1. The Research & Evidence Domain Dr Sophie Staniszewska Dr Sandy Herron-Marx First Annual Involvement to Impact Conference London, 28/29th November 2007

2.  Background - The NCI  The Research and Evidence Team – who we are  The way we work  Aims of the Research and Evidence domain  How we achieve our aims  Achievements to date  Your involvement – small group work Outline

3.  Response to an European-wide Tender  Successful Consortium  University of Warwick  LTCA - an alliance for health  Centre for Public Scrutiny  The Centre announced in May 2006  The Health Minister Rosie Winterton  Formal launch November 2006  Funded for three years The NHS Centre for Involvement

4.  Promote the value of patient and public involvement  Create a one stop shop for information and advice  Build the capacity of organisations, staff and patient-citizens  Develop and disseminate practical resources  Generate evidence-based models & best practice examples  Identify and maximise learning opportunities  Develop networks and communities of interest  Practice what we preach The aims of the Centre

5.  Dr Sophie Staniszewska - Strategic Lead for Research, Principal Research Fellow  Dr Sandy Herron-Marx - Operational Lead for Research, Principal Research Fellow  Dr Paul Dorfman - Senior Research Fellow  Paul Bagley - Researcher  Helen Bayliss – Researcher  Research Fellow/ Senior Research Fellow – Evidence Review (appointing)  Colleagues from other domains NCI Research & Evidence Team

6. The way we work NCI Research Team Project Affiliates People Bank Other NCI Domains Project Collaborators Project Contractors Expert Advisory Group

7. Research and evidence aims  Respond to the changing face of NHS policy and practice (e.g. LINks)  Embed relevant policy and practice within all our work  Identify and develop evidence that informs and supports good PPI practice  Dissemination  Work in inclusive ways to enable this to happen

8. How we achieve our research aims Four main themes Theme 1 Creating a research & evidence base culture  This is an overarching theme and helps to create an environment that supports and stimulates research and evidence for PPI  Ensuring we have appropriate infrastructure and appropriate ways of working

9. How we achieve our aims Theme 2 Evidence/Knowledge for PPI  This theme is about building a strong evidence base for PPI e.g.  evidence around impact of involvement, measuring involvement, principles for involvement

10. How we achieve our aims Theme 3 Evidence into practice  This theme is about the process of how people learn about PPI and how evidence is disseminated and used in practice e.g.  the mapping of learning for PPI  attitudes of key health workers to PPI, the barriers and enablers and career pathways of users within PPI

11. How we achieve our aims Theme 4 Understanding the broader context around PPI  This theme is about understanding the state of PPI, the context in which PPI operates, the organisational and professional cultures.  National surveys of PPI  PPI in commissioning  Nurses perspectives of PPI

12.  Working with other domains in the NCI  Developing infrastructure  Generating evidence for good practice  Contributing to the national PPI agenda Some achievements to-date

13. Your involvement  Small group activity  Discuss the following: Have we got the balance right? Have we missed anything out? What are the most important outputs that you would like the NCI research team to produce? How would you like to be involved in the future?  Feedback to large group and question for the panel

14.  Modelling and facilitating transformation  Building capacity  Supporting a sustainable approach to change  Contact us at: nhscentreforinvolvement@warwick.ac.uknhscentreforinvolvement@warwick.ac.uk  See our website: www.nhscentreforinvolvement.nhs.ukwww.nhscentreforinvolvement.nhs.uk  Tel number: 02476150266  sophie.staniszewska@warwick.ac.uk sophie.staniszewska@warwick.ac.uk  sandy.herron-marx@warwick.ac.uk sandy.herron-marx@warwick.ac.uk The NHS Centre for Involvement