1. Lifespan Respite / Caregiver Supportive Services Age & Disabilities Odyssey Conference 2013

2. Methods Online survey (survey monkey) available February 2013 24 questions –3 demographic –9 populations served –6 caregiver support services –6 respite care 364 responses –36 duplicate/unusable –Total n=328

3. DEMOGRAPHIC DATA

4. What is your job title? (n=245)

5. Which of the following best describes your organization? (n=328)

6. POPULATIONS SERVED

7. Summary of populations of informal caregivers organization serves

8. What population(s) of informal caregivers of older adults (age 60 and older) does your organization serve? Select all that apply. (n=293)

9. What population(s) of informal caregivers of adults with disabilities (ages 22-59) does your organization serve? Select all that apply. (n=266)

10. What population(s) of informal caregivers of youth with disabilities (ages birth-21) does your organization serve? Select all that apply. (n=175)

11. Please describe programming (targeted groups) 5 programs served Hmong, SE Asians, Russians and Latino/Hispanic clients Two received diversity training One served clients “as required by DHS” Only 2% of agencies noted racial/ethnic minority No instances serving LGBT caregivers

12. INFORMATION ON SERVICES

13. Which of the following caregiver support services does your organization provide? (n=248)

14. Which of the following methods of payment or reimbursement do you receive for your caregiver support services? (n=188) Free (All)Free (Eligible)3 rd PartySliding FeePrivate Bereavement158896 Assessment3221321915 Education462619 15 Care Mgmt1621451822 Coaching251714238 Support Group3813393 Family Meeting2516141612 Hlth Wellness2512 710 Therapy321178 Respite1219753449 Info/Assistance842319610

15. Sources of funding received by organizations in 2012. (n=133)

16. RESPITE SERVICES

17. Please identify in which settings and by whom respite care is provided. (n=177)

18. Setting of Respite Care - STAFF

19. Setting of Respite Care - Volunteers

20. Does your organization offer any of the following? (n=120)

21. Considerations Is there a delineation between a “disability” provider and an “aging” provider? What is our shared nomenclature? –What does “caregiver support services” mean? Caregiver as client? –What is respite care? What does it mean to provide culturally and/or linguistically appropriate services? –Inclusivity versus exclusivity

22. Caregiver Support Services Survey can be found at: http://www.lifespanrespite.memberlodge.org/NeedsAssessments http://www.lifespanrespite.memberlodge.org/NeedsAssessments Contact Information Kari Benson – MN Board on Aging –kari.benson@state.mn.uskari.benson@state.mn.us Emily Farah-Miller – Lifespan Respite Coordinator –efmiller@tcaging.orgefmiller@tcaging.org Rajean Moone – Researcher –rajean@rajeanmoone.com / 651-235-0346rajean@rajeanmoone.com