1. Cancer Society of New Zealand Living Well Programme IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER

2. Cancer Survivorship IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Life after cancer What is normal now? “I thought when I’d finished treatment—when they looked at my tests and they said it looked good—I thought, OK, I’m done. But now I’m starting to realize that it’s not over.” —Jane

3. Survivorship Concerns: IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER “Because the doctors and nurses never told me what to expect, I had very unrealistic expectations of wellness, and so did my family and friends. This led to a great deal of worry.” —Bob Physical Emotional/psychological/spiritual Social and workplace Maintenance of patient-clinician relationship Practical

4. Introduction & Overview of Programme 6-week facilitated Cancer Education programme small group setting survivors & carers IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER

5. The Beginnings: IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Originally developed in America and called ‘I Can Cope’ in 1970s Adapted by the Victoria Cancer Council in 1980s and called Living with Cancer Education Programme Brought to New Zealand in 1990s and adapted to Living Well Programme in 2000s

6. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Survivors during extended survival time from recently discharged, up to 5 years post-treatment Carers and other support people Participants:

7. Aims: IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Increase knowledge of disease process Investigate activities that assist maintenance of health, eg, nutrition, exercise, management of acute/chronic side-effects, psychosocial issues, resilience Assess reliable sources of information Improve communication

8. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER

9. Small Group Process: IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Identify participants’ needs Encourage discussion within a safe setting Increase coping skills Discuss common concerns Identify support services in community

10. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Health Promotion, Lifestyle Changes & Disease Prevention CanQuit SunSmart Slip, Slop, Slap & Wrap IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Demystifying cancer Causes Prevention Immune system “I got my cancer because I have been so stressed out for most of my life.” - Mary

11. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Live Smart EatSmart MoveSmart IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER

12. Management of Acute and Chronic Side- effects symptom self-management cancer-related fatigue changes in bodily functions sleep problems memory & concentration pain infertility weight management IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER “If I could stop feeling so tired all of the time, I think I’d be fine. I’ve started getting used to everything else.” - Rosa

13. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Management of Acute and Chronic Side- effects Finding information Assessing quality of information sources Decision making Solving problems Complementary & alternative therapies IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER “Friends keep telling me to try some product or other. I don’t know whether I should or even how to decide what’s helpful”. - James

14. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Adjusting to Change What is normal now? personal reactions to change loss & grief changes in appearance changes in intimacy workplace issues: rights/needs/co-workers regaining self-confidence/self-esteem finding meaning why me? survivor guilt redefine normal IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER “Not being able to concentrate the way I used to has been the hardest for me. I’m hoping it doesn’t affect my work.” —Josh

15. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Communication Skills: Improving communication skills health care team family issues friends co-workers rights Workplace issues: rights & needs Seeking support IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER “I could feel myself getting down, and I joined this group and we have a great time. We cry, we laugh, we carry on.” - Elia

16. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Self-care: relaxation & mindfulness maintaining wellness stress management resilience “I don’t think you ever forget the fact that it could come back.” - Emily

17. IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER Piloting Living Well with Maori Health Providers Consultation with Kokiri Marae at beginning of 2009 Facilitator training in April 2010 for pre-pilot with Kokiri Marae Pre-pilot and evaluation July/August 2010 Call for expressions of interest, August 2010 3 Maori health providers selected – Palmerston North, New Plymouth, Whangarei (urban/rural/isolated) Facilitator training October 2010 Pilots and evaluations to be completed by April 2011 IMPROVING COMMUNITY WELL- BEING BY REDUCING THE IMPACT AND INCIDENCE OF CANCER