2. Specialist Nurse Trainers for Children with Disabilities

3. Meet the team

4. Service available to child/YP:- Living in Lincolnshire Registered with a Lincolnshire GP Under care of a Lincoln Hospital Consultant Accessing a Lincolnshire Provider Age 0 – 19 years*

5. The Need to Service Development Best Value Review (2001) Better Services for Disabled Children in Lincolnshire Lack of training and support Increasing number of children

6. The Children's Fund Project Proposal (2002) Commenced January 2003 Initially funded until 31st March 2004 5 - 13 year age group Suggested max number of children approx 50

7. Service supports Child with any disability with a physical health need Tracheostomy Gastrostomy NG tube Requiring rectal Diazepam/buccal Midazolam Intermittent Catheterisation Oral suction

8. Oxygen dependency/therapy Emergency injections (Hydrocortisone) Blood sugar testing (not for diabetes)

9. Service Priorities Training and support –Cohesive, comprehensive, regularly reviewed Resources –Training material –Information

10. Beneficiaries Children –Safe, consistent care - evidence based –Involved in training

11. School Staff/Carers –Opportunity to gain skills –Provide safe, consistent care –Regular reviews

12. Parents –Increased confidence in school/nursery/transport staff –Involved in training –Reviewing training packages

13. School Health Nurses/Other professionals –Able to update own practice –Access to information and resources

14. Service available to School staff/after school clubs etc. Nurseries/Childminders School transport teams Social Care staff and foster carers STRUT House/Haven Cottage Voluntary agencies - AFC, SENSE, STRUT in the Community

15. Children receiving domiciliary care from LCHS Children entitled to care funded by Continuing Health Care – either PHB or agency carers Children entitled to care funded by Direct Payment (Social care) Short Breaks Providers

16. Facts and figures Approx 800 children/young people From April 2014 - March 2015 1736 training sessions Over 3000 individuals trained

17. Referral to service Referrals taken from:- Families Schools/nurseries Social Care Continuing Care Short Breaks Providers

18. Consent Verbal Consent from parents Written consent/service information Enables access to medical records to ensure child specific training

19. Training General or child specific Theory Practical demonstration/support Competency assessment Annual review/refresher

20. Team contacts Office – 01522 521186 Mobiles:- Julie Dixon07900 604951 John Gowans 07900 605794 Helen Moig07833 400874 Jenna Humphrey07795 641996 Julie Smith07824 835500 Fiona Guinness07976 210705

21. Team base St Francis School Wickenby Crescent Lincoln LN1 3TJ

22. Any questions?

23. Epilepsy What is epilepsy? Epilepsy is a tendency to have recurrent seizures normally diagnosed after 2 or more seizures Idiopathic/cryptogenic – no known cause Symptomatic – damage to brain from variety of reasons

24. Epilepsy Support Affects 1:80 children/young people 75 people per day diagnosed in UK 40 types of seizure

25. Epilepsy Support Impact varies Need for support varies Myths and misconceptions Stigma

26. Epilepsy Support Risk assessment Adult support Emergency medication