needs

14. Results Between Jan 2012 & Dec 2014, 521 children were referred to the Haem/Onc service (521) 100% of parents received fundamental education using the passport (521) 100% of parents received fundamental education using the passport (238) 45% of parents learned how to perform Hickman dressing and flushing at home (238) 45% of parents learned how to perform Hickman dressing and flushing at home

15. Results (141) 27% of parents learned how to take bloods from the Hickman line at home (141) 27% of parents learned how to take bloods from the Hickman line at home (74) 14% of parents learned how to administer Intravenous Cytarabine at home (74) 14% of parents learned how to administer Intravenous Cytarabine at home (50) 9.5% of parents learned to obtain a full blood count using a fingerprick technique at home (50) 9.5% of parents learned to obtain a full blood count using a fingerprick technique at home

16. Average time spent teaching Hickman dressing & flushing 6.5 hours Blood yielding 3 hours Adminstration of IV Cytarabine 3 hours Fingerprick technique 2 hours Fundamental education 5 hours

17. Conclusion The education programmes we provide aim to meet the individual needs of each child and their family We are continuously looking at innovative ways to assist our education programmes to enhance our service

18. Recommendations A parental survey to audit quality of education provided Further development or educational apps

19. References Aburn, G & Gott, M (2011) Education given to parents of children newly diagnosed with acute lymphoblastic leukaemia. Journal of Pediatric Oncology Nursing. 28(5) pp 300-305 Frierdich, S., Goes, C. & Dadd, G (2003) Community and home care services provided to children with cancer: a report from the Children’s Cancer Group Nursing Committee-Clinical Practice Group. Journal of Pediatric Oncology Nursing. 20(5) pp 252-259.Frierdich, S., Goes, C. & Dadd, G (2003) Community and home care services provided to children with cancer: a report from the Children’s Cancer Group Nursing Committee-Clinical Practice Group. Journal of Pediatric Oncology Nursing. 20(5) pp 252-259.

20. References Lashlee, M & O’Hanlon Curry, J (2007) Pediatric home chemotherapy: Infusing “quality of life”. Journal of Pediatric Oncology Nursing. 24(5) pp 294-298 National Cancer Registry of Ireland, 2014National Cancer Registry of Ireland, 2014