1. What data are collected? How, and who by? Karen Graham and Barry Plewa

2. Datasets and Data Collections NCIN - Cancer Data Roadshow Public Health England | 2015

3. Primary Data Sources Exports / Uploads RadiologyPathologyPASCancer Mgt systems E prescribing RadiotherapyPalliative care COSDDIDSCWTCOSDSACTHES / Pbr Screening 3 Audits 5 RTDSPalliative Care

4. Primary Data Sources Exports / Uploads RadiologyPathologyPASCancer Mgt systems E prescribing RadiotherapyPalliative care COSDDIDSCWTCOSDSACTHES / Pbr Screening 3 Audits 5 RTDSPalliative Care

5. NCIN - Cancer Data Roadshow Public Health England | 2015 Cancer Waiting Times (CWT) - 2001 Upcoming Changes  Version 9 of the Cancer Waiting Times: A Guide is being updated.  A draft can be viewed on the CWT table  There will be two new data from March 2016 onwards:  NHS NUMBER STATUS INDICATOR CODE  REFERRAL REQUEST RECEIVED DATE (INTER-PROVIDER TRANSFER).  Data submissions are also set to change from CSV to XML submissions in March 2016.

6. NCIN - Cancer Data Roadshow Public Health England | 2015 Cancer Waiting Times (CWT) - 2001 The quarterly reports can be found: http://www.england.nhs.uk/statistics/statistical-work-areas/cancer-waiting-times/ Guidance documents can be found: http://nww.hscic.gov.uk/nhais/cancerwaiting/documentationhttp://nww.hscic.gov.uk/nhais/cancerwaiting/documentation. Cancer Waiting Times: A Guide — Version 8.0 National Cancer Waiting Times User Manual - v6.1 National Cancer Waiting Times Reports User Manual - Version 1.0 Further questions and queries E- mail cancer-waits@dh.gsi.gov.uk Phone 01392 251289.

7. NCIN - Cancer Data Roadshow Public Health England | 2015 National Audits Key points  Lung Cancer – Royal College of Physicians in partnership with the National Cancer Registration Service (NCRS) - New contract for 2015  Colorectal Cancer – Royal College of Surgeons with the Health and Social Care Information Centre (HSCIC)  Head & Neck Cancer - Contract not awarded  Upper GI Cancer - on going contract until 2016  Prostate Cancer - began 2014 in partnership with NCRS  Breast Cancer - likely to be commissioned in 2015

8. NCIN - Cancer Data Roadshow Public Health England | 2015 National Lung Cancer Audit (NLCA) - 2015  New contracts awarded December 2014: From 2015 is now run by the Royal College of Physicians in partnership with NCRS  Will utilise COSD as its primary data source.  Feedback on completeness to trusts May 2015.  Annual Report December 2015.  PROMS/PREMS element in development. www.rcplondon.ac.uk/resources/national-lung-cancer-audit nlca@rcplondon.ac.uk

9. NCIN - Cancer Data Roadshow Public Health England | 2015 National Prostate Cancer Audit (NPCA) - 2014  New model for cancer audits  Partnership between NCRS and professional bodies  Near real time data collection from MDT’s  Data set largely collected as part of routine flows  NCRS produces linked audit datasets for analysis

10. NCIN - Cancer Data Roadshow Public Health England | 2015 National Prostate Cancer Audit (NPCA) - 2014

11. NCIN - Cancer Data Roadshow Public Health England | 2015 Diagnostic Imaging Dataset (DIDs) - 2012  Record-level data from NHS Radiology Information Systems (RIS) relating to diagnostic imaging activity in hospitals in England.  Health and Social Care Information Centre (HSCIC) collect data on a monthly basis. It is linked to Hospital Episodes Statistics for fuller analysis.  NHS users may apply for access to the DID via HSCIC’s iView reporting tool. Details of this and the collection are at: http://www.hscic.gov.uk/DIDhttp://www.hscic.gov.uk/DID  Results are analysed and published by NHS England in provisional monthly summary reports and a final annual release, at: http://www.england.nhs.uk/statistics/statistical-work-areas/diagnostic-imaging- dataset/ http://www.england.nhs.uk/statistics/statistical-work-areas/diagnostic-imaging- dataset/

12. NCIN - Cancer Data Roadshow Public Health England | 2015 Diagnostic Imaging Dataset (DIDs) - 2012 Ultrasound activity by number of days from date of test request to date of test, by source of referral, 2013/14 Average period from date of test to date test report issued for Chest X- ray, by provider, 2013-14

13. Cancer Outcomes & Services Dataset (COSD) - 2013-15  Phased Rollout: January 2013 – January 2015  New Dataset: Incorporating Registration Data  Aligned and Rationalised with Other Cancer Datasets  Core Data Set and Site Specific Items  Intended to Record Key Data from the Entire Patient Pathway  Requires Monthly Submission from Trusts  Recent Implementation of Feedback and Quality Reporting Back to Trusts  RCPath aligning with COSD NCRS - Cancer Data Roadshow Public Health England | 2015

14. Cancer Outcomes & Services Dataset (COSD) - 2013-15 NCRS - Cancer Data Roadshow Public Health England | 2015

15. Cancer Outcomes & Services Dataset (COSD) - 2013-15 NCRS - Cancer Data Roadshow Public Health England | 2015

16. Radiotherapy Dataset (RTDS) - 2009  Previously collected and compiled by National Clinical Analysis and Specialised Applications Team (NatCanSat)  Data will be collected and compiled by NCRS from April 2016  For 2015/16 data will be submitted to both NatCanSat and NCRS  XML schema in development NCRS - Cancer Data Roadshow Public Health England | 2015

17. Systemic Anti-Cancer Therapy (SACT) - 2012-14 Currently collected by the Chemotherapy Intelligence Unit in Oxford (CIU) http://www.chemodataset.nhs.uk/ Kellie Peters will be leaving Public Health England on 25 th March 2015. Martine Bomb (martine.bomb@phe.gov.uk) has been seconded from CR-UK for 6- months for 3 days per week, taking on the SACT programme lead role.martine.bomb@phe.gov.uk NCRS - Cancer Data Roadshow Public Health England | 2015

18. Systemic Anti-Cancer Therapy (SACT) - 2012-14 NCRS - Cancer Data Roadshow Public Health England | 2015 Data completeness by diagnostic group Data completeness Trust Profile Data Quality Trust Profile

19. Data Flows to NCRS Understanding Data Flows NCRS - Cancer Data Roadshow Public Health England | 2015

20. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Audit NHS Acute Trust Regional Office Trust Data Streams to Regional Office NCRS - Cancer Data Roadshow Public Health England | 2015

21. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office COSD Data The primary area of focus for most improvement work during and before 2013. NCRS - Cancer Data Roadshow Public Health England | 2015

22. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office PAS, Pathology & Radiology NCRS - Cancer Data Roadshow Public Health England | 2015

23. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office Radiotherapy Reviewing a new project aiming for direct data feeds from Radiotherapy to NCRS. NCRS - Cancer Data Roadshow Public Health England | 2015

24. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office Audit and CWT Open Exeter NCRS - Cancer Data Roadshow Public Health England | 2015

25. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Open Exeter Encore Audit NHS Acute Trust Regional Office Oxford Chemotherapy NCRS - Cancer Data Roadshow Public Health England | 2015

26. Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Open Exeter Encore Audit NHS Acute Trust Regional Office ONS Oxford Death Certificates Death Cert NCRS - Cancer Data Roadshow Public Health England | 2015

27. FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC JANUARY Data COSD / Path January: Level 1 NHS Trust JAN NCRS Level 1 Report NCRS Reporting Portal NCRS - Cancer Data Roadshow Public Health England | 2015

28. JAN FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS JANUARY Data January: Level 2 Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS NHS Trust NCRS - Cancer Data Roadshow Public Health England | 2015

29. JAN FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS JANUARY Data January: Level 3 Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS NHS Trust AUG NCRS - Cancer Data Roadshow Public Health England | 2015

30. JAN MAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS FEBRUARY Data February Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS SEP NHS Trust FEB NCRS - Cancer Data Roadshow Public Health England | 2015

31. JANFEBMAR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS MARCH Data March Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS OCT NHS Trust APR MAR NCRS - Cancer Data Roadshow Public Health England | 2015

32. NCRS Portal NCIN - Cancer Data Roadshow Public Health England | 2015