1. Delivering eHealth Ireland | Office of the Chief Information Officer IHI Infographic Office of the CIO | Delivering eHealth Ireland

2. Delivering eHealth Ireland | Office of the Chief Information Officer IHI PIA Public Consultation Animatic

3. Delivering eHealth Ireland | Office of the Chief Information Officer EHR Public Consultation

4. Delivering eHealth Ireland | Office of the Chief Information Officer IHI Public Consultation

5. Delivering eHealth Ireland | Office of the Chief Information Officer PIA Process  Targeted Stakeholder engagement  Draft PIA document  Public Consultation  – started 1 Feb extended to 8 April (10 weeks)  Review feedback and incorporate into PIA document  Repeat key stakeholder engagement  Finalise document  Publish in the public domain  Review and revise document as more development or services come on board

6. Delivering eHealth Ireland | Office of the Chief Information Officer Initial PIA Stakeholder Engagement:  Health Service Executive (HSE)  *Department of Health (DOH)  *Department of Social Protection (DSP)  *Offices of the Data Protection Commissioner (DPC)  *Health Information and Quality Authority (HiQA)  Beaumont Hospital  The Council of Clinical Information Officers (CCIO)  Irish Platform for Patients’ Organisations, Science & Industry (IPPOSI)  Note:  Engagement required with Adoption Board  Dept. of Justice re assisted vulnerable individuals etc

7. Delivering eHealth Ireland | Office of the Chief Information Officer Public Consultation: Targeted Stakeholders:  National Forum - Advocacy Groups, Patients and service users  HSE Leadership Team – with correspondence being cascaded through their communication channels internally and externally  Hospital Groups, CCOs  Mental Health and Social Care  National GPIT  Internal HSE Staff

8. Delivering eHealth Ireland | Office of the Chief Information Officer Public Consultation: Wider Public Stakeholders:  Press release – telling the media about the consultation process.  Twitter – eHealth Ireland and HSE advising of the consultation process  Notice on HSE web page in relation to the consultation process  Notice in national news papers – This week!

9. Delivering eHealth Ireland | Office of the Chief Information Officer Challenges  Public consultation on Privacy – not on whether IHI is a good idea  Focus from ipposi audience was for privacy issues around electronic health record which is out of scope for IHI PIA – questions on consent that can not be answered at the moment.  Focus group feedback - Identifying Risks scares people – even if you are showing how you are going to address them.  PPSN!  PIA is a complex and technical document  DPC guidance on public data sharing

10. Delivering eHealth Ireland | Office of the Chief Information Officer HiQA opinion poll (2008) Public support for sharing of health information  Summary of key results:  86% thought health information should be linked up across settings to improve patient safety and care.  96% thought GPs and the hospital should use the same number to identify health information.  96% said they had the right to be informed of who has access to their health information.  People believed it is currently the case that health information is shared across the system, with three-quarters of people indicating their belief that, in most circumstances, the hospital does contact their GP with important information when they are discharged.  In relation to people being able to access personal health information, (96%) said they had the right to be informed of who has access to their information.  “Our poll indicates that people are very comfortable with the sharing of health information across a range of situations and in fact believe this is currently the case” Professor Jane Grimson, Director of Health Information HiQA

11. Delivering eHealth Ireland | Office of the Chief Information Officer Benefits versus Risk

12. Delivering eHealth Ireland | Office of the Chief Information Officer Q1: Identified all the Benefits? Q1: 28% added a comment

13. Delivering eHealth Ireland | Office of the Chief Information Officer Q2: Identified all the Risks? Q2: 22% added a comment

14. Delivering eHealth Ireland | Office of the Chief Information Officer Q3: Sufficient Safeguards? Q3: 33% added a comment

15. Delivering eHealth Ireland | Office of the Chief Information Officer Comments:  Benefits: Financial benefit for e.g. money follows the patient, fraud reduction  Risks: Concern re health insurance companies having access  Safeguards: Primarily Policy and Procedure based – difficult to implement across multiple organisations  Public Consultation Process: Too big a document to have only 3 questions for consultation