1. 1 “ Trouble Down Below ” Tuesday 21 st June 2016 The Royal National Hotel, Russell Square, London Generously supported by Prostate Cancer UK Annual Conference 2016 Tackle Prostate Cancer is the campaign name of The National Federation of Prostate Cancer Support Groups Charity Registration Nº 1163152. A Company limited by Guarantee. Registered in England Nº 9672970

2. MORNING SESSION 1030-1230 1. Annual General Meeting 2. Open Forum LUNCH 1230-1330 AFTERNOON SESSION 1330-1630 3. “To Screen or Not to Screen” - that is the only question (including a commentary on breast cancer screening) Chris Booth, Emeritus Consultant Urologist 4. PSA Consensus and The Prostate Cancer Risk Management Programme : Karen Stalbow & Ali Cooper, Prostate Cancer UK 5. Panel Discussion - Manit Arya, Chris Booth, Rob Cornes Programme for the day 2

3. Annual Conference 2016 Annual General Meeting 3

4. 1. Roll Call 2. Minutes from 2015 AGM 3. Chairman’s Report 4. Chief Executive’s Report 5. Treasurer’s Report 6. 2015 accounts - Prostate Cancer Support Fed 7. 2015 accounts - The Nat Fed of PCSGs 8. Re-appointment of Auditors TGFP 9. AOB notified in advance Agenda 4

5. Roll Call : Groups represented here today.... Aylesbury Vale CHAPS (Mens Health) Cornwall East Lancs East Suffolk Greater London High Peak Leighton Hospital Metro Walnut Milton Keynes Norfolk & Waveney North Hampshire Oxfordshire PCaSO PCSA (Central England) PCSa (Kent) PHASE Prospect (Bristol & District) PROSTAID Prostate Cancer Cardiff The Prostate Project Purley Solihull Somerset South Warwickshire York & Selby APPLE (London) 5

6. Agenda Item 2 Minutes from 2015 AGM 6

7. Making Progress Making Waves Making A Difference? Managing Uncertainty 7 Agenda Item 3 : Chairman’s Report

8. My Thanks To...........  The Board of Trustees for their advice and contribution  Our Clinical Advisory Board for their counsel  Rowena and her team who are raising our profile  Our volunteers, particularly those who man the helpline  Our Support Groups for their advocacy, sharing good practice and commitment to the Federation  Prostate Cancer UK for their assistance, both financially and in joint working..... and remembering those we have lost this past year 8

9. Agenda Item 4 Chief Executive’s Report 9

10. SUPPORT PATIENTS CAMPAIGN ON ISSUES RAISE AWARENESS The Voice of Prostate Cancer Patients and their families Act on Issues & Opportunities Encourage Formation of Groups Strengthen Tackle Impact & Profile Our Strategy 10

11. Looking at SUPPORT PATIENTS  Encouraging expansion of our support network – now up to 84 groups  “How to” guide for new groups (setting up, tips and good practice)  Value-added pack for support groups to include awareness pack, website template, slide presentation, banners, flags and badges  New national helpline, with local helplines joining and 10% increase in calls  Regional workshops - Christie, Midlands, South  “Strangers and Friends” video at https://vimeo.com/152961653 11

12. Examples taken from Tackle’s group publicity pack

13. Two examples of Tackle’s website template in use 13

14. Looking at RAISE AWARENESS  “Tackle Bus” initiative is our main project for 2016  “Get a Score on the Board” initiative with Jason Leonard, David Gower, Damian Hopley  Support for PSA testing through Graham Fulford  3 year sponsorship with Sportfish group; launch in November with competition early 2017  Black community awareness through “It’s a Man Thing” Jazz concerts, and partnering with the Tackle Bus  Participated in PSA Consensus; GP discussion feedback promoted  “Tackle the Tiger” video at https://www.youtube.com/watch?v=HxZP_ZXf5j8&feature=youtu.be 14

15. Looking at CAMPAIGN ON ISSUES 15  Cancer coalition submission on Cancer Drugs Fund  Submission to National Screening Council  UK 5-year cancer task force strategy  Drug campaigns (Enzalutamide, Abiraterone, Cabazitaxel, Degarilix, Radium 223)  Increasing media coverage  Europa Uomo  NICE consultation partner  Cancer Campaigning Group 15

16. 15 th March 2016 Tackle mention by William Hartston Examples taken from Tackle’s press coverage 16

17. Treasurer’s Report Erik Friis-Scheel Agenda Item 5 17

18. o Income 2015 o Expenditure 2015 o Improvements in Financial Processes and Reporting 18

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21. o Monthly financial reporting to Officers including: o Actual v Budget o Unrestricted cash flow projection o Restricted fund analysis o Annual budget in advance of new financial year including year end forecast Improvements in Financial Processes and Reporting 21

22. Agenda Item 6 2015 Accounts Prostate Cancer Support Federation 22

23. Agenda Item 7 2015 Accounts The National Federation of Prostate Cancer Support Groups 23

24. Agenda Item 8 Re-appointment of Auditors 24

25. Open Forum Annual Conference 2016 25

26. Annual Conference 2016 26

27. Panel Discussion Manit Arya Chris Booth Rob Cornes Annual Conference 2016 27

28. Closing Remarks Annual Conference 2016 28