1. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory CYDL Project One Symposium Child Intervention Family Support for Children with Disabilities (FSCD) Experiences of Albertan youth (2008/09) Cecilia Bukutu, PhD October 1, 2012

2. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory The CYDL is a research facility that links and analyzes administrative data from five child- and youth-serving ministries in Alberta The data are anonymous and population-wide The research results make unique contributions to the knowledge base, and can be used for integrated policy and program development and evaluation A key outcome of CYDL’s work is to inspire further policy-relevant research CYDL Overview Slide 2

3. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Data were from a single year (2008/09) 713,830 youth aged 12 to 24 years were included in the analyses Data came from 10 databases held by 5 ministries Several key indicators were available for each youth: - age- gender - region of residence- socio-economic status - mental health status- educational achievement - health service use Other indicators were database-specific Within- and cross-ministry analyses were carried out Project One Overview Slide 3

4. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Child Maltreatment is associated with impairment; – in childhood – in adolescence – can extend throughout the lifespan For every 1000 cases of maltreatment investigated 14.2 were substantiated (Canada Incidence Study, 2008). Rates were higher for infants and children than adolescents Context - Child Maltreatment Slide 4

5. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Alberta Child intervention services are focused on; – the well-being of children – supporting families to be healthy and – ensuring children grow up in safe and nurturing homes. Two intervention programs – In care services e.g. protective services – Out of care services e.g. family enhancement program Context - Child Intervention Services Slide 5

6. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Population Characteristics – Albertan youth aged 12 to 17 years old – 6,400 youth received intervention services as a result of maltreatment representing 2.1% of 307,703 Albertan youth (aged 12 to 17 years) in 2008/09. – 51% male – 46% were Aboriginal Slide 6 Context – Project One

7. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Receiving vs. not receiving intervention services – Receiving intervention services In care vs. out of care services Aboriginal vs. Non-Aboriginal – Key indicators Socio-economic status (SES) Educational Achievement Mental Health status Health Service Use Cross-service use Slide 7 Analysis

8. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Intervention type Slide 8

9. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Slide 9 Aboriginal Status & Intervention

10. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Socio-economic Status Slide 10

11. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Slide 11 Aboriginal Status & Socio-economic Status

12. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Educational Achievement Slide 12

13. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Slide 13 Aboriginal Status & Educational Achievement

14. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Mental Health Service Use Slide 14

15. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Slide 15 Intervention & Mental Health

16. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Slide 16 Aboriginal Status & Mental Health

17. Slide 17 Intervention, Mental Health & Education

18. Slide 18 Aboriginal Status, Mental Health & Education

19. Health Service Use Slide 19

20. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Cross Service Use Slide 20

21. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Compared to youth not receiving child intervention services youth receiving intervention services in 2008/09 were more likely to; – Live in the lowest socio-economic status neighbourhoods – Use mental health services – Use health services – Receive Family Support for Children with Disabilities (FSCD), have offence charges or involvement with correctional services – 40% of youth receiving child intervention services met educational expectations Summary - Child Intervention Slide 21

22. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory 5% of children (5 to 24 years) have a disability (Alberta) Most common disabilities reported among 5 to 24 years of age in Canada are learning disabilities, chronic health conditions and developmental disabilities Outcomes for children with disabilities improve where parents are supported and communities are supportive FSCD - Literature Slide 22

23. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Family Support for Children with Disabilities (FSCD) is a ministry of Human Services program that provides a range of supports and services to families that strengthen their ability to support and care for their child with a disability based on their needs. FSCD Population characteristics – 3,764 youth (12 to 18 years old) received FSCD services Representing 1% of 365,112 Albertan youth (2008/09) – 2,438 (64.8%) male FSCD – Project One Slide 23

24. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Primary Medical Diagnosis Slide 24

25. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Socio-economic Status Slide 25

26. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory School Authority Type Slide 26

27. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Educational Achievement Slide 27

28. Health Service Use Slide 28

29. Cross Service Use Slide 29

30. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Compared to youth not receiving FSCD services youth receiving FSCD services in 2008/09 were more likely to; – Live in low middle socio-economic status neighbourhoods – Use health services more – Receive maltreatment-related intervention services or income support Over a quarter of youth receiving FSCD services met educational expectations Summary Slide 30

31. Alberta Centre for Child, Family and Community Research Child and Youth Data Laboratory Acknowledgements Slide 31

32. DISCUSSION QUESTIONS: Session A  Do you have further questions related to these project findings?  Are there data from the presentation that you find surprising or contrary to your perceptions? Why?  What might these findings mean for specific populations that your ministry serves?  Elaborating on the above, what implications or potential for policy or program improvements do you see arising from this presentation?  Are there findings that you think might not tell the whole story? Do you think there are data that may require more context?

33. DISCUSSION QUESTIONS: Session B  How do you think things may have changed since these results from 2008/2009?  Are you aware of ways that your Ministry has been addressing some of the less favorable findings discussed in this presentation? Please share with the group.  Please share some of the emerging and persistent issues that you face in your policy, program, or service delivery area. Which of these may relate to issues for other ministries as well? ­ Do you see opportunity for additional analysis that may help address these? ­ What else do you need to know? ­ Elaborating on the above, what ideas for further research or questions would you like to see explored in future projects?