1. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 1 HOW TELLING YOUR STORY CAN MAKE AN IMPACT AND HELP CREATE CHANGE Susan Inman, author, After Her Brain Broke Vancouver, Canada Randye Kaye, author, Ben Behind His Voices Trumbull, Conn.

2. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 2 STORIES

3. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 3 Agenda Sharing: Susan and Randye’s Stories Clarifying: Your Story – and Why Tell it? Brainstorming: Small Group Feedback Combining: Tell us your group findings –What Issues? –Who needs to hear the messages? Storytelling Basics –In print, in person, in media, online

4. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 4 Susan’s Family Story

5. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 5 Susan’s Story Selected Advocacy Issues:  Need for science based public education about psychotic disorders

6. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 6 Advocacy Issues, cont.  Need for science based education about psychotic disorders for all programs training mental health professionals address history of unjustified parent blaming  Need for appropriate education for consumers about psychotic disorders address dangers to consumers about unjustified family blaming

7. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 7 Using an Incident for Advocacy my daughter’s story – told in WRAP program that participants had suffered childhood trauma and abuse from “parents who were never there for them”  wrote description of her experience and sent to senior management of mental health services

8. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 8 Incident for Advocacy, cont. wrote Huffington Post Canada article: “How Peer Workers Can Hurt People with Mental Illnesses” Advocacy Issues: appropriate training and supervision of peer support workers need for expensive programs for people with psychotic illnesses (ex. CBT and Cognitive Remediation Programs)

9. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 9 Randye’s Story Ben Behind His Voices: One Family’s Journey from the Chaos of Schizophrenia to Hope

10. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 10 Once upon a time, a hug was all it took… Stage One…

11. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 11 Diagnosis and Reality Stage Two…

12. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 12

13. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 13 Support, Education…

14. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 14 Recovery: the Rocky Road Incident Stage Three…

15. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 15 Recovery Village

16. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 16 Possible Advocacy Issues Listen to the Family/Long-Term Caregivers Need for Treatment Changes in Gradual Steps Necessity for Community for Recovery Assisted Outpatient Treatment (Treatment Advocacy Center) Role of Clear Structure for Success Loneliness and Mental Illness

17. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 17 SEARCH: What Families Need When Mental Illness Strikes Support Education Acceptance Resilience Communication skills Hope and Humor

18. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 18 Randye’s Responses NAMI Family-to-Family Book Blogs: BBHV and “Mental Illness in the Family” Letters to Editor, comments online Theatre: “Momoirs” Speaking: APA, APNA, US Psych Congress, Nursing/Psych/Counseling students, Hospital Staffs, Police, etc.

19. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 19 What’s Your Story? (Personal or Agency)

20. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 20 Thinking… What?: Overall story or specific incident? Why tell this story? (Purpose) To Whom? (Potential Audience) What’s in it for my Audience? (Key Points, “Call to Action?”)

21. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 21 Where to Start? Write it Down! Overall Situation One Incident to Focus On Today Some Details –Who, What, When, Where –Feelings/Emotions Discovering its Meaning/Impact –What could have been done differently? (Need for Change/Solution-Oriented) –Supporting Facts, Statistics?

22. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 22 Group Brainstorm! Pick Facilitator Notes common threads Story Share (1 minute) Feedback (1 minute) Other meanings/issues Ideas where/how to tell it Clarify Common Threads

23. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 23 Group Summaries

24. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 24 Where to Tell Your Story Public Speaking:  support groups  programs training mental health professionals  staff professional development  religious organizations  radio and television  conferences: submit proposals

25. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 25 Where to Tell Your Story In Writing:  letters to the editor  letters to politicians  op-ed pieces  comments on online articles and blogs Use Hyperlinks to Educate: ex. www.treatmentadvocacycenter.orgwww.treatmentadvocacycenter.org ex. www.nimh.nih.gov

26. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 26 Some Resources Toastmasters (toastmasters.org) Keep The Promise Coalition NAMI (nami.org) Healthy Place (healthyplace.com) After Her Brain Broke resource list Ben Behind His Voices resource list Randye and Susan’s mailing lists

27. June 22, 2012Randye Kaye/Susan Inman NAMI Convention 27 randye@benbehindhisvoices.com susaninman.vanc@gmail.com Tell Your Story. Make an Impact. Create Change!