1. 1 1 New Jersey Caregiver Support Pilot Program: Testing Integrated Caregiver Support Within ADRC’s Kathleen Kelly, MPA Executive Director Family Caregiver Alliance 180 Montgomery Street Ste 1100 San Francisco CA 94104 800.445.8106 www.caregiver.org

2. 2 3 Bringing Professionals Together to Support Family Caregivers: Phase 1 A unique partnership among the AARP Foundation, the American Journal of Nursing, the Council on Social Work Education, the Family Caregiver Alliance, and Rutgers Center for State Health Policy Funding from the John A. Hartford Foundation and the Jacob & Valeria Langeloth Foundation

3. 3 3 State of the Science Objectives: define existing evidence used to guide nurses and social workers in supporting family caregivers of older adults Identify competencies needed to support family caregivers, and methods to develop them Identify promising nursing and social work interventions to assist caregivers, as well as strategies to increase the ability of nurses and social workers to provide support to caregivers

4. 4 5 Invitational State of the Science Symposium 2008 interdisciplinary symposium of 50 RNs, SWs, family caregiver researchers, and others Presentations of peer reviewed papers summarizing the “state of the science” Recommendations from the symposium circulated to all participants for feedback Report published as supplement to Sept. 2008 AJN and as special issue of JSWE

5. 5 8 Focusing on a “Family-Friendly” Paradigm In a joint press release, the partners pledged to collaborate with families in new ways to: Improve families’ ability to better manage everyday care responsibilities Reduce caregivers’ own burdens and health risks Promote better quality for both the older adults receiving care and the family members providing it

6. 6 7 Professional Partners Supporting Family Caregivers Phase 2 Funded by The John A. Hartford Foundation Partners: – U.S. Administration on Aging – Family Caregiver Alliance – National Association of Social Workers (NASW) – Technical Assistance provided by The Lewin Group and the Hilltop Institute at the University of Maryland Baltimore County – Project: – New Jersey Care Partners Support Pilot Project

7. 7 3 Why New Jersey? History of caregiver support programs - state funded since 1980’s Tradition of using federal initiatives to shape system development efforts in state Process of developing ADRC’s in every AAA in the state Saw a need to integrate caregivers within all home and community based services shifting the paradigm to person and family centered services

8. 8 9 – The goal of the Pilot is to improve caregiver knowledge and skills through access to information, training and services for informal caregivers of those adults receiving HCBS waiver services. Pilot includes: brief caregiver questionnaire (context, direct care, troublesome behaviors, self-care, informal supports) tailored information and referral to services two follow up calls from Care Manager Pilot design recognizes the constrained resource environment facing state and local services Builds from the policy recommendation that caregivers should be integrated into health and social service systems - particularly if those systems rely on informal caregivers to provide LTC New Jersey Care Partners Support Pilot

9. 9 11 How Does it Work? Self-administered questionnaire at time of care plan, monthly visit or yearly reassessment Caregiver Action Plan - quick scan and check boxes Four areas to query: direct care of relative/friend; management of troublesome behaviors; caregiver self-care; increasing informal supports Provided to caregiver: information and referral module(s) related to the four topic areas; brief resource listing; article(s) on identified topics Care Manager is to provide encouragement, information, recognition and to check back in with the caregiver over next two months

10. 10 How Does it Work? – Staff receive 6 hours of training on caregiver assessment and needs; caregiver questionnaire and how to use the results to tailor a response; protocols of the evaluation component – All materials to be used by the Care Managers have been developed or assembled (articles used by permission) by Family Caregiver Alliance – Expectation that pilot will have 130 caregivers enrolled within 3+ months and the pilot test will take place in 4 counties: Warren, Mercer, Monmouth, Atlantic 13

11. 11 5 Pilot Evaluation – The Hilltop Institute, University of Maryland, Baltimore County will conduct the evaluation – Evaluation will focus two areas: – Outcomes: whether caregivers used services, attended trainings/support groups and improved skills/coping with relative/friend; – Process: care managers pre/post knowledge levels re: caregiver assessment/needs; materials/process for caregiver interactions – Telephone interviews with FCA, ADRC Directors

12. 12 10 Pilot Timelines Training for Care Managers mid-February Pilot to begin enrolling caregivers March 1, 2011 Technical assistance and conference calls to Care Managers on materials, process Month 1 and 2 Evaluation questionnaires to caregivers 3 months post-enrollment Survey to Care Managers at 6 months Evaluation to be completed by end of 2011

13. 13 3 Professional Partners Supporting Family Caregivers Phase 2 – Funded by The Jacob & Valeria Langeloth Foundation – Partners: New York University/Hartford Institute for Geriatric Nursing’s Nurses Improving Care for Healthsystem Elders program (NICHE) & American Journal Of Nursing Pilot and test family-centered practices at selected (NICHE) sites. Develop and disseminate a web-based toolkit based on work from focus groups Expansion of Evidence-Based Geriatric Nursing Protocol for Best Practice in Caregiving Resource guide of family-centered practices Interdisciplinary Training Module on Family-Centered practices Registered Nurse Training Family Caregiving Module

14. © 2010 Family Caregiver Alliance 14 In partnership with ARCH National Respite and Resource Center and the U.S. Administration on Aging to offer support and technical assistance to the Aging and Lifespan Respite Networks for caregiver program development

15. © 2010 Family Caregiver Alliance 15 Two robust websites with national databases of respite and model caregiver support programs and materials www.caregiver.Org & www.archrespite.orgwww.caregiver.Orgwww.archrespite.org

16. © 2010 Family Caregiver Alliance 16 Training materials and workshops Specialized technical assistance through phone calls, emails and in-person communication Monthly online Newsletter

17. © 2010 Family Caregiver Alliance 17 You can further shape the activities of the TA Centers to closely match your interests. Visit our website www.caregiver.orgwww.caregiver.org and give us your feedback.

18. © 2010 Family Caregiver Alliance 18 Training materials and workshops Specialized technical assistance through phone calls, emails and in-person communication Bimonthly online Newsletter

19. © 2010 Family Caregiver Alliance 19 You can further shape the activities of the TA Centers to closely match your interests. Visit our website www.caregiver.orgwww.caregiver.org and give us your feedback.

20. 20 14 More Information Contact: Family Caregiver Alliance National Center on Caregiving 180 Montgomery Street Ste 1100 San Francisco CA 94104 800.445.8106 www.caregiver.org Visit our public policy section on our website Sign up for Caregiver Policy Digest