1. End of Life & Palliative Care: Educational Resources for Healthcare Providers, Patients, and Families Joe Stenger, MD Barre Family Health Ctr/Worcester FMR Deborah Taylor, Ph.D. Central Maine Medical Center FMR

2. Specific End of Life Curricula

3. The Status of Medical Education in End-of- Life Care: A National Report. J Gen Int Med 2003 Students and residents in the United States feel unprepared to provide, and faculty and residents unprepared to teach, many key components of good care for the dying. Current educational practices and institutional culture in U.S. medical schools do not support adequate end-of-life care, and attention to both curricular and cultural change are needed to improve end-of- life care education. Students and residents in the United States feel unprepared to provide, and faculty and residents unprepared to teach, many key components of good care for the dying. Current educational practices and institutional culture in U.S. medical schools do not support adequate end-of-life care, and attention to both curricular and cultural change are needed to improve end-of- life care education.

4. Education in Palliative and End-of-life Care 1999 curriculum (free) other supporting materials Northwestern University http://www.epec.net/EPEC/Webp ages/Ecommerce/categoryDetail.c fm?categoryID=product http://www.epec.net/EPEC/Webp ages/Ecommerce/categoryDetail.c fm?categoryID=product

5. Veterans Administration Charleston Medical Center, South Carolina Veterans Administration Charleston Medical Center, South Carolina Residency curriculum development Residency curriculum development Goals, objectives, teaching methods, evaluation, bibliography - Compendium of articles about residency EOL curriculum development: Goals, objectives, teaching methods, evaluation, bibliography - Compendium of articles about residency EOL curriculum development: http://www.va.gov/oaa/flp/compendium/TableofCo ntents.asp http://www.va.gov/oaa/flp/compendium/TableofCo ntents.asp http://www.va.gov/oaa/flp/compendium/TableofCo ntents.asp http://www.va.gov/oaa/flp/compendium/TableofCo ntents.asp

6. “Improving end-of-life care: A resource guide for physician education”, Medical College of Wisconsin - $69.00 “Improving end-of-life care: A resource guide for physician education”, Medical College of Wisconsin - $69.00 “Communication teaching modules for the end-of-life educator”, Medical College of Wisconsin - $99.00 “Communication teaching modules for the end-of-life educator”, Medical College of Wisconsin - $99.00 http://www.mcw.edu/display/router.asp?do cid=3243 http://www.mcw.edu/display/router.asp?do cid=3243 http://www.mcw.edu/display/router.asp?do cid=3243 http://www.mcw.edu/display/router.asp?do cid=3243

7. U. of Washington School of Medicine Palliative Care Track of the Chronic Care Clerkship U. of Washington School of Medicine Palliative Care Track of the Chronic Care Clerkship http://www.fammed.washington.edu/palliativ ecare/ http://www.fammed.washington.edu/palliativ ecare/ http://www.fammed.washington.edu/palliativ ecare/ http://www.fammed.washington.edu/palliativ ecare/ Resource links about “A Respectful Death” Resource links about “A Respectful Death”

8. Toolkit for Nurturing Excellence at End-of-Life Transition (TNEEL), Funded by the Robert Wood Johnson Foundation; 1999-2003 Toolkit for Nurturing Excellence at End-of-Life Transition (TNEEL), Funded by the Robert Wood Johnson Foundation; 1999-2003 http://www.tneel.uic.edu/tneel.asp http://www.tneel.uic.edu/tneel.asp http://www.tneel.uic.edu/tneel.asp

9. End of Life Curriculum Project - Web-based curriculum End of Life Curriculum Project - Web-based curriculum VA Palliative Care Network/SUMMIT VA Palliative Care Network/SUMMIT Stanford University School of Medicine Stanford University School of Medicine http://www.Summit.stanford.edu/pcn/ http://www.Summit.stanford.edu/pcn/ http://www.Summit.stanford.edu/pcn/

10. University at Buffalo Palliative Medicine elective for residents and 4th year medical students University at Buffalo Palliative Medicine elective for residents and 4th year medical students one month one month Extended Standardized Patient Scenario (ESPS), like extended OSCE Extended Standardized Patient Scenario (ESPS), like extended OSCE http://www.smbs.buffalo.edu/med/intmed/esps http://www.smbs.buffalo.edu/med/intmed/espsttp://www.smbs.buffalo.edu/med/intmed/esps

11. EPERC Palliative Care Medical School Education Project EPERC Palliative Care Medical School Education Project http://www.eperc.mcw.edu/MS- PCE/Home.htm http://www.eperc.mcw.edu/MS- PCE/Home.htm http://www.eperc.mcw.edu/MS- PCE/Home.htm http://www.eperc.mcw.edu/MS- PCE/Home.htm Awards announced 2/19/2007! Awards announced 2/19/2007!

12. Websites with Multiple Resources End of Life / Palliative Education Resource Center, Medical College of Wisconsin End of Life / Palliative Education Resource Center, Medical College of Wisconsin http://www.eperc.mcw.edu/ http://www.eperc.mcw.edu/ http://www.eperc.mcw.edu/ http://www.eperc.mcw.edu/ff_index.htm http://www.eperc.mcw.edu/ff_index.htm http://www.eperc.mcw.edu/ff_index.htm http://www.eperc.mcw.edu/Educational%20M aterials/Clinical/ClinicalGuidelines.htm http://www.eperc.mcw.edu/Educational%20M aterials/Clinical/ClinicalGuidelines.htm http://www.eperc.mcw.edu/Educational%20M aterials/Clinical/ClinicalGuidelines.htm http://www.eperc.mcw.edu/Educational%20M aterials/Clinical/ClinicalGuidelines.htm http://www.eperc.mcw.edu/Educational%20M aterials/PresentationsCD.htm http://www.eperc.mcw.edu/Educational%20M aterials/PresentationsCD.htm http://www.eperc.mcw.edu/Educational%20M aterials/PresentationsCD.htm http://www.eperc.mcw.edu/Educational%20M aterials/PresentationsCD.htm http://www.eperc.mcw.edu/Educational%20M aterials/pocketguide.htm http://www.eperc.mcw.edu/Educational%20M aterials/pocketguide.htm http://www.eperc.mcw.edu/Educational%20M aterials/pocketguide.htm http://www.eperc.mcw.edu/Educational%20M aterials/pocketguide.htm

13. American Academy of Hospice and Palliative Medicine American Academy of Hospice and Palliative Medicine http://www.aahpm.org/resources/ http://www.aahpm.org/resources/ http://www.aahpm.org/resources/ http://www.aahpm.org/sites/PDA.html http://www.aahpm.org/sites/PDA.html http://www.aahpm.org/sites/PDA.html http://www.aahpm.org/sites/index.html http://www.aahpm.org/sites/index.html http://www.aahpm.org/sites/index.html

14. The National Hospice and Palliative Care Organization The National Hospice and Palliative Care Organization http://www.nhpco.org/i4a/pages/index.cfm?p ageid=3254 http://www.nhpco.org/i4a/pages/index.cfm?p ageid=3254 http://www.nhpco.org/i4a/pages/index.cfm?p ageid=3254 http://www.nhpco.org/i4a/pages/index.cfm?p ageid=3254

15. Growth House, Inc. Growth House, Inc. www.growthhouse.org www.growthhouse.org www.growthhouse.org http://www.growthhouse.org/stanford/modul es.html http://www.growthhouse.org/stanford/modul es.html http://www.growthhouse.org/stanford/modul es.html http://www.growthhouse.org/stanford/modul es.html

16. AAFP Monograph End-of-Life Care End-of-Life Care Monograph 250/251, March/April 2000 Monograph 250/251, March/April 2000 Stuart Farber, Thomas Egnew, Joan Stempel, Jan Vleck Stuart Farber, Thomas Egnew, Joan Stempel, Jan Vleck $30 with shipping $30 with shipping

17. Guidelines AAFP Policy Statement on End of Life Care AAFP Policy Statement on End of Life Care http://www.aafp.org/online/en/home/policy/p olicies/e/ethics.html http://www.aafp.org/online/en/home/policy/p olicies/e/ethics.html http://www.aafp.org/online/en/home/policy/p olicies/e/ethics.html http://www.aafp.org/online/en/home/policy/p olicies/e/ethics.html

18. Clinical Practice Guidelines for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care The National Consensus Project for Quality Palliative Care, 2004 The National Consensus Project for Quality Palliative Care, 2004 http://www.aahpm.org/NCPguidelines.pdf http://www.aahpm.org/NCPguidelines.pdf http://www.aahpm.org/NCPguidelines.pdf 76 pages, pdf 76 pages, pdf

19. Providing Hospice and Palliative Care in Rural and Frontier Areas Providing Hospice and Palliative Care in Rural and Frontier Areas National Rural Health Association, 2005 National Rural Health Association, 2005 http://www.capc.org/Rural-Toolkit-READER.pdf http://www.capc.org/Rural-Toolkit-READER.pdf http://www.capc.org/Rural-Toolkit-READER.pdf 188 pages, pdf 188 pages, pdf

20. Evaluation of Curricula National Residency End-of-Life Education Project: Project Abstracts and Progress Reports National Residency End-of-Life Education Project: Project Abstracts and Progress Reports Journal of Palliative Medicine, Jun 2005, Vol. 8, No. 3 : 646 -664, http://www.liebertonline.com/doi/abs/10.108 9/jpm.2005.8.646 Journal of Palliative Medicine, Jun 2005, Vol. 8, No. 3 : 646 -664, http://www.liebertonline.com/doi/abs/10.108 9/jpm.2005.8.646 http://www.liebertonline.com/doi/abs/10.108 9/jpm.2005.8.646 http://www.liebertonline.com/doi/abs/10.108 9/jpm.2005.8.646 400 residencies have participated 400 residencies have participated

21. End-of-Life Curriculum Reform: Outcomes and Impact in a Follow-Up Study of Internal Medicine Residency Programs End-of-Life Curriculum Reform: Outcomes and Impact in a Follow-Up Study of Internal Medicine Residency Programs Journal of Palliative Medicine, Aug 2002, Vol. 5, No. 4 : 497-506, Weissman, David E. et al. Journal of Palliative Medicine, Aug 2002, Vol. 5, No. 4 : 497-506, Weissman, David E. et al. http://www.liebertonline.com/doi/abs/10.1089/109 662102760269733 http://www.liebertonline.com/doi/abs/10.1089/109 662102760269733 http://www.liebertonline.com/doi/abs/10.1089/109 662102760269733 http://www.liebertonline.com/doi/abs/10.1089/109 662102760269733 The study suggests that focused training in EOL teaching methods and institutional change strategies can facilitate EOL curriculum reform. The study suggests that focused training in EOL teaching methods and institutional change strategies can facilitate EOL curriculum reform.

22. End-of-Life Care in the Curriculum: A National Study of Medical Education Deans End-of-Life Care in the Curriculum: A National Study of Medical Education Deans Academic Medicine. 79(8):760-768, August 2004. Academic Medicine. 79(8):760-768, August 2004. Sullivan, Amy M. EdD; Warren, Anne G.; Lakoma, Matthew D.; Liaw, Karen R. MD; Hwang, David; Block, Susan D. MD. Sullivan, Amy M. EdD; Warren, Anne G.; Lakoma, Matthew D.; Liaw, Karen R. MD; Hwang, David; Block, Susan D. MD. http://academicmedicine.org/pt/re/acmed/abstract.00001888 -200408000- 00011.htm;jsessionid=F2QMJ4TXTvJ8LTJssLgqy0lz7pC86DxL B7M42GGWZ82hv24XHwys!1416047858!-949856144!8091!-1 http://academicmedicine.org/pt/re/acmed/abstract.00001888 -200408000- 00011.htm;jsessionid=F2QMJ4TXTvJ8LTJssLgqy0lz7pC86DxL B7M42GGWZ82hv24XHwys!1416047858!-949856144!8091!-1 http://academicmedicine.org/pt/re/acmed/abstract.00001888 -200408000- 00011.htm;jsessionid=F2QMJ4TXTvJ8LTJssLgqy0lz7pC86DxL B7M42GGWZ82hv24XHwys!1416047858!-949856144!8091!-1 http://academicmedicine.org/pt/re/acmed/abstract.00001888 -200408000- 00011.htm;jsessionid=F2QMJ4TXTvJ8LTJssLgqy0lz7pC86DxL B7M42GGWZ82hv24XHwys!1416047858!-949856144!8091!-1

23. Planning for the evaluation of a pediatric end-of-life curriculum. Planning for the evaluation of a pediatric end-of-life curriculum. Journal of Palliative Medicine. 2000 Winter; 3 (4):487-92. Journal of Palliative Medicine. 2000 Winter; 3 (4):487-92. Feldman, J. & Slavin, S. Feldman, J. & Slavin, S. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cm d=Retrieve&db=PubMed&list_uids=15859704&dop t=Abstract http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cm d=Retrieve&db=PubMed&list_uids=15859704&dop t=Abstract http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cm d=Retrieve&db=PubMed&list_uids=15859704&dop t=Abstract http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cm d=Retrieve&db=PubMed&list_uids=15859704&dop t=Abstract

24. Self-Study Guides / CME UNIPAC Book Series: Hospice/Palliative Care Training for Physicians”, A Self Study Program, CD-ROM, $225 + S&H, 48 CME credits, 8 volumes UNIPAC Book Series: Hospice/Palliative Care Training for Physicians”, A Self Study Program, CD-ROM, $225 + S&H, 48 CME credits, 8 volumes http://www.aahpm.org/bookstore/unipacflyer.pdf http://www.aahpm.org/bookstore/unipacflyer.pdf http://www.aahpm.org/bookstore/unipacflyer.pdf EPEC Online Learning (Education in Palliative and End- of-life Care EPEC Online Learning (Education in Palliative and End- of-life Care http://www.epec.net/EPEC/webpages/index.cfm http://www.epec.net/EPEC/webpages/index.cfm http://www.epec.net/EPEC/webpages/index.cfm Palliative Care: A Self-Study CME Course Palliative Care: A Self-Study CME Course http://www.eperc.mcw.edu/Educational%20Materials /CMECD.htm http://www.eperc.mcw.edu/Educational%20Materials /CMECD.htm http://www.eperc.mcw.edu/Educational%20Materials /CMECD.htm http://www.eperc.mcw.edu/Educational%20Materials /CMECD.htm http://www.smbs.buffalo.edu/med/intmed/eol/CME- MCW.doc http://www.smbs.buffalo.edu/med/intmed/eol/CME- MCW.doc http://www.smbs.buffalo.edu/med/intmed/eol/CME- MCW.doc http://www.smbs.buffalo.edu/med/intmed/eol/CME- MCW.doc

25. Professional Development Courses Center for Palliative Care, Harvard Medical School Center for Palliative Care, Harvard Medical School http://www.hms.harvard.edu/cdi/pallcare/pcep.htm http://www.hms.harvard.edu/cdi/pallcare/pcep.htm http://www.hms.harvard.edu/cdi/pallcare/pcep.htm Center to Advance Palliative Care website (Prof. Dev. Section), supported by Mt Sinai School of Medicine, New York City Center to Advance Palliative Care website (Prof. Dev. Section), supported by Mt Sinai School of Medicine, New York City http://www.capc.org/palliative-care-professional- development http://www.capc.org/palliative-care-professional- development http://www.capc.org/palliative-care-professional- development http://www.capc.org/palliative-care-professional- development Palliative Care Leadership Centers Palliative Care Leadership Centers http://www.capc.org/palliative-care-leadership- initiative http://www.capc.org/palliative-care-leadership- initiative http://www.capc.org/palliative-care-leadership- initiative http://www.capc.org/palliative-care-leadership- initiative

26. Texts Pocket Guide to Hospice/Palliative Medicine Pocket Guide to Hospice/Palliative Medicine Hospice and Palliative Medicine: Core Curriculum and Review Syllabus Hospice and Palliative Medicine: Core Curriculum and Review Syllabus http://www.aahpm.org/bookstore/index.html http://www.aahpm.org/bookstore/index.html http://www.aahpm.org/bookstore/index.html Palliative and End-of-Life Pearls, Heffner and Byock Palliative and End-of-Life Pearls, Heffner and Byock http://www.dyingwell.org/pearls.htm http://www.dyingwell.org/pearls.htm http://www.dyingwell.org/pearls.htm

27. Information Guides & Papers Improving your end-of-life care practice Improving your end-of-life care practice Americans for Better Care of the Dying, American College of Physicians/American Society of Internal Medicine Americans for Better Care of the Dying, American College of Physicians/American Society of Internal Medicine http://www.acponline.org/ethics/end_care.pdf http://www.acponline.org/ethics/end_care.pdf http://www.acponline.org/ethics/end_care.pdf Pain management pocket card from Fairview University Pain management pocket card from Fairview University http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals /pain-tool-fairview.pdf http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals /pain-tool-fairview.pdfhttp://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals /pain-tool-fairview.pdfhttp://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals /pain-tool-fairview.pdf

28. Print/Video Resource Databases Library Catalog of “The Project on Death in America” Library Catalog of “The Project on Death in America” searchable database of EOL books, reports and videos searchable database of EOL books, reports and videos http://library.soros.org/dbtw-wpd/library_pdia.htm http://library.soros.org/dbtw-wpd/library_pdia.htm http://library.soros.org/dbtw-wpd/library_pdia.htm

29. Information Resources for Patients and Families Ira Byock’s website Ira Byock’s website http://www.dyingwell.org/ http://www.dyingwell.org/ http://www.dyingwell.org/ American Cancer Society American Cancer Society End of Life Care Fact Sheet – End of Life Care Fact Sheet – http://www.cancer.gov/cancertopics/factsheet/Sup port/end-of-life-care http://www.cancer.gov/cancertopics/factsheet/Sup port/end-of-life-care http://www.cancer.gov/cancertopics/factsheet/Sup port/end-of-life-care http://www.cancer.gov/cancertopics/factsheet/Sup port/end-of-life-care Support resources links for families: Support resources links for families: http://www.cancer.gov/cancertopics/factsheet/Sup port http://www.cancer.gov/cancertopics/factsheet/Sup port http://www.cancer.gov/cancertopics/factsheet/Sup port http://www.cancer.gov/cancertopics/factsheet/Sup port

30. Information Resources for Patients and Families Lay Grief and Bereavement Resources for Families (Fairview Press) Lay Grief and Bereavement Resources for Families (Fairview Press) http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/gr ief_resources_fairview.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/gr ief_resources_fairview.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/gr ief_resources_fairview.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/gr ief_resources_fairview.doc Family Decision Making Advice Family Decision Making Advice http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/fa mily_decision_guide.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/fa mily_decision_guide.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/fa mily_decision_guide.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/fa mily_decision_guide.doc

31. Information Resources for Patients and Families “What is Palliative Care?” Information sheet for Families “What is Palliative Care?” Information sheet for Families http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/w hat_is_pc.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/w hat_is_pc.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/w hat_is_pc.doc http://www.capc.org/palliative-care-professional- development/Education_Material_for_Professionals/w hat_is_pc.doc Patient Education and Caring: End-of-Life (PEACE) Series – American College of Physicians Patient Education and Caring: End-of-Life (PEACE) Series – American College of Physicians http://www.acponline.org/ethics/patient_education.ht m http://www.acponline.org/ethics/patient_education.ht m http://www.acponline.org/ethics/patient_education.ht m http://www.acponline.org/ethics/patient_education.ht m