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Crohn's & Colitis Foundation of America Preparing for successful recess visits with members of Congress Sarah Buchanan Director of Advocacy Monday, July 25, 2016
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Goals of Webinar Why August? CCFA legislative priorities Review how to conduct a legislative meeting
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August Recess The U.S. House and Senate will be in recess in August to: Return home Meet with constituents Campaign
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In-District Meetings are IMPORTANT Maintain relationships with your legislators Advocate for bills that will pass in the fall/winter Annual spending (appropriations) Reiterate other ‘asks’ – Crohn’s & Colitis Caucus Volunteers are critical to gaining lawmakers’ support for funding and legislation to improve outcomes for IBD patients
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Goals of Webinar Why August? CCFA 2016 legislative priorities Review how to conduct a legislative meeting
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CCFA Online Resources http://www.ccfa.org/get-involved/be-an-advocate/ advocacy@ccfa.org
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2016 Legislative Priorities 1.Join the Congressional Crohn’s & Colitis Caucus 2.Co-sponsor HR 1600, The Patients’ Access to Treatments Act 3.Support medical research on IBD in fiscal year 2017 (FY17)
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Congressional Crohn’s & Colitis Caucus Reps. Ander Crenshaw (R-FL) and Nita Lowey (D-NY) 72 Members Join the Congressional Crohn’s and Colitis Caucus
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Medical Research Appropriations Annual process CCFA asked for: $1 million for the CDC IBD Epidemiology Program $34.5 billion for NIH and $2.165 billion for NIDDK Include ‘IBD’ in the DOD Peer-Reviewed Medical Research Program Jan- Mar Mar- Jul Aug Sept- Oct
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Federally Funded IBD Research Centers for Disease Control and Prevention Public health agency IBD Program Ocean State Crohn’s and Colitis Area Registry (Rhode Island) Epidemiology and impact of treatment variations
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Federally Funded IBD Research National Institutes of Health Largest biomedical research agency in the world $128 million on IBD research in FY15 National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Leads the NIH research portfolio on IBD
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Federally Funded IBD Research Department of Defense Peer-Reviewed Medical Research Program Supports research into conditions that affect military personnel and veterans If included as a ‘condition eligible for study,’ researchers can compete for grants IBD researchers compete successfully every year
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Medical Research Appropriations Congress proposed: $750,000 for the CDC IBD Epidemiology Program (level funded) $34.084 billion for NIH and $2.041 billion for NIDDK (+$2B increase for NIH) Include ‘IBD’ in the DOD Peer-Reviewed Medical Research Program Jan- Mar Mar- Jul Aug Sept- Oct
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August ‘Asks’ Join the Congressional Crohn’s & Colitis Caucus Include the higher funding levels for medical research in fiscal year 2017 – see CCFA letter in handouts
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Schedule a Legislative Meeting Contact the office of the member of Congress Ask to speak to the scheduler Request an in-district meeting in August Be prepared to give the names of other attendees if applicable
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Prepare for the Meeting Coordinate talking points with colleagues Bring handouts (located in Visit Your Legislator):Visit Your Legislator 1.CCFA Federal Priorities one-pager 2.Crohn’s & Colitis Caucus one-pager 3.CCFA letter regarding FY17 funding for research Bring camera
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Crafting Your Message Tell Your Story 1.Thank staff/legislator 2.Identify yourself - CCFA volunteer, constituent 3.Let them know your ‘ask’ 4.Describe IBD 5.Tell your story 6.Close – restate ‘ask,’ thank again, request updates
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Follow Up
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Thank You Questions?
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