1. Personal Health Records CT TEFT Grant

2. Agenda Introductions TEFT grant Overview Personal Health Records (PHRs) The PHR Interest Survey

3. The CT TEFT HIT Team Dawn Lambert- Grant Manager Minakshi Tikoo – State HIT Coordinator/Project Director Rachel Rusnak Ben Abrahamsson Giuseppe Macri 2

4. TEFT Grant Components Continued Experience of Care Survey Field test a beneficiary experience survey within multiple CB-LTSS programs. FASI tool Field test a modified set of Functional Assessment Standardized Items measures with CB-LTSS beneficiaries. Personal Health Records Select, offer, and demonstrate the use of personal health record (PHR) systems with beneficiaries of CB- LTSS. Standards & Interoperability Framework Identify, evaluate and harmonize an e-LTSS standard in conjunction with the Office of National Coordinator’s (ONC) Standards and Interoperability (S&I) Framework 3

5. What is a Personal Health Record? A person-centered, electronic, health management tool. Owned and managed by the consumer, or their appointed proxy Secure & Private May be shared at the consumer’s discretion Contains only the information that the consumer deems relevant “An ideal PHR would provide a complete and accurate summary of the health and medical history of an individual by gathering data from many sources and making this information accessible online to anyone who has the necessary electronic credentials to view the information.” CMS 5

6. Sample PHR Page 6

7. Personal Health Records In the TEFT Grant Connecticut’s Plan: Seek consumer, caregiver, and provider input - completed Compile, analyze, and utilize input to inform project decisions - completed Select one or more PHR’s which address consumer needs – in progress Offer a free PHR account to Medicaid CB-LTSS recipients – Need your help! Evaluate utility of the PHR, and gather feedback from participants – next year Adhere to state and federal privacy, security and consent laws, mandates, standards and best practices. Connecticut’s Goal: Demonstrate the use of a Personal Health Record (PHR) system with beneficiaries of CB-LTSS. 7

8. Expected PHR Pilot Timeline TaskStartEnd Hold Town hall Meetings11/17/146/1/15 Introduce TC’s to PHR Interest Survey11/20/151/1/16 Pilot PHR Interest Survey12/1/1512/31/15 Revise survey based on feedback1/1/161/30/16 Deploy PHR Interest Survey2/1/1612/31/16 Offer PHRs5/1/1612/31/16 Evaluate PHR use6/1/1611/1/18

9. The PHR Interest Survey 7

10. Shadowing Thanks for letting us shadow you! Shadowing allowed us to: 1.Pilot survey questions 2.Obtain TC feedback on when to conduct survey 8

11. PHR Interest Survey Paper Form 9

12. Web Form of PHR Interest Survey 12

13. Where is this survey? 10

14. Survey Location Cont. 11

15. PHR Information Post Card 13

16. We need your input! Questions to consider: 1. Would it be easier to have just the paper survey or web form? 2. Are the survey reminders in a natural location on the reporting site? 3. Is there anything you would like us to share with you? 4. What do you think would make administering this survey as hassle free as possible? 5. Would you like training on the selected PHRs?

17. Questions? 14

18. Contact Us Minakshi Tikoo Minakshi.Tikoo@uconn.edu (860)679-5559 Rachel Rusnak Rachel.Rusnak@uconn.edu (860)679-7317 Giuseppe Macri Giuseppe.Macri@uconn.edu (860)679-7314 Ben Abrahamsson Benjamin.Abrahamsson@uconn.edu (860) 679-2643 18 http://www.ct.gov/dss/cwp/view.asp?a=3922&q=554932 http://www.ct.gov/dss/healthit Health IT CT Websites