1. Western Australia Stroke Services Study Day Inform me, enable me: delivering stronger stroke care and recovery

2. Who we are The National Stroke Foundation is a not-for-profit organisation that works with stroke survivors, carers, health professionals, government and the public to reduce the impact of stroke on the Australian Community. We aim to stop stroke, save lives and end suffering. We are a non-federated national NGO providing services and support around Australia with offices in (WA,TAS,QLD,NSW). We are the ‘voice of stroke’ in Australia.

3. Why are we needed Stroke is one of Australia’s biggest killers after coronary heart disease and a leading cause of disability. (Australian Institute of Health and Welfare 2014. Australia’s Health 2014.) In 2014, there were 51,000 new and recurrent strokes across Australia (4,700 in WA) and 440,000 people living with the effects of stroke (41,000 in WA) (Deloitte Access Economics - Stroke In Australia – No postcode untouched. 2014) Two thirds of these people have a disability resulting from their stroke. (Deloitte Access Economics – The economic impact of Stroke in Australia. 2013)

4. What we do to help The NSF is committed to: Raising awareness of the risk factors and signs of stroke and promoting healthy lifestyles. (FAST, StrokeSafe Ambassadors) Improving treatment in hospital and rehabilitation care in order to save lives and reduce disability. (Audits, Clinical Guidelines, Inform Me) Improving life after stroke for stroke survivors. (Support Groups, Strokeline, Enableme, Resources)

5. What we do to help Encouraging and facilitating stroke research. Advocating for improved stroke prevention, treatment and support. Raising funds from the community, corporate sector and government to continue our mission. This work is supported in WA by an Executive Officer, Community Engagement Coordinator and volunteers.

6. What’s new?

7. Guidelines & standards Data Collection Feedback and quality improvement support Delivering stronger stroke care Update underway

8. InformMe – key areas Individualised information and features including a step- by-step guide to developing a quality improvement plan Membership area NSF Clinical Guidelines and other key guidelines in stroke Clinical Guidelines Professional development modules, emerging evidence, and resources for stroke care by topic areas Learning & resources NSF audit results including national and individual site reports Stroke data Member area for collaboration such as “Ask a question” and resource sharing Connect Information and guidance on implementing clinical improvement Improving care

10. Performance data page

11. Supporting stroke recovery

12. New on enableme Personalised Accessible Community Resources Goal setting

13. What’s new? 26,000 unique visitors and 1700 registered users Easy English option for content pages Podcast series kicking off in February with a special on neuroplasticity. Survivor and author David Roland and Professor Harry McConnell talk brain injury after stroke

14. Jenny Ferrier on enableme “As a senior I wanted to enter the world of technology – a big learning curve – and after my stroke I wanted to challenge my brain. The idea of connecting with other survivors also really appealed to me. It was certainly worth doing as enableme is wonderful. I discovered that my emotional changes are commonly experienced after stroke and that’s helped me immensely. I would advise senior stroke survivors to take on the challenge of technology as there is so much to learn and enjoy.” Jenny Ferrier

15. My Stroke Journey MSJ helps you deliver: High quality information to patients, family members and carers to equip them to fully participate in their care Care planning that supports goal setting and the transition from hospital to home.

16. MSJ 2016 Consultation with health professionals and consumers Care plan merging into MSJ booklet with a workbook format Real stories from survivors and carers Launching March 2016

17. Thank you Jonine Collins Executive Officer Western Australia jcollins@strokefoundation.com.au Jude Czerenkowski National Manager Community Programs jczerenkowski@strokefoundation.com.au