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Bill Murphy Director, Advocacy & Public Policy Epilepsy Foundation New England Women In Government State Policy Roundtable on Medical Continuity of Care.

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Presentation on theme: "Bill Murphy Director, Advocacy & Public Policy Epilepsy Foundation New England Women In Government State Policy Roundtable on Medical Continuity of Care."— Presentation transcript:

1 Bill Murphy Director, Advocacy & Public Policy Epilepsy Foundation New England Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

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3 Close to 3 million Americans currently live with epilepsy. 1 in 26 Americans will develop epilepsy at some point in their lifetime. More than 67,000 people in Massachusetts have epilepsy (seizure disorders). Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

4 40 Senators More than 1,600 people living with epilepsy in your district. 160 House Members More than 400 people living with epilepsy in your district. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

5 Medication Cannabis (CBD oil) Surgery Vagus Nerve Stimulation (VNS) Responsive Neurostimulation (RNS) Dietary Therapies Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

6 Approximately 25 to 30 percent of the epilepsy population lives with seizures that cannot be controlled by existing drugs or surgery Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

7 Timely access to appropriate care and effective coverage for epilepsy medications is a critical concern for people living with epilepsy. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

8 Removing barriers Access to specialists Prior Authorization Step Therapy Medication substitutions Formulary changes (affordability, high cost sharing, tiering) Onerous drug monitoring requirements Access to emergency medications Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

9 Amendment #13 to H.4200 Massachusetts Patient Access and Safety Commission Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

10 SUPPORT OF HB 791 Representative Jennifer E. Benson An Act relative to patient medication adherence Exemption process for step therapy !! Joint Committee on Health Care Financing Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

11 THANK YOU ! Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016


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