1. WTF?... (Where to Find?...) How to Navigate the Information Maze to Access Evidence- based Public Health Preparedness Information

2. Presenter Siobhan Champ-Blackwell, MSLIS Disaster Information Management Research Center Specialized Information Services U.S. National Library of Medicine National Institutes of Health 2

3. Disaster Information Management Research Center (DIMRC) Mission To develop and provide access to health information resources and technology for disaster preparedness, response, and recovery Connect people to quality disaster health information and foster a culture of community resiliency St. John’s Hospital, Joplin, MO after 2011 tornado 3

4. It’s Everywhere! 4

5. Managing the Flow of Information 5

6. Scenario You are in charge of emergency preparedness and response for your health department. Your community is in a coastal region with significant vulnerabilities to hurricanes. You are charged with finding health information to supplement your existing hurricane response plan. 6

7. Getting Started What information needs can you identify in our scenario based on possible health consequences? 7

8. DIMRC Web Site https://sis.nlm.nih.gov/dimrc.html 8

9. Getting Started: Information Needs Possible health information needs Flooding Injury/illness Mold Water contamination Medical surge Evacuation Mental health/coping issues ??? 9

10. Getting Started: Beginning the Search Who would do it? What would you/they look for? Where would you/they look? 10

11. Disaster Health Information Peer-reviewed scholarly literature Journal articles Books “Grey” Literature Reports Summaries Surveillance data Training materials Conference proceedings 11

12. Grey Literature Formal definition: “That which is produced on all levels of government, academics, business, and industry in print and electronic formats, but which is not controlled by commercial publishers.” Working definition: Not in PubMed. Disaster Lit: NLM home of grey literature about disaster public health and medicine. 12

13. What is “Good Information”? The “CRAP” test: * Currency - –How recent is the information? –How recently has the website been updated? –Is it current enough for your topic? * Reliability –What kind of information is included in the resource? –Is content of the resource primarily opinion? Is it balanced? –Does the creator provide references or sources for data or quotations? * Authority - –Who is the creator or author? –What are the credentials? –Who is the published or sponsor? –Are they reputable? –What is the publisher's interest (if any) in this information? –Are there advertisements on the website? * Purpose/Point of View - –Is this fact or opinion? –Is it biased? –Is the creator/author trying to sell you something? 13

14. NLM Selection Guidelines Authoritative and Credible Source Relatively Current No Point of View/No Advertisements Audience Appropriate Accessible and Available Language Appropriate 14

15. Information Tool Kit NLM/DIMRC Information Guides Disaster Lit PubMed Emergency Access Initiative (EAI) 15

16. Disaster Information Guides Event/incident types Disaster-related topics Specific/named events 16

17. Example of Information Guide Information resources selected from many types of government, private, NGO, international sources Focus is on professional level resources not consumer https://sis.nlm.nih.gov/enviro/hurricane.html 17

18. Example of Categories of Information on Information Guides 18

19. Info Guides: Infectious Diseases https://sis.nlm.nih.gov/dimrc/zikavirus.html 19

20. Example Event Type Information Guides Bioterrorism Chemical Warfare Crude Oil Spills and Health Earthquakes Extreme Heat Fires and Wildfires Floods Hurricanes Infectious Diseases: Pandemic, Epidemic and Disaster-Related Outbreaks Radiation Emergencies Climate Change Tornadoes Droughts 20

21. Example Disaster-Related Topics Coping with Disasters, Violence Disaster Apps Children and Disasters Ethics in Disaster Medicine and Public Health Mass Gatherings Disaster-Related Competencies for Healthcare Providers Animals in Disasters 21

22. Info Guides: Specific/Named Events Crude Oils Spills and Health Haiti Earthquake Health Effects from Collapse of the World Trade Center Hurricanes Katrina, Rita, and Wilma: Impact on Environmental Health Japan Earthquake, Tsunami, and Radiation Event - March 2011 Philippines Typhoon Haiyan (Yolanda) 22

23. Information Tool Kit (2) NLM/DIMRC Topic Pages Disaster Lit PubMed Emergency Access Initiative (EAI) 23

24. Disaster Lit: The Resource Guide for Disaster Medicine and Public Health Grey Literature –Training –Guidelines –Planning documents –Reports Enter search term or phrase https://disasterlit.nlm.nih.gov/ 24

25. Disaster Lit: Zika Search 25

26. Pre-formulated Disaster Lit Zika Searches

27. Disaster Lit Search: (medical OR special) needs shelters (3) 27

28. Disaster Lit Search Tips https://disasterlit.nlm.nih.gov/about.php 28

29. Disaster Lit Search Features Search features –Stemming –Boolean AND, OR, NOT –Filters Content –Over 9,000 records 29

30. What can I do with the results? Sort Change number of records per page Long or short versions of Annotations “Print this page” “Download full record” “Download brief citations” Print/download only selected records, use checkboxes 30

31. Download Full Record 31

32. Keeping Track of What’s New in Disaster Lit 32

33. Mobile Optimized Add icon to home screen: Step One Step Two Step Three 33

34. Icon on Home Screen! 34

35. What’s in Disaster Lit? Disaster medicine, disaster public health, public health emergencies, broadly defined From an approved Source 35

36. Evaluating Sources Evaluation is by DIMRC librarians and subject experts Authoritative and credible High-quality content, kept current Includes materials for a professional audience Meets reasonable expectations for Web access, usability, navigation, and availability Includes English-language materials Non-commercial, no advertising, non-advocacy http://disaster.nlm.nih.gov/enviro/enviro healthlinkscriteria.html 36

37. Tracking Source Evaluations Over 1,900 Source records –1,680 approved Sources, including all 800 U.S. state agencies with disaster-related responsibilities –100 Sources reviewed as ‘top priority’ –220 records documenting Sources not approved 37

38. Some of the “usual suspects” 38

39. Selection Guidelines for Materials From an approved Source Emphasis on substantive documents Professional audience English Free or requires free registration Resources NOT already in PubMed or MedlinePlus 39

40. Disaster Lit: Professional Audience All health professionals who may be responding to a disaster or public health emergency outside their regular duties Trained medical and humanitarian volunteers Emergency/disaster planners and responders All responders coping with public health needs Medical Reserve Corps, Community Emergency Response Teams, etc. Those responsible for special needs/vulnerable populations Health care system planners Federal, state, tribal, and local planners and responders Researchers Journalists 40

41. Tools of the ‘Selection’ Trade 41

42. Information Tool Kit (3) NLM/DIMRC Topic Pages Disaster Lit PubMed Emergency Access Initiative (EAI) 42

43. PubMed Tools https://sis.nlm.nih.gov/dimrc/medscilit.html 43

44. Information Tool Kit (4) NLM/DIMRC Topic Pages Disaster Lit PubMed Emergency Access Initiative (EAI) 44

45. Emergency Access Initiative Sample Journal Titles American journal of infection control Burns Depression and anxiety Environmental toxicology and pharmacology Journal of emergency medicine Journal of traumatic stress Sample Book Titles Merck manual of diagnosis and therapy Public health and prevention management Trauma Emergency medicine procedures Infectious diseases: the clinician’s guide to diagnosis, treatment and prevention AHFS Drug Information http://eai.nlm.nih.gov

46. Public Health Emergencies: WHO calls for sharing of data World Health Organization (WHO) Consultation held September 1-2, 2015 –Research is essential in the context of public health emergencies. –WHO seeks a paradigm shift in the approach to information sharing in emergencies.. –Representatives from major biomedical journals who attended the meeting agreed that public disclosure of information of relevance to public health emergencies should not be delayed by publication timelines http://www.who.int/medicines/ebola-treatment/ blueprint_phe_data-share-results/en/ 46

47. Sharing Data During Zika https://disasterinfo.nlm.nih.gov/dimrc/ zikavirus.html#a5 47

48. Connecting with Information Specialists https://disasterinfo.nlm.nih.gov/ 48

49. Thank you! Siobhan Champ-Blackwell siobhan.champ-Blackwell@nih.gov Disaster Information Management Research Center http://disasterinfo.nlm.nih.gov 49